Saturday, July 25, 2009

Re: [epilepsy] Need help understanding this...what do you think

 

Hey, Rose. :)
 
I had simple partial sz clusters for 25 years before I knew what they were. They leave me exhausted, confused, feverish (hypothalamus involvement), weak, and generally unable to do much of anything until after they stop. They generally occur at season change, and I just started Keppra 2 weeks ago to see if it works on them. We'll know in Oct, when I'm "scheduled" for the next bout...
 
I would ask him if he feels any sensations prior to the 12 hours of confusion and other cognitive effects. Mine are nothing to look at and are primarily sensory in manifestation.
 
Good luck!
 
LIZ in RI (42 yo mom, lifelong hydrocephalus, epilepsy; recently dx'ed autoimmune issues linked to systemic yeast overgrowth); mom to 15 yo Drew (high-functioning autism, 13 mm Chiari Malformation, doing well) :)

--- On Sat, 7/25/09, rosecraigkatiezack <rosecraigkatiezack@yahoo.com> wrote:

From: rosecraigkatiezack <rosecraigkatiezack@yahoo.com>
Subject: [epilepsy] Need help understanding this...what do you think
To: epilepsy@yahoogroups.com
Date: Saturday, July 25, 2009, 6:31 PM

 

My son Zack is 14 years old. This last year he has had 2 episodes where for 12 hours he gets diorientated and totally confused. He can not do simple math tell you his age, what year it is, or remember event that happened an hour before. This does not appear to effect his large motor skills. When he goes to bed the next morning he is fine again.
We saw an nerologist who had us do an EEG....and although she is very surprised he has Epilepsy and is concerned he is having more minor
seisures at other times. We are seeing her to discuss treatment next Firday. Has anyone else ever had seizures present this way or confusion lasting afterwards this long. I am feeling a bit overwelmed and would appreciate any thoughts or advice. Thanks! Rose

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