That is how I feel when I'm having a panic attack
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From: Steve <stephenpales@yahoo.com>
To: epilepsy@yahoogroups.com
Sent: Saturday, November 12, 2011 5:10 AM
Subject: [epilepsy] Re: Suggestion for new topic
Hi Susan,
Since surgery what I very seldom feel I believe is an aura, but is totally different than before surgery. What I notice is I'm shaking on the inside of me, as well as the outside. But so little it doesn't affect my ability to talk, run, eye hand coordination (I can juggle 3 or 4 balls while this is happening with no problem at all) and cognitive abilities aren't affected. Where I notice it the most is if I'm playing tennis at the time. I will be running, playing the game like usual. Nobody will notice it in me in anyway at all. But, I will notice it because my touch is slightly off the usual. Making more unforced errors than usual. But like I said, nobody around me will notice it. I notice it because I'm such a perfectionist (smile)! I can be sitting at dinner out with friends and they wouldn't notice anything in me as I'm talking and eating like usual. it's simply I have a slight inner feeling something isn't right. Oh gosh, it feels like
nothing compared to an aura before surgery!!!!! What's trying to happen is a seizure is trying to happen, but the scar tissue in my amygdala where seizures accured where removed from my brain. So electrical activity has surged, but can't trigger a seizure since that area of the brain has been removed. That doesn't mean it can't happen again anytime in my life!!!!! But so far, I'm still seizure free (smile).
Steve
--- In epilepsy@yahoogroups.com, Susan Wain <susan.wain@...> wrote:
>
> R U driving even w/auras as in NJ I was told that they were seizures and I had to be aura free for a year as when having auras, you lose track of time and dont remember what has happened
>
>
>
> ________________________________
> From: Steve <stephenpales@...>
> To: epilepsy@yahoogroups.com
> Sent: Thursday, November 10, 2011 9:52 PM
> Subject: [epilepsy] Re: Suggestion for new topic
>
>
>
> Â
>
> Hi Doris,
>
> Like you I find it very interesting hearing from others who had surgery concerning epilepsy. I had a LTL just over 5 years ago.
>
> I've been seizure free since surgery. It was totally my decision to NOT reduce either my Keppra or Trileptal, my 2 meds.
>
> Changes on me since surgery:
>
> Self confidence increased allot
>
> Talking more than I ever have in the past!!!
>
> Accept my weaknesses allot more than before surgery
>
> My cognitive abilities are worse than before surgery, short term memory is terrible! That has affected me in allot of ways in what I do in my free time. I can't read and have music on at the same time. I lose focus easily when reading. Most times I can't remember allot of what I read. Feel pretty stupid (smile) but accept it, what more can I do?
>
> I also lost allot of my taste buds. I NEVER have an urge to eat a particular food because of the taste. So, because of that I'm eating more healthy foods. When I feel like munching, I get out the peanuts or grapes simply because it's healthy. Rarely have a cookie or cake or potato chips because all the tastes are the same, really!
>
> I've always been a participating sports bum even when NOT seizure free. Now I'm up and out doing healthy things that much more! During the summer out hiking the trails with groups in Meetup hiking from 8- 10 miles weekly sometime both days on the weekend. About 5 weeks ago we hiked 21 miles in a day around Geneva Lake in WI. And when on the quiet side before surgery, now enjoy getting out with others who's interests are hiking and camping, and can keep up my talking with them! Can't wait to go hiking on trails in the snow this winter (smile) in groups with other addicts (smile)!
>
> Also, before surgery had seizures with to much time on the computer. I was very light sensitive. Now rather than a seizure, can stay on the computer as long as I like. Same with lights of all sorts that used to trigger seizures.
>
> When stressed, it used to trigger seizures. Now, feel my hand shaking more like before surgery but it goes no farther than that.
>
> Auras, every few months feel the most minor one seizure, no more than that. Before surgery I had auras now and then but never before a seizure. I averaged 1-7 complex partials each month with never a aura before a seizure.
>
> That is all I can thing of right now. If anybody could use support you can always email me at stephenpales@...
>
> Take care, keep a smile on your face.
>
> Steve
>
> I've been driving since (smile)!
>
> --- In epilepsy@yahoogroups.com, "DorisY" <dorisellen@> wrote:
> >
> > As an epileptic, I would like to express something that I think would be meaningful to many. Others who have had brain surgery, as I have,
> > could talk about clear changes they have experienced and these would be both understood and valued. I think others could share their ideas of helpful methods of dealing with this as time passes and often changes things in different ways.
> >
> > This is food for thought.
> >
> > Sincerely, Doris dorisellen@
> >
>
>
>
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> [Non-text portions of this message have been removed]
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