Wednesday, April 21, 2010

[epilepsy] Re: possible vns? 2 yrs post op

 

Kelly.
I just had a VNS implant 3 weeks ago. It has not been long enough to tell how much control is there yet because they have to slowly increase the strength/voltage every 1-2 weeks. I am at .75 with a goal of 5.0 . So far I have had 3 attacks but my wife says that the length, severity, and recovery had reduced incredibly. Also, it seems to have had a positive effect on the depressive side effects of all the meds I am on. I am 44 ys old with 25 ys of un-controlled gran mal seizures.
Sam.

--- In epilepsy@yahoogroups.com, Kelly Porter <kellyporter@...> wrote:
>
> Well I heard word from my epileptologists office that she wants me to
> consider putting in a VNS now. I just passed the 2 year anniversary of
> my right temporal lobecomy on March 31st. It was partly successful in
> that I went from having 3-6 complex partials a day to less. At first
> they were spaced out every few weeks. At one point a bit over a year
> ago I went over 90 days and drove for a little while. That ended after
> a couple months. Now--I am having at least 2-3 seizures a week, and
> they are worsening in intensity. Tuesday around noon I had my first one
> since surgery that included automations--that was fun--scared me. So I
> called her office and heard back within a couple hours. I already had
> an appointment with her on May 3rd. Should be fairly interesting.
>
> Kelly
>

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