Millie,
About a year ago, my neurologist wanted to be in a study program like that for a medicine that had not been approved by the fda yet. The papers I got with it said some people would get the medicine and some would get a placebo,you wouldn't know whether you were getting it or not. They wanted me to come every week and have bloodwork done and other tests done. That is 3 hours from where I live and I couldn't do all of those trips. I don't blame you for not doing it,since your seizures are so well controlled. Mine aren't, but I still wouldn't do it. Take care.
Tammy
---- mylmy@bnin.net wrote:
> Hi everybody,
>
> Twice I have answered a letter in this group saying I would be
> willing to be interviewed about EP.
>
> For the first one--I was called and they wanted me to get into
> a group and try a new med. Now why would I want to change meds if I
> have been controlled for 2 -4 years? I can see that if I was having
> szs -- I might want to try it. She just couldn't understand why
> I wouldn't want to do that. I think I finally hung up on her.
>
> The second one was just a few months ago. I think Jewl said she
> was in this. They wanted me to report regually when I take my meds,
> when I had a sz, how I felt after wards and so on. I started on this
> one but since I take my meds regually and have no szs-- I decided it
> was not worth my time.
>
> So I wrote and told them why I was cancelling. They sent me a $10 gift
> certificate for Amazon. I used it to get Suze Orman's 2009 book.
>
> Has anybody else had any experiences like this?
>
> Millie
>
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