Hi Lea and big welcome to the group.
I myself have been on these drugs since about the same age and in my 60s now. Took Dilantin for a long
time..Tegretol in any form is another bad one, along with others. These drugs seem to just love calcium for
some reason and go wherever they can find it. We can't even put enough into our bodies without supplementing
somewhere along the way. Hopefully before the osteop. hits us. I was but still when tested now have and have
it bad. Lots of fun I tell you.
When you think of the gums and problems there where are your teeth? What is your teeth made up of?
Here is a site you may want to visit sometime that may answer some of your questions...
http://www.neurolog
Just put a search in google for bones and dilantin and see what you come up with - or something similar.
At this age and on the drugs for that long your brother should demand a bone density test just to be sure. I
went thinking this would be a breeze and turn up nothing but when I saw my skeleton on the computer screen, oh
my, I didn't even look like a human being...sure glad I have some cover up on the outside so it doesn't show
that way. Once you have osteop. if not before that is where arthritis will hit as the osteop. is a silent
disease until you do something to break a bone where it is affected specially.
I was suggested that only could be given 3 different meds for ostep. Tried 2 and they clashed like crazy with
my meds, went to try another and it is still sitting here as is plain calcium and am already on a strong
calcium/mag.
there where as with the prescription ones you just don't know.
Hope this helps.
Julie
p.s tell your brother to maybe try taking even more of the vit. D and calcium daily. Just to spread more
throughout the day and possibly with meals so it doesn't disturb the stomach.
Julie Hope
epilepsyhealth@
http://www.2betrhea
----- Original Message -----
From: "Lea101_99" <lea101_99@yahoo.
To: <epilepsy@yahoogroup
Sent: Sunday, November 15, 2009 3:43 PM
Subject: [epilepsy] Dilantin Causing Osteoporosis-
Hello,
I hope someone can help me. My 54 year old brother has had epilepsy since he was 13. He has been taking
Dilantin since then, and is also taking Kepra and Lamictal with pretty good seizure control.
We know Dilantin does cause gum problems, but until last year and seeing a new neurologist, he told us that
Dilantin can cause osteoporosis. Well my brother had a bone density test last year and his spine/ hip
fracture rate is mildly increased.
As a result, we tried last month to get him off Dilantin and switch to Zonegram, but this was a bad failure.
Two weeks into coming off Dilantin, he started having one seizure after another, went to the hospital by
ambulance, it took him about 3 days to fully wake up and another week to fully recover. He is back on
Dialantin, Keppra and Lamictal and relativey seizure free. His neuro said we could try again to get him off
Dilantin and do medicne change with 5 days in the hospital, and we said no thank you.
The neurologist suggested next we see an endocrinologist to see if something live Boniva, Actonel or some
other type of drug might help. Has anyone else gone to an endrcrinologist with sort of the same problem and I
am wondering which drug or what they did they suggest.
My brother does take Calcium and Vitamin D daily.
Thanh you,
Lea
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