Thanks for your input on the surgery. I am glad that yours has helped you.
That is great news! :)
Gina
-------Original Message-----
From: uniquepnk tds.net
Date: 11/8/2009 9:44:43 PM
To: epilepsy@yahoogroup
Subject: Re: [epilepsy] I'm new....
Gina,
Welcome to the group. I have complex partial seizures and have had them
since I was a baby, which was about 40 years ago.I never had any kids
myself, because I was always afraid of hurting them during a seizure. That
is something my mom worried herself to death over everytime I had a seizure,
so I know it isn't easy to watch your children go through something like
that.I have been monitored in the hospital with EEG's and MRI's and
sometimes VEEG's.Afterward I had brain surgery, which was about 5 years ago.
I went 9 months without a seizure, but they started back, but they are not
near as bad as they were before I had the surgery.I don't have any regrets
as far as having the surgery done. It cut the seizures down to just a few
each month.He will have to be checked to see if he is a candidate for it. I
hope it helps if you decide to have it done.Take care and if there is
anything I can do, write anytime.
Tammy
On Sun, Nov 8, 2009 at 3:28 AM, *~Gina~* <19gina66@gmail.
>
>
>
>
> Hello I am new to the group.I am a mother to 6 boys.My 17 year old and 6
> year old have epilepsy.My 17 year old had grand mals (been seizure free
for
> 8 years off meds) and my 6 year old has complex partial's which on
occasion
> has turned into the grands.
>
> My 6 year old son was put into PICU at our local Children's hospital on
> Friday because he was having electrical status epilepticus during sleep.
> They, on purpose, over-dosed him with Diastat (30 ML) in hopes to stop the
> activity.He had to be closely monitored because of this obviously. The
> activity stopped thank goodness . He has been put on valium (5mg 3x day)
> for
> a month along with his Depakote(4 125 MG 2x day). They'll repeat the EEG
in
> a couple of weeks. If the seizure activity isn't gone then they will send
> us
> to Michigan where they have a special brain scanning machine (can't
> remember
> the name of it)...then possible brain surgery.Super worried here!!!! He is
> doing quite well at the moment though. Has anyone else been through this
> type of treatment or had a similar problem?
>
> It breaks my heart to see my child seize. Every time he has a seizure I
> think he is going to die. I panic to the extreme. Tell me I am not alone
in
> these feelings? I wish I could cope better but the mother in me comes out
> and takes over the calm.
>
> Thanks for allowing me to be a part of this group.I look forward to
getting
> to know everyone.
>
> Gina
>
> [Non-text portions of this message have been removed]
>
>
>
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