Hey, Millie. :)
My SPs are nocturnal. They wake me up in the middle of the night. On rare occasion, they'll generalize to GM, but I'm in bed, anyway. If the SPs continue after I would normally get up, I just don't go anywhere. They occur about 5-6 times a year. Driving is not a problem. :) My last GM was 3 years ago, at 4:30 in the morning.
LIZARD :)
--- On Tue, 7/14/09, mylmy@bnin.net <mylmy@bnin.net> wrote:
From: mylmy@bnin.net <mylmy@bnin.net>
Subject: Re: [epilepsy] Brand-new with Keppra questions...
To: epilepsy@yahoogroup
Date: Tuesday, July 14, 2009, 5:54 PM
Liz,
If you have a sz-- should you be driving?
In what state do you live? How long has
it been since you have had a sz?
Millie
> Hey, Stacie. :)
>
> Thanks for getting back to me so quickly! I am trying not to be scared to
> death of switching, but having had some AWFUL experiences (Tegretol being
> the worst of all), I am skittish about it. I am fortunate to have a decent
> threshold, in spite of my epi; I was off phenobarb for several years at a
> time as a kid without any GMs, so I don't think I'll need a heavy dose,
> and I'm hoping that getting accustomed to it will be quick and painless. I
> have a 15 yo autistic son and cannot afford to be whipped on med or off
> the road for long.
>
> 'Preciate it!
>
> LIZARD :)
>
> --- On Tue, 7/14/09, tim holt <tim_stacie77316@ yahoo.com> wrote:
>
>
> From: tim holt <tim_stacie77316@ yahoo.com>
> Subject: Re: [epilepsy] Brand-new with Keppra questions...
> To: epilepsy@yahoogroup s.com
> Date: Tuesday, July 14, 2009, 11:18 AM
>
>
>
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>
>
> Liz,
> I have an 8 y/o daughter that has suffured from siezures partical and
> absent since birth and over the past year and a half I have gotten her on
> meds because she never had a seizure with her EEGAs and they say if you do
> not do it on the recording then there is no record. But we got lucky and
> it happened. So we got on Keppra and the dose has had to come up she gets
> 750 in the am and then 1000 at night. But she take mag at night do to IBS
> and sleeps with a CPAP do to sleep apnea. As long as the weather and
> stress factors are stable then she is good. But we go day by day.
>
> Stacie in Texas
>
> --- On Tue, 7/14/09, Liz Welker <lizard110366@ yahoo.com> wrote:
>
> From: Liz Welker <lizard110366@ yahoo.com>
> Subject: [epilepsy] Brand-new with Keppra questions...
> To: epilepsy@yahoogroup s.com
> Date: Tuesday, July 14, 2009, 10:03 AM
>
> Hey, everyone. :)
>
> I am a 42 yo mom who has had epi since infancy. For about 1/2-2/3 of my
> life, I have been on phenobarb, which has always controlled my GMs 100%,
> thank God (when I was on it), but I also have simple partials (which
> rarely generalize to GM; haven't in 3 years! :) ). My SPs will cluster
> from triggers like weather fronts, hormonal yin-yang, or disturbed sleep.
> Phenobarb, unfortunately, has never controlled them. I started taking
> magnesium a year and a half ago, and it helps, but it can take the cluster
> down to about 12 szs from what were as many as 30 or 40 over a period of a
> day to a day and a half. My post-ictal blahs are generally not as bad as
> they were prior to starting daily mag, but I just had a bout with a
> cluster on Saturday, and I have only slept about 3 hours a night since! :(
>
> I know the sleep disruption is a classic manifestation (for me, at least)
> of these things, but it has never been this long before. I also get a
> fever and pasty/metallic taste in my mouth with decreased appetite and
> occasional nausea/vomiting after they end or are ending. The fever can
> last a couple of days, and the crappy taste in my mouth generally will
> last 2-3 days. Sleep disruption would usually be only a night or so, but
> this has been (pardon the French) HOLY HELL. I have hardly slept since!!!
>
> I called my doc (a neursurgeon; I have hydrocephalus) , and for the third
> time, he suggested I consider Keppra. I have been reading up on it, and I
> know all drugs can be very good or very bad as well as in-between. (I had
> a nightmare experience with Tegretol!)
>
> So...I come to you and ask: What are your experiences with it? Good? Bad?
> Ugly? Awesome?? I want it all. :)
>
> Thanks muchly!
>
> LIZ in RI, where we have SUN--at last!!!!!!!! !
>
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