Wendy,
Lets just get right to it. 40% of people who have surgery become
seizure free, 90% see a great reduction in seizures, and 10% see no
change. For me, the decision was easy because nothing else was making
any difference so a 40% chance of seizure free was better then the 0%
anything else was giving me. It has been 2 years since my right temporal
lobectomy. I am not seizure free (complex partials) but have seen a
great reduction in my seizures, though they are beginning to get worse
again. We are considering a VNS.
Pain-yes lots of it. Narcotic drugs are used and they basically make you
feel like you don't care you are in pain. They knock you out most of
the time. They have to be managed very carefully.
Recovery-making sure meds are scheduled and never missed. Little to no
noise.
Just the basics =)
Kelly P
Wendy Baur wrote:
> We took Julia to Children's in DC on Monday and now have a
> plan..Finally a 23hour VEEG scheduled for 7 May. We know that Julia's
> seizures are focal so, we're on our way to surgery I hope. I would
> like to hear form those who have had surgery. How did you feel after
> surgery? Were you in pain? What helped your recovery? How long has
> it been since your suregery and how does your surgery area feel now?
> What did your doc say about seizure control after surgery (ie chances
> of 100% control 90%, 80%). I know 100% is a pipe dream and honestly
> I would be happy if I saw 1 seizure a week.
>
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