Hey, Stacie. :)
Thanks for getting back to me so quickly! I am trying not to be scared to death of switching, but having had some AWFUL experiences (Tegretol being the worst of all), I am skittish about it. I am fortunate to have a decent threshold, in spite of my epi; I was off phenobarb for several years at a time as a kid without any GMs, so I don't think I'll need a heavy dose, and I'm hoping that getting accustomed to it will be quick and painless. I have a 15 yo autistic son and cannot afford to be whipped on med or off the road for long.
'Preciate it!
LIZARD :)
--- On Tue, 7/14/09, tim holt <tim_stacie77316@
From: tim holt <tim_stacie77316@
Subject: Re: [epilepsy] Brand-new with Keppra questions...
To: epilepsy@yahoogroup
Date: Tuesday, July 14, 2009, 11:18 AM
Liz,
I have an 8 y/o daughter that has suffured from siezures partical and absent since birth and over the past year and a half I have gotten her on meds because she never had a seizure with her EEGAs and they say if you do not do it on the recording then there is no record. But we got lucky and it happened. So we got on Keppra and the dose has had to come up she gets 750 in the am and then 1000 at night. But she take mag at night do to IBS and sleeps with a CPAP do to sleep apnea. As long as the weather and stress factors are stable then she is good. But we go day by day.
Stacie in Texas
--- On Tue, 7/14/09, Liz Welker <lizard110366@ yahoo.com> wrote:
From: Liz Welker <lizard110366@ yahoo.com>
Subject: [epilepsy] Brand-new with Keppra questions...
To: epilepsy@yahoogroup s.com
Date: Tuesday, July 14, 2009, 10:03 AM
Hey, everyone. :)
I am a 42 yo mom who has had epi since infancy. For about 1/2-2/3 of my life, I have been on phenobarb, which has always controlled my GMs 100%, thank God (when I was on it), but I also have simple partials (which rarely generalize to GM; haven't in 3 years! :) ). My SPs will cluster from triggers like weather fronts, hormonal yin-yang, or disturbed sleep. Phenobarb, unfortunately, has never controlled them. I started taking magnesium a year and a half ago, and it helps, but it can take the cluster down to about 12 szs from what were as many as 30 or 40 over a period of a day to a day and a half. My post-ictal blahs are generally not as bad as they were prior to starting daily mag, but I just had a bout with a cluster on Saturday, and I have only slept about 3 hours a night since! :(
I know the sleep disruption is a classic manifestation (for me, at least) of these things, but it has never been this long before. I also get a fever and pasty/metallic taste in my mouth with decreased appetite and occasional nausea/vomiting after they end or are ending. The fever can last a couple of days, and the crappy taste in my mouth generally will last 2-3 days. Sleep disruption would usually be only a night or so, but this has been (pardon the French) HOLY HELL. I have hardly slept since!!!
I called my doc (a neursurgeon; I have hydrocephalus) , and for the third time, he suggested I consider Keppra. I have been reading up on it, and I know all drugs can be very good or very bad as well as in-between. (I had a nightmare experience with Tegretol!)
So...I come to you and ask: What are your experiences with it? Good? Bad? Ugly? Awesome?? I want it all. :)
Thanks muchly!
LIZ in RI, where we have SUN--at last!!!!!!!! !
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