I just wanted to add my experience and some other peoples experience that our family knows from having veeg (video eeg's) done on their kids. They have seizures all the time go into the hospital off the medications and wont have any seizure activity the minute they are walking out to their car after being discharged they end up having a seizure and plenty after that. My daughter is 6 and half years old and we finally counted up the veeg and eegs that she has had was 32. Only one the last veeg for her new epitologist did they finally catch a seizure happening. Yet, three veeg before we got to go to the epitologist and we were seeing a nuerologist they would say they saw something but not sure what it was etc and then claimned it was behavorial on my daughters part. The epitologist found that my daughter has epilepsy due to her metabolism.
We have even had our epitologist tell us that he has seen it happen before and the minute that the epileptic leaves the hospital they end up having a seizure. He said it just happens.
Keep up the fight keep up the faith it will eventually happen.
Best of Luck!
Elizabeth
____________
From: Uggie <ugmcginnis@embarqma
To: epilepsy@yahoogroup
Sent: Tuesday, July 14, 2009 5:09:10 PM
Subject: Re: [epilepsy] Re: What kind of seizure is this
U know she can seizures numerous times at home and while out shopping, etc..
.
The minute they hook her up - dang things stop. GRRRRRRR
Uggie
-------Original Message----- --
From: Doris
Date: 7/14/2009 4:08:41 PM
To: epilepsy@yahoogroup s.com
Subject: [epilepsy] Re: What kind of seizure is this
Hi Uggie,
Repeated episodes like that need another interpetiton, Make
sure you feel confident when getting this. Good luck and do let
us know how all goes.
Take care.
Doris
--- In epilepsy@yahoogroup s.com, "Uggie" <ugmcginnis@ ...> wrote:
>
> My daughter was in the car with me yesterday. This is what she says
> happened. What kind of seizure does this sound like to u.
>
> She was in the car, sitting in seat, felt her head fly back (like in a GM)
> then her eyes rolled back in her head, came too and started to cry and was
> really shaky - entire time after her head flew back. This happened 4
> different times in the car (while it was parked) within a 2 hr span.
>
> Any ideas?? Her drs seem to think these are non-epi(s)
>
> Thanks in advance!
> Uggie
>
>
>
>
> Check out My Groups
> SupportingtheTrucke r
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>
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> And
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>
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