Hi Rachel>
Welcome to our group. I had my first sz when I was carrying my 2nd
daughter 47 years ago --the second one when I was carrying my 3rd
daughter 2 years later. I was 30 when I had another sz when my 3rd
daughter was 2. That took me 30 miles aways to the closest EEG machine
at that time. I had 3 daughters 2, 4, and 6 plus a husband (ex now).
I have been on Dilantin and Phenabarb for over 20 years. Yes, I drive.
my last sz was 2 years ago and before that it was 4 years. I just
retired from being a home health aid for 25 years.
It does takes a while for his body to get used to the meds --maybe a
couple weeks or a month. You may never know what is causing them --
but you may find out what triggers a sz. What kind of sz does he have?
Maybe he will need to change meds. That is up to the Dr.
I suggest you keep a diary of when your husband takes his meds, when
he has a sz, what he was doing just before, (eating, bright lights,etc)
how long the sz lasts, and how he feels afterward. Also how long it takes
him to get back to his usual self. This I think will give you a sense
of control. It may be a pattern for him and it will also help you
Dr.
I'm glad you found us.
Millie
> Hello,
>
> My name is Rachel and I am in desperate need of some help. My husband is
> 46 years old and had his first seizure on jan 31,2009. Apparently to
> have a seizure out of the blue at this age is not common? the thought
> was that even though he had 3 that day....that it would be an isolated
> event and that he would not have any more. The typical tests (eeg's,cat
> scans,sleep studies,and mri's) have all been performed and they have not
> revealed anything except a sleep apnea. He started wearing the mask to
> sleep in april and had another seizure in May- so much for sleep
> deprived being the reason. He is on medication Dilantin- which makes him
> feel like crap. I know that in the scheme of things his situation is
> not " that bad" he has only had 4 seizures in 6 months (3 of which were
> on the 1st day) but my question is.....if they do not know what is
> causing them....how do they know that they won't get worse? We live in
> Mass and the law here is that he cannot drive for 6 months after his
> last seizure.....
> know that even though the law says that it is 6 months from the last
> seizure.....
> be driving. I feel like this whole situation is so out of my
> control....overall his health is good.....but when I drop him off at
> work in the morning I find myself clinging to my cell phone- just in
> case something happens at work and they need to call me....I find myself
> waking up through the night whenever he moves to much.......I panic when
> he stays to long in the jacuzzi with the door shut......will any of this
> ever get easier? does this somehow become so routine for me that I will
> stop worrying? I am actually not a worry wart and do have some
> experience with seizures... My son had febrile seizures when he was a
> baby...but I felt like I had control over the situation...
> they could happen. I knew what to look for and what to do when his temp
> started to rise. as long as I could keep his temp under control he
> wouldn't have one. With my husband ...there is nothing I can do .... I
> have a great family and group of friends that are here for me if I need
> them, but none of them have ever had to deal with this either so they
> don't know what to do or say. I am looking forward to being able to
> learn from all of you and your experiences.
>
> thanks for listening
>
> Rachel
>
>
>
>
>
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