Monday, July 20, 2009

Re: [epilepsy] Re: surgery

 

Hi Doris,
I've lived in Baltimore Co. all my life and began to work in D.C. at F.D.A. in '91 mainly because my nuerologist always mentioned that a new medicine that he wanted to try was just approved by the F.D.A.. I've been commuting via bus to metro to MARC trains which connect the two cities. Baltimore has Johns Hopkins Hospital, I go there now. Before surgery I thought of having it perfomed at Cleveland Clinic or Massachusetts General Hosp.. It was perfomed at University on MD Hosp., maybe it should've been done at one of the other three. I've been to N.I.H. and other's but it seems that no one wants to try something that other's can't be successful at.
Tim B.           

--- On Mon, 7/20/09, Doris <dorisellen@nc.rr.com> wrote:

From: Doris <dorisellen@nc.rr.com>
Subject: [epilepsy] Re: surgery
To: epilepsy@yahoogroups.com
Date: Monday, July 20, 2009, 11:42 AM

 

Hi Tim,
Super interesting hearing others with similar experences in
different ways. I just wanted to mention that I surely understand
the feeling of difficulty with transportation and before getting
married, I moved to a city, New York, and found a place like that
super helpful. I do not know where you may live, but going to
a city area is really good in many ways. I found things to be
involved in and could reach, and I found terrific doctor locations
which were easily reachable. I used NYU. One of the neurologic
web sites today, announced a new plan coming up in Cleveland
which helps in many ways with memory. This study has been going
on for three years now, and it is coming more and more positive. By
next year, classes are going to be available there and hopefully
in time online will be a possibility. Remember we're all together,
and so many of us understand what others share. Wish there were
a place for us all to meet for coffee! Have nice day.
Doris :-)

--- In epilepsy@yahoogroup s.com, TIMOTHY BALDWIN <tbb1@...> wrote:
>
> Hi Doris,
> Your times seem allot like mine. I was seventeen in '74 when my seizures began and was diagnosed with epilepsy. I was driving for about a year, and continued to drive, crash and total a few of my cars. I had an unsuccessful left temporal lobotomy in '96, I totaled another car of mine and gave up driving in '98. I'm now sick of public transportation and my lack of ability to travel and see others. My seizures remain to be refractory/uncontro lled, my medicines and surgery have reduced my verbal-memory.             
> Tim B.
> --- On Sun, 7/19/09, Doris <dorisellen@ ...> wrote:
>
>
> From: Doris <dorisellen@ ...>
> Subject: [epilepsy] Re: surgery
> To: epilepsy@yahoogroup s.com
> Date: Sunday, July 19, 2009, 10:39 AM
>
>
>  
>
>
>
> Hi James,
> Your name caught me since I am a Mc too. I had left temporal about
> 12 years ago, after having epilepsy for about 35 years. Post the surgery, I have never had another seizure of any kind during the day, however I do get them a couple of times every month when asleep. It is so much better this way I think, since I was able to get my license after such a long time. My seizures started when I was 17 and had a dilly of auto accident. I wish you luck in persuing efforts to find out more about this as it is such a super possibility of possible way to control or eliminate seizures. Keep positive and please let us know how it goes or what you may decide. Take care.
> Sincerely, Doris :-)
>
> --- In epilepsy@yahoogroup s.com, james mcgrenera <jimmymac72976@ ...> wrote:
> >
> >
> > Excuse me,
> >
> > I have had epilepsy (grand mall) for about 15 years now and I keep hearing about surgery to stop epilepsy or seizure from occuring.  Can you tell me anything about this or maybe some information online I can read through to get a better understanding of this surgery?
> >
> > Sincerely,
> >
> > James M. McGrenera
> > --- On Thu, 7/16/09, sept161999@ .. <sept161999@ ...> wrote:
> >
> > From: sept161999@ .. <sept161999@ ...>
> > Subject: Re: [epilepsy] surgery
> > To: epilepsy@yahoogroup s.com
> > Date: Thursday, July 16, 2009, 2:50 PM
> >
> >
> >
> >
> >
> >
> >  
> >
> >
> >
> >
> >
> > i wish you the best Tristin. Brian
> >
> >
> >
> >
> >
> > In a message dated 7/16/2009 5:48:24 A.M. Pacific Daylight Time,
> >
> > tristinspike26@ yahoo.com writes:
> >
> >
> >
> > Congratulations Brian! My surgery was only 8 months ago. I've been
> >
> > seizure-free since! Hopefully I can go 10 years without a seizure too.
> >
> >
> >
> > Tristin :)
> >
> >
> >
> > --- On Wed, 7/15/09, _sept161999@ aol.sep_ (mailto:sept161999@ aol. com)
> >
> > <_sept161999@ aol.sep_ (mailto:sept161999@ aol. com) > wrote:
> >
> >
> >
> > From: _sept161999@ aol.sep_ (mailto:sept161999@ aol. com)
> >
> > <_sept161999@ aol.sep_ (mailto:sept161999@ aol. com) >
> >
> > Subject: Re: [epilepsy] surgery
> >
> > To: _epilepsy@yahoogrou pepile_ (mailto:epilepsy@ yahoogroup s.com)
> >
> > Date: Wednesday, July 15, 2009, 8:11 PM
> >
> >
> >
> > i use to have 50 seizures a day. come sept. i'll be seizure free 10 years
> >
> > thanks to brain surgery
> >
> > Brian
> >
> >
> >
> > In a message dated 7/15/2009 4:54:22 P.M. Pacific Daylight Time,
> >
> > flutterby218@ yahoo.com writes:
> >
> >
> >
> > A lady here in Albuquerque, NM had brain surgery for epilepsy. Please
> >
> > pray for her.
> >
> > I had surgery here in Feb. and have not had seizures since.
> >
> >
> >
> > [Non-text portions of this message have been removed]
> >
> >
> >
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