Rachel,
Welcome to the group. I have complex partial seizures. Mine was caused from
the result of a head injury when I was a baby.To not know why they started
would be hard to deal with, but I know there is many things that can cause
them. It is a shame after having all those tests done the doctors couldn't
give an exact cause for having a seizure out of the blue. Since I have had
seizure all of my life and never had control over them, I have never driven
a car. I know it must be hard on you both to be able to do that one day then
have it taken away from you. It doesn't bother that I probably never will be
able to drive, but I know if I could have I probably would be able to take
care of more things myself instead of depending on others.You will probably
always worry whether he is ok, no matter if he has another one or not. My
boyfriend is overprotective of everything I do. If I stay in the bathroom
too long he always checks on me to make sure everything is ok. I hope you
get some answers from this group. If you need anything,write anytime.Take
care.
Tammy
On Tue, Jul 21, 2009 at 8:19 AM, Rachel <Tesh1812@aol.
>
>
>
> Hello,
>
> My name is Rachel and I am in desperate need of some help. My husband is
> 46 years old and had his first seizure on jan 31,2009. Apparently to
> have a seizure out of the blue at this age is not common? the thought
> was that even though he had 3 that day....that it would be an isolated
> event and that he would not have any more. The typical tests (eeg's,cat
> scans,sleep studies,and mri's) have all been performed and they have not
> revealed anything except a sleep apnea. He started wearing the mask to
> sleep in april and had another seizure in May- so much for sleep
> deprived being the reason. He is on medication Dilantin- which makes him
> feel like crap. I know that in the scheme of things his situation is
> not " that bad" he has only had 4 seizures in 6 months (3 of which were
> on the 1st day) but my question is.....if they do not know what is
> causing them....how do they know that they won't get worse? We live in
> Mass and the law here is that he cannot drive for 6 months after his
> last seizure.....
> know that even though the law says that it is 6 months from the last
> seizure.....
> be driving. I feel like this whole situation is so out of my
> control....overall his health is good.....but when I drop him off at
> work in the morning I find myself clinging to my cell phone- just in
> case something happens at work and they need to call me....I find myself
> waking up through the night whenever he moves to much.......I panic when
> he stays to long in the jacuzzi with the door shut......will any of this
> ever get easier? does this somehow become so routine for me that I will
> stop worrying? I am actually not a worry wart and do have some
> experience with seizures... My son had febrile seizures when he was a
> baby...but I felt like I had control over the situation...
> they could happen. I knew what to look for and what to do when his temp
> started to rise. as long as I could keep his temp under control he
> wouldn't have one. With my husband ...there is nothing I can do .... I
> have a great family and group of friends that are here for me if I need
> them, but none of them have ever had to deal with this either so they
> don't know what to do or say. I am looking forward to being able to
> learn from all of you and your experiences.
>
> thanks for listening
>
> Rachel
>
>
>
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