I finally got in to see an epileptologist @ Childrens in Pittsburgh. I
learned more about Mindy's seizures and sclerosis in one appt than I had at
a Neurologists in all the previous years combined!! Love this lady DR
Holder and her nurse Michele
-------Original Message-----
From: Liz Welker
Date: 11/19/2009 9:24:01 PM
To: epilepsy@yahoogroup
Subject: Re: [epilepsy] Is decline common?
My personal recommendation is that you find an epileptologist. I first
started seeing neurologists as a college freshman when I had a breakthrough
sz (first in 7 years) along with a brutal reaction to a medication, and I
will NEVER see a "generic" neuro again as long as I live. Epis are epilepsy
specialists. I think you and your daughter will find them much more useful
and probably more helpful, too.
Good luck!
LIZ in RI
--- On Thu, 11/19/09, Erikacccslp@
From: Erikacccslp@
Subject: Re: [epilepsy] Is decline common?
To: epilepsy@yahoogroup
Date: Thursday, November 19, 2009, 8:16 PM
Does anyone have a neurologist( adult) that they really like. I live on Long
Island (NY) and am very willing to go into the city. My daughter (20 yrs
old) was just diagnosed 6 weeks ago and the initial neurologist still has
not seen her for a follow up visit after all the tests and the seizures are
still not controlled. He is totally unavailable and my phone calls are not
returned. I guess his practice is just too large or he doesnt really care.
Thank you-Erika
-----Original Message-----
From: Tristin Seagraves <tristinspike26@ yahoo.com>
To: epilepsy@yahoogroup s.com
Sent: Thu, Nov 19, 2009 2:49 pm
Subject: Re: [epilepsy] Is decline common?
You're right Uggie. Over time, seizures can and do cause damage. Usually,
the affected area is able to transfer control to another area of the brain.
For example, 20+ years of left temporal lobe seizures cause sclerosis (scar
tissue) in my left temporal lobe. Gradually, my speech, language, and memory
transferred to my right temporal lobe.
Tristin Seagraves
--- On Thu, 11/19/09, Uggie <ugmcginnis@
From: Uggie <ugmcginnis@
Subject: Re: [epilepsy] Is decline common?
To: epilepsy@yahoogroup s.com
Date: Thursday, November 19, 2009, 9:58 AM
I disagree with what others are saying. My 17 yr old daughter has problems
associated with Epilepsy - NOT her Meds. She has increased memory loss,
loss of fine motor skills, muscle tone and coordination. All these are a
result of seizures in her left temporal lobe - which is where all her damage
is IT is takin over the area that controls these items. Understand what I
mean??
Uggie
-------Original Message----- --
From: Jennifer Richardson
Date: 11/7/2009 1:57:01 PM
To: epilepsy@yahoogroup s.com
Subject: [epilepsy] Is decline common?
Is it common to see a decline in abilities from seizures? My son is
diagnosed since September, and we have seen a decline in his ability both
with gross and fine motor coordination as well as a decrease in his overall
endurance.
Thanks.
Jennifer
[Non-text portions of this message have been removed]
------------ --------- --------- ------
Just a friendly reminder: Please remember to sign your post and remember to
clean up messages when you reply to them. This is especially important if
you are on digest. This not only helps out the list owner but, it makes
messages much easier to read when they arrive in our inboxes.
Yahoo! Groups Links
____________ _________ _________ _________ _________ _________ _
No virus found in this incoming message.
Checked by AVG - www.avg.com
Version: 8.5.425 / Virus Database: 270.14.53/2486 - Release Date: 11/07/09
07:38:00
----------
No virus found in this outgoing message.
Checked by AVG - www.avg.com
Version: 8.5.425 / Virus Database: 270.14.73/2513 - Release Date: 11/19/09
07:51:00
[Non-text portions of this message have been removed]
[Non-text portions of this message have been removed]
[Non-text portions of this message have been removed]
[Non-text portions of this message have been removed]
------------
Just a friendly reminder: Please remember to sign your post and remember to
clean up messages when you reply to them. This is especially important if
you are on digest. This not only helps out the list owner but, it makes
messages much easier to read when they arrive in our inboxes.
Yahoo! Groups Links
____________
No virus found in this incoming message.
Checked by AVG - www.avg.com
Version: 8.5.425 / Virus Database: 270.14.73/2514 - Release Date: 11/19/09
19:42:00
----------
No virus found in this outgoing message.
Checked by AVG - www.avg.com
Version: 8.5.425 / Virus Database: 270.14.73/2514 - Release Date: 11/19/09 19:42:00
[Non-text portions of this message have been removed]
No comments:
Post a Comment