--- In epilepsy@yahoogroup
>
>
> Hello,
>
> My name is Rachel and I am in desperate need of some help. My husband is
> 46 years old and had his first seizure on jan 31,2009. Apparently to
> have a seizure out of the blue at this age is not common? the thought
> was that even though he had 3 that day....that it would be an isolated
> event and that he would not have any more. The typical tests (eeg's,cat
> scans,sleep studies,and mri's) have all been performed and they have not
> revealed anything except a sleep apnea. He started wearing the mask to
> sleep in april and had another seizure in May- so much for sleep
> deprived being the reason. He is on medication Dilantin- which makes him
> feel like crap. I know that in the scheme of things his situation is
> not " that bad" he has only had 4 seizures in 6 months (3 of which were
> on the 1st day) but my question is.....if they do not know what is
> causing them....how do they know that they won't get worse? We live in
> Mass and the law here is that he cannot drive for 6 months after his
> last seizure.....
> know that even though the law says that it is 6 months from the last
> seizure.....
> be driving. I feel like this whole situation is so out of my
> control....overall his health is good.....but when I drop him off at
> work in the morning I find myself clinging to my cell phone- just in
> case something happens at work and they need to call me....I find myself
> waking up through the night whenever he moves to much.......I panic when
> he stays to long in the jacuzzi with the door shut......will any of this
> ever get easier? does this somehow become so routine for me that I will
> stop worrying? I am actually not a worry wart and do have some
> experience with seizures... My son had febrile seizures when he was a
> baby...but I felt like I had control over the situation...
> they could happen. I knew what to look for and what to do when his temp
> started to rise. as long as I could keep his temp under control he
> wouldn't have one. With my husband ...there is nothing I can do .... I
> have a great family and group of friends that are here for me if I need
> them, but none of them have ever had to deal with this either so they
> don't know what to do or say. I am looking forward to being able to
> learn from all of you and your experiences.
>
> thanks for listening
>
> Rachel
>
Hi Rachel,there are a few things you can do but most of all be sure your husband not only knows but understand that you care,from the practical side be safty aware,seizures aall though frighting to some people should be seen as another illness,im sure his nuro will keep you in the loop as well as your husband,seizures effect your husband in a phyisical way but it effects you also as you are learning how you deal with them.
So as a newbie here i can recomend you share as you now all ready have started chatting to others as they say a problum shared ect,just you both take care@stay lucky.
stuart(uk)
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