Rachel,
I am a 10 year brain tumor survivor, my show was 2 Grand Mal seizures. It took years for my to start having aurea's. I learned to throw myself on the ground and get on my side and let my seizures happen. I was on Tegretol for 10 years until it stopped working. Now I'm on Keppra and Lamictal. It was 3 years after my first seizure before I found a good neurologist (she was the 6th one). First one who had through levels (blood is drawn before 1st dose of morning meds) taken on my seizure meds. She has let me drive on surface streets again for the first time in 14 months. I still wouldn't be left alone in a hot tub. Everyone is different, I have had the opportunity to learn most of my triggers for my seizures. Being sleep deprived, stress, loud music, neon or strobe lights, vibrations from soaking for pedicures,etc.
doctor some of the precautions you should take. He is still an adult and we want to be treated as such. My children were 12 and 15 (single parent) when I was diagnosed; they are convinced I need constant care. I don't, if you have your health managed and understand how to live with it you can live a very normal life as long as you accept your limitations.
Lynette
____________
From: Rachel <Tesh1812@aol.
To: epilepsy@yahoogroup
Sent: Tuesday, July 21, 2009 5:19:48 AM
Subject: [epilepsy] newbie
Hello,
My name is Rachel and I am in desperate need of some help. My husband is
46 years old and had his first seizure on jan 31,2009. Apparently to
have a seizure out of the blue at this age is not common? the thought
was that even though he had 3 that day....that it would be an isolated
event and that he would not have any more. The typical tests (eeg's,cat
scans,sleep studies,and mri's) have all been performed and they have not
revealed anything except a sleep apnea. He started wearing the mask to
sleep in april and had another seizure in May- so much for sleep
deprived being the reason. He is on medication Dilantin- which makes him
feel like crap. I know that in the scheme of things his situation is
not " that bad" he has only had 4 seizures in 6 months (3 of which were
on the 1st day) but my question is.....if they do not know what is
causing them....how do they know that they won't get worse? We live in
Mass and the law here is that he cannot drive for 6 months after his
last seizure..... another question I have is- Is anyone able to drive? I
know that even though the law says that it is 6 months from the last
seizure..... his neuro will have the last say on whether or not he should
be driving. I feel like this whole situation is so out of my
control....overall his health is good.....but when I drop him off at
work in the morning I find myself clinging to my cell phone- just in
case something happens at work and they need to call me....I find myself
waking up through the night whenever he moves to much.......I panic when
he stays to long in the jacuzzi with the door shut......will any of this
ever get easier? does this somehow become so routine for me that I will
stop worrying? I am actually not a worry wart and do have some
experience with seizures... My son had febrile seizures when he was a
baby...but I felt like I had control over the situation... .i knew when
they could happen. I knew what to look for and what to do when his temp
started to rise. as long as I could keep his temp under control he
wouldn't have one. With my husband ...there is nothing I can do .... I
have a great family and group of friends that are here for me if I need
them, but none of them have ever had to deal with this either so they
don't know what to do or say. I am looking forward to being able to
learn from all of you and your experiences.
thanks for listening
Rachel
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