--- In epilepsy@yahoogroup
>
>
> Hello,
>
> My name is Rachel and I am in desperate need of some help. My husband is
> 46 years old and had his first seizure on jan 31,2009. Apparently to
> have a seizure out of the blue at this age is not common? the thought
> was that even though he had 3 that day....that it would be an isolated
> event and that he would not have any more. The typical tests (eeg's,cat
> scans,sleep studies,and mri's) have all been performed and they have not
> revealed anything except a sleep apnea. He started wearing the mask to
> sleep in april and had another seizure in May- so much for sleep
> deprived being the reason. He is on medication Dilantin- which makes him
> feel like crap. I know that in the scheme of things his situation is
> not " that bad" he has only had 4 seizures in 6 months (3 of which were
> on the 1st day) but my question is.....if they do not know what is
> causing them....how do they know that they won't get worse? We live in
> Mass and the law here is that he cannot drive for 6 months after his
> last seizure.....
> know that even though the law says that it is 6 months from the last
> seizure.....
> be driving. I feel like this whole situation is so out of my
> control....overall his health is good.....but when I drop him off at
> work in the morning I find myself clinging to my cell phone- just in
> case something happens at work and they need to call me....I find myself
> waking up through the night whenever he moves to much.......I panic when
> he stays to long in the jacuzzi with the door shut......will any of this
> ever get easier? does this somehow become so routine for me that I will
> stop worrying? I am actually not a worry wart and do have some
> experience with seizures... My son had febrile seizures when he was a
> baby...but I felt like I had control over the situation...
> they could happen. I knew what to look for and what to do when his temp
> started to rise. as long as I could keep his temp under control he
> wouldn't have one. With my husband ...there is nothing I can do .... I
> have a great family and group of friends that are here for me if I need
> them, but none of them have ever had to deal with this either so they
> don't know what to do or say. I am looking forward to being able to
> learn from all of you and your experiences.
>
> thanks for listening
>
> Rachel
>try to be strong for him, he knows you are watching and nervous. this makes the patient nervous. i know this because my 27 yr old daughter has epilepsy, and I am on watch always, till it drives me crazy. she has been like this for 9 yrs, has 3 children and a wonderful husband, but------ i am her mom. but we have to have faith in God that he will take care of them....
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