Wednesday, November 4, 2009

Re: [epilepsy] Medication or just the seizure disorder?

 


When I had grand mals I felt stiff like I had done some exercises that I
wasn't used to. I was told that is because your body has just gone thru
what it isn't used to doing and my muscles will be stiff and sore for a
couple days.

That doesn't happen now that I don't pass out and have what I think is
complex partials. My brain is just scrambled for a few days.

Millie

----- Original Message -----
From: "Jason" <tiscione@gmail.com>
To: <epilepsy@yahoogroups.com>
Sent: Tuesday, November 03, 2009 3:46 PM
Subject: Re: [epilepsy] Medication or just the seizure disorder?

> Numbness on your right side sounds like part of your prehistory. I have no
> idea whether a medicine is triggering that specific prior symptom or not.
> It
> sounds possible.
>
> As for brain fog and word problems, join the club. Those are common side
> effects of almost all anticonvulsants. I didn't notice it with Keppra but
> we
> almost got divorced when I was on that stuff; it made me fly into rages. I
> had to hand things to my wife and ask her to hide them in case I got even
> madder and smashed them against the floor. (Anyone see that "throw it to
> the
> ground" skit on SNL last week? Never mind...) I have brain fog and word
> finding difficulties all the time.
>
> The exhausted after seizures for a few hours thing is trying to tell you
> something- go to sleep. I know I bore people with this advice but people
> keep asking about why they feel so messed up, and I always tell them this:
> go to sleep as soon as possible after complex partial or generalized (or
> complex partial that generalizes which is what I got cursed with). Don't
> get
> out of bed (except to take pills) until you feel better, like you haven't
> just had a seizure. Don't bother setting an alarm. You might find yourself
> mysteriously able to sleep for most of a day, longer than you can ever do
> normally even if you tried. Just indulge in it.
>
> A person without E would be as screwed up in the head if they stayed awake
> for a week, as you could be after a seizure- especially if you lost
> consciousness. I take a B vitamin first for good luck, and a melatonin
> which
> always helps me get to sleep at odd hours. Plus a lorazepam- these things
> come in clusters and I don't need another one while I'm in bed. I still
> keep
> a bucket next to the bed in case I get really nauseous. I haven't used it,
> but it's comforting. Part of the health plan I'm on.
>
> Exhaustion (and nausea) are post-ictal effects of the seizure as your
> brain
> struggles to reorganize its prior internal state that the seizure has
> disrupted. (Nobody really understands what got knocked over, but it's a
> cleanup of sorts.) Normal people have a disrupted internal state after
> being
> awake 16 hours too, and they feel exhausted too (but not nauseous yet) and
> need to sleep. Nobody understands what's going on during sleep, but every
> animal with a brain in the animal kingdom has to do it. We know it serves
> some vital function. And it's going to take you a lot longer to feel any
> better if you stay awake... I can tell you that for sure.
>
> Don't let people call 911 at the drop of a hat (i.e. your hat)... you
> won't
> get any rest in an ER. They usually strap me to a board on a gurney and
> leave me under bright fluorescent lights, afraid I'm going to vomit
> without
> being able to turn my head to the side.
>
> Jason
>
> On Tue, Nov 3, 2009 at 11:06 AM, CorineW <corkiewol@yahoo.com> wrote:
>
>> Hi all. I'm confused with what is happening to me. I have complex partial
>> seizures. They last a couple minutes, then I'm exhausted for a few hours.
>> But on days when I don't seize, I have problems such as brain fog, slight
>> numbness on my right side, word problems, etc. Are these smaller types of
>> seizures (although it lasts hours, not minutes) or is it just side
>> effects
>> of the medication. Actually I've had the numbness come and go on my right
>> side for years before I went on medication, but seizures can't hang on
>> for
>> several hours can they? Thanks, Corkie
>>
>>
>>
>> ------------------------------------
>>
>> Just a friendly reminder: Please remember to sign your post and remember
>> to
>> clean up messages when you reply to them. This is especially important
>> if
>> you are on digest. This not only helps out the list owner but, it makes
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>>
>> Yahoo! Groups Links
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>>
>>
>>
>
>
> [Non-text portions of this message have been removed]
>
>
>
> ------------------------------------
>
> Just a friendly reminder: Please remember to sign your post and remember
> to clean up messages when you reply to them. This is especially important
> if you are on digest. This not only helps out the list owner but, it
> makes messages much easier to read when they arrive in our inboxes.
>
> Yahoo! Groups Links
>
>
>
>
>

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Just a friendly reminder: Please remember to sign your post and remember to clean up messages when you reply to them.  This is especially important if you are on digest.  This not only helps out the list owner but, it makes messages much easier to read when they arrive in our inboxes.

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