Yes it is very scary for us onlookers! Do you still have seizures?
Gina
-------Original Message-----
From: Millie Myers
Date: 11/8/2009 9:31:26 PM
To: epilepsy@yahoogroup
Subject: Re: [epilepsy] I'm new....
Gina,
Welcome to our group. I , myself have EP and have never seen a sz except on
TV-- but I am sure it is scary.
I was DX with EP 47 years ago. I then had 3 daughters, w2, 4, and 6 plus a
husband who is a now an ex.
Millie
----- Original Message -----
From: "*~Gina~*" <19gina66@gmail.
To: <epilepsy@yahoogroup
Sent: Sunday, November 08, 2009 3:28 AM
Subject: [epilepsy] I'm new....
>
>
> Hello I am new to the group.I am a mother to 6 boys.My 17 year old and 6
> year old have epilepsy.My 17 year old had grand mals (been seizure free
> for
> 8 years off meds) and my 6 year old has complex partial's which on
> occasion
> has turned into the grands.
>
> My 6 year old son was put into PICU at our local Children's hospital on
> Friday because he was having electrical status epilepticus during sleep.
> They, on purpose, over-dosed him with Diastat (30 ML) in hopes to stop the
> activity.He had to be closely monitored because of this obviously. The
> activity stopped thank goodness . He has been put on valium (5mg 3x day)
> for
> a month along with his Depakote(4 125 MG 2x day). They'll repeat the EEG
> in
> a couple of weeks. If the seizure activity isn't gone then they will send
> us
> to Michigan where they have a special brain scanning machine (can't
> remember
> the name of it)...then possible brain surgery.Super worried here!!!! He is
> doing quite well at the moment though. Has anyone else been through this
> type of treatment or had a similar problem?
>
> It breaks my heart to see my child seize. Every time he has a seizure I
> think he is going to die. I panic to the extreme. Tell me I am not alone
> in
> these feelings? I wish I could cope better but the mother in me comes out
> and takes over the calm.
>
> Thanks for allowing me to be a part of this group.I look forward to
> getting
> to know everyone.
>
> Gina
>
> [Non-text portions of this message have been removed]
>
>
>
> ------------
>
> Just a friendly reminder: Please remember to sign your post and remember
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> Yahoo! Groups Links
>
>
>
>
>
------------
Just a friendly reminder: Please remember to sign your post and remember to
clean up messages when you reply to them. This is especially important if
you are on digest. This not only helps out the list owner but, it makes
messages much easier to read when they arrive in our inboxes.
Yahoo! Groups Links
[Non-text portions of this message have been removed]
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