Hi Rachel and welcome to the group. Try and find out what is triggering them. Stress is a big one, proper
nutrition, sleep, medications for other health concerns, low blood sugar. These are just a few. Keeping a
diary of what happened, what he was doing, and eating the day before could help with this. You can sometimes
see a pattern begin to form. On our website for epilepsy www.2betrhealth.
print out that will help you form a diary, and also another page with a bunch of other triggers that some
people have found. Note that everyone is different and what my trigger his seizures may be ok for me.
Write any time
Julie
Julie Hope
epilepsyhealth@
http://www.2betrhea
----- Original Message -----
From: "Rachel" <Tesh1812@aol.
To: <epilepsy@yahoogroup
Sent: Tuesday, July 21, 2009 6:19 AM
Subject: [epilepsy] newbie
Hello,
My name is Rachel and I am in desperate need of some help. My husband is
46 years old and had his first seizure on jan 31,2009. Apparently to
have a seizure out of the blue at this age is not common? the thought
was that even though he had 3 that day....that it would be an isolated
event and that he would not have any more. The typical tests (eeg's,cat
scans,sleep studies,and mri's) have all been performed and they have not
revealed anything except a sleep apnea. He started wearing the mask to
sleep in april and had another seizure in May- so much for sleep
deprived being the reason. He is on medication Dilantin- which makes him
feel like crap. I know that in the scheme of things his situation is
not " that bad" he has only had 4 seizures in 6 months (3 of which were
on the 1st day) but my question is.....if they do not know what is
causing them....how do they know that they won't get worse? We live in
Mass and the law here is that he cannot drive for 6 months after his
last seizure.....
know that even though the law says that it is 6 months from the last
seizure.....
be driving. I feel like this whole situation is so out of my
control....overall his health is good.....but when I drop him off at
work in the morning I find myself clinging to my cell phone- just in
case something happens at work and they need to call me....I find myself
waking up through the night whenever he moves to much.......I panic when
he stays to long in the jacuzzi with the door shut......will any of this
ever get easier? does this somehow become so routine for me that I will
stop worrying? I am actually not a worry wart and do have some
experience with seizures... My son had febrile seizures when he was a
baby...but I felt like I had control over the situation...
they could happen. I knew what to look for and what to do when his temp
started to rise. as long as I could keep his temp under control he
wouldn't have one. With my husband ...there is nothing I can do .... I
have a great family and group of friends that are here for me if I need
them, but none of them have ever had to deal with this either so they
don't know what to do or say. I am looking forward to being able to
learn from all of you and your experiences.
thanks for listening
Rachel
------------
Just a friendly reminder: Please remember to sign your post and remember to clean up messages when you reply
to them. This is especially important if you are on digest. This not only helps out the list owner but, it
makes messages much easier to read when they arrive in our inboxes.
Yahoo! Groups Links
Change settings via the Web (Yahoo! ID required)
Change settings via email: Switch delivery to Daily Digest | Switch format to Traditional
Visit Your Group | Yahoo! Groups Terms of Use | Unsubscribe
No comments:
Post a Comment