Gina,
47 years ago I had grand mals but I never had them very often. About 15
years ago they changed to something like complex partials. My girls say
that my brain is scrambled for a couple days. I do not pass out anymore.
I am very fortunate. I have been on Dilantin and Phenabarb for over 20
years. My last sz was 2 years ago and before that it was 4 years.
I just retired from being a home health aid for 25 years. I have an
apartment in a retirement center-- mainly so people know how I am usually
and when I am different they know to call my 2 daughters who live in town.
They come and take over until my brain is more like it usually is.
Millie
---- Original Message -----
From: "*~Gina~*" <19gina66@gmail.
To: <epilepsy@yahoogroup
Sent: Sunday, November 08, 2009 1:24 PM
Subject: Millie Re: [epilepsy] I'm new....
>
> Yes it is very scary for us onlookers! Do you still have seizures?
>
> Gina
>
>
>
> -------Original Message-----
>
> From: Millie Myers
> Date: 11/8/2009 9:31:26 PM
> To: epilepsy@yahoogroup
> Subject: Re: [epilepsy] I'm new....
>
> Gina,
>
> Welcome to our group. I , myself have EP and have never seen a sz except
> on
> TV-- but I am sure it is scary.
>
> I was DX with EP 47 years ago. I then had 3 daughters, w2, 4, and 6 plus
> a
> husband who is a now an ex.
>
> Millie
>
>
>
>
>
>
> ----- Original Message -----
> From: "*~Gina~*" <19gina66@gmail.
> To: <epilepsy@yahoogroup
> Sent: Sunday, November 08, 2009 3:28 AM
> Subject: [epilepsy] I'm new....
>
>
>>
>>
>> Hello I am new to the group.I am a mother to 6 boys.My 17 year old and 6
>> year old have epilepsy.My 17 year old had grand mals (been seizure free
>> for
>> 8 years off meds) and my 6 year old has complex partial's which on
>> occasion
>> has turned into the grands.
>>
>> My 6 year old son was put into PICU at our local Children's hospital on
>> Friday because he was having electrical status epilepticus during sleep.
>> They, on purpose, over-dosed him with Diastat (30 ML) in hopes to stop
>> the
>> activity.He had to be closely monitored because of this obviously. The
>> activity stopped thank goodness . He has been put on valium (5mg 3x day)
>> for
>> a month along with his Depakote(4 125 MG 2x day). They'll repeat the EEG
>> in
>> a couple of weeks. If the seizure activity isn't gone then they will send
>> us
>> to Michigan where they have a special brain scanning machine (can't
>> remember
>> the name of it)...then possible brain surgery.Super worried here!!!! He
>> is
>> doing quite well at the moment though. Has anyone else been through this
>> type of treatment or had a similar problem?
>>
>> It breaks my heart to see my child seize. Every time he has a seizure I
>> think he is going to die. I panic to the extreme. Tell me I am not alone
>> in
>> these feelings? I wish I could cope better but the mother in me comes out
>> and takes over the calm.
>>
>> Thanks for allowing me to be a part of this group.I look forward to
>> getting
>> to know everyone.
>>
>> Gina
>>
>> [Non-text portions of this message have been removed]
>>
>>
>>
>> ------------
>>
>> Just a friendly reminder: Please remember to sign your post and remember
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>>
>> Yahoo! Groups Links
>>
>>
>>
>>
>>
>
>
> ------------
>
> Just a friendly reminder: Please remember to sign your post and remember
> to
> clean up messages when you reply to them. This is especially important if
> you are on digest. This not only helps out the list owner but, it makes
> messages much easier to read when they arrive in our inboxes.
>
> Yahoo! Groups Links
>
>
>
>
> [Non-text portions of this message have been removed]
>
>
>
> ------------
>
> Just a friendly reminder: Please remember to sign your post and remember
> to clean up messages when you reply to them. This is especially important
> if you are on digest. This not only helps out the list owner but, it
> makes messages much easier to read when they arrive in our inboxes.
>
> Yahoo! Groups Links
>
>
>
>
>
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