Seizure disorders do not always show up on EEg's or MRI's. You can also schedule a longer EEG. I have heard others say they have done EEG's as long as 7+ days. My husband just had an extended EEG of 6 hours, and the next step will be a 24 hour EEG. We have realized that you have to do your research (just a google search will do) before goign to the Dr., because they for whatever reason neuros dont seem to believe their patients until they have had many many seizures. This has been our expeirnce at least. We did our research a little this time and went in telling them what we expected and what we thought they symptoms meant. Sadly, we had a different, but better experience. You have to be a Dr. yourself now days! Sad!! Good Luck!
--- In epilepsy@yahoogroup
>
> Lisa,
>
> My seizures started at the same age. My mom told me that one day, while we
> were visiting my grandparents, I went down the basement stairs and hit the
> concrete floor. Some of the damage is still there, but the temporal lobe
> surgery I had the neurosurgeon removed most of the damage. The surgery
> helped a lot, but I still have seizures. Not near as many in a month's time
> as they were before the surgery. The doctor's told my mom I would outgrow
> the seizures, but I never did. When I became a teenager they got worse. Hers
> is in a different part of the brain than mine are,so maybe hers will be
> different. I am 40 now, and dealt with them most of my life. The neurologist
> told me there would always show the damage on the EEG's where the damage
> was.Take care.
>
> Tammy
>
> On Tue, Nov 17, 2009 at 7:01 PM, lisa wilson <lostapachellt@
>
> >
> >
> > I'm Lisa.. My daughter is Shushanna ( shanna thank you very much *roll eyes
> > tenagers*)
> >
> > She had a brain bruise when she was 6 months old and the dr said she would
> > ave seizures until hat bruise heal. Which took 9 yrs she was SZ ( seizure
> > in med terms) free until lately.
> > All her seizure showed frontal lobe sz which is where the brain bruise was.
> > Even though the bruise is gone the eeg showed the seizure tendancies came
> > from the frontal lobe.
> >
> > --- On Mon, 11/16/09, uniquepnk tds.net <Uniquepnk@.
> > wrote:
> >
> > From: uniquepnk tds.net <Uniquepnk@.
> > Subject: Re: [epilepsy] eegs
> > To: epilepsy@yahoogroup
> > Date: Monday, November 16, 2009, 7:28 PM
> >
> > Jenni,
> >
> > My seizures was caused from a head injury when I was a baby, so every EEG I
> > have had always shows the place which where the seizures comes from. It
> > seems like the schools could just take the word of the Neurologist that
> > your
> > son is having everything done that they can do to treat him. I know
> > sometimes people's EEG doesn't show them up, but there is only so much you
> > can do. Take care.
> >
> > Tammy
> >
> >
> > On Mon, Nov 16, 2009 at 12:15 PM, Jennifer <jennibabe31@
> > wrote:
> >
> > >
> > >
> > > I have a six yr old son with E. He has grand mal and partial sz. He has
> > > been having these since he was 22 mths old. We have never been able to
> > get
> > > him to sz while having an EEG, but he has been in dr offices and the
> > > hospital when having these, therefore the dx.
> > >
> > > I have a 9 yr old son that has staring spells followed by confusion and
> > > running away. He also will report things that happen during this time
> > that
> > > absolutely didn't happen. I had 2 different schools complain last yr
> > about
> > > this and did take him to Neuro. They did an EEG which was normal and
> > refused
> > > any follow up EEG when the 2nd school complained. He is at a new school
> > this
> > > yr and once again the school is complaining that they want him to go back
> > to
> > > Neuro.
> > >
> > > I have no problem taking him back, but wonder if all sz show up on an
> > > EEG.Will EEG's always show a sz if you have one while doing the EEG?
> > >
> > > Jenni
> > >
> > >
> > >
> >
> > [Non-text portions of this message have been removed]
> >
> > ------------
> >
> >
> > Just a friendly reminder: Please remember to sign your post and remember to
> > clean up messages when you reply to them. This is especially important if
> > you are on digest. This not only helps out the list owner but, it makes
> > messages much easier to read when they arrive in our inboxes.
> >
> > Yahoo! Groups Links
> >
> >
> > [Non-text portions of this message have been removed]
> >
> >
> >
>
>
> [Non-text portions of this message have been removed]
>
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