Wednesday, July 22, 2009

[epilepsy] Re: surgery

 

Hello- I am a 58yr young male- My seizures started when I was 13 as a result of a mosquito bite. I was left with encephalitis- today we call it west nile disease. I have mostly petit mal seizures- I have had grand mal- I have in 45 years probably had them all at one time or another. I probably tried every drug out there to control my seizures- This wasn't working. When I was 49 I had surgery. I had a right temporal lamectomy. They opened my skull once to map my brain- find out what controlled what- vision hearing and so on. They also looked for the area which triggered seizures and was damaged when my brain swelled to the skull walls and I went into a long coma. They then did the surgery and hopefully removed the damaged area which caused seizures. They opened my head up again to correct the staph infection they left. Needless to say they were not as frequent. I went for several years without and (so I thought- I am not aware sometimes I have had one.0 I went ahead and got my drivers license- I was a FOOL- my seizures and less frequent but I still have them- recently I totalled my honda Accord - please do NOT get a license- they lessen however mine are still there. GOOD LUCK...
--- In epilepsy@yahoogroups.com, "Doris" <dorisellen@...> wrote:
>
> Hi James,
> Your name caught me since I am a Mc too. I had left temporal about
> 12 years ago, after having epilepsy for about 35 years. Post the surgery, I have never had another seizure of any kind during the day, however I do get them a couple of times every month when asleep. It is so much better this way I think, since I was able to get my license after such a long time. My seizures started when I was 17 and had a dilly of auto accident. I wish you luck in persuing efforts to find out more about this as it is such a super possibility of possible way to control or eliminate seizures. Keep positive and please let us know how it goes or what you may decide. Take care.
> Sincerely, Doris :-)
>
> --- In epilepsy@yahoogroups.com, james mcgrenera <jimmymac72976@> wrote:
> >
> >
> > Excuse me,
> >
> > I have had epilepsy (grand mall) for about 15 years now and I keep hearing about surgery to stop epilepsy or seizure from occuring.  Can you tell me anything about this or maybe some information online I can read through to get a better understanding of this surgery?
> >
> > Sincerely,
> >
> > James M. McGrenera
> > --- On Thu, 7/16/09, sept161999@ <sept161999@> wrote:
> >
> > From: sept161999@ <sept161999@>
> > Subject: Re: [epilepsy] surgery
> > To: epilepsy@yahoogroups.com
> > Date: Thursday, July 16, 2009, 2:50 PM
> >
> >
> >
> >
> >
> >
> >  
> >
> >
> >
> >
> >
> > i wish you the best Tristin. Brian
> >
> >
> >
> >
> >
> > In a message dated 7/16/2009 5:48:24 A.M. Pacific Daylight Time,
> >
> > tristinspike26@ yahoo.com writes:
> >
> >
> >
> > Congratulations Brian! My surgery was only 8 months ago. I've been
> >
> > seizure-free since! Hopefully I can go 10 years without a seizure too.
> >
> >
> >
> > Tristin :)
> >
> >
> >
> > --- On Wed, 7/15/09, _sept161999@ aol.sep_ (mailto:sept161999@aol. com)
> >
> > <_sept161999@ aol.sep_ (mailto:sept161999@aol. com) > wrote:
> >
> >
> >
> > From: _sept161999@ aol.sep_ (mailto:sept161999@aol. com)
> >
> > <_sept161999@ aol.sep_ (mailto:sept161999@aol. com) >
> >
> > Subject: Re: [epilepsy] surgery
> >
> > To: _epilepsy@yahoogrou pepile_ (mailto:epilepsy@yahoogroup s.com)
> >
> > Date: Wednesday, July 15, 2009, 8:11 PM
> >
> >
> >
> > i use to have 50 seizures a day. come sept. i'll be seizure free 10 years
> >
> > thanks to brain surgery
> >
> > Brian
> >
> >
> >
> > In a message dated 7/15/2009 4:54:22 P.M. Pacific Daylight Time,
> >
> > flutterby218@ yahoo.com writes:
> >
> >
> >
> > A lady here in Albuquerque, NM had brain surgery for epilepsy. Please
> >
> > pray for her.
> >
> > I had surgery here in Feb. and have not had seizures since.
> >
> >
> >
> > [Non-text portions of this message have been removed]
> >
> >
> >
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