You make it sound so easy. I have a friend who had stem cells to heal him
from cancer. But before that he had so much chemo that he almost died.
He is OK today.
How do they give stem cells? It has to be put into your blood-- right?
No way do I want to got to Germany, and when I come back I have a
seizure-- then where is your doctor to take care of you?
I have been on Dilantin and Phenabarb for over 20 years. The pharmacy
doesn't tell the dr. what to give you. The Dr. decides what to give you--
if that doesn't work-- he will try another . I want my Dr. here where
I can call him. My last sz was 2 years ago and before that it was 4 years.
It is a good thing that not everybody likes the same thing. If you have
been there == how about telling us what all is involved. How long did it
take? Did you have chemo to get rid of the good things in your blood
before they could give you the stem cells?
Give us your story.
You also didn't give us something to click for info.
Millie
> I am sorry if you don't like my statement about grugs but please do your
> reaserch and you will see. It does not help, just keep a little control
> over the problem with more serious side effects. I will tell you one
> thing. Money may look like out of reach, but is not. Think about it. How
> much it cost you to take care of the sickness , no progress, just meraly
> contro, because the seizures are coming back just not that often. I am
> amaized how little people know and that's why it is easy for pharmacy to
> stir minds their direction: they are just in for money. You paying them
> for no help at all:day after day.It is the way all the epileptic people
> should live? it is help out there and I am trying to tell you it should be
> legal in USA , where they don't know what preventive medicine is. I have
> to reverse that: they don't want to practice preventive medicine...it does
> not pay as much. Open your eyes and learn what is going on . People are
> manipulated byond
> believe. Doctors are prescribing what the pharma order them to write, it
> is money connection mode. I will however tell you how much it could cost
> you to save your life:-trip about 1400.00 round trip-visit to the
> clinic depend ,anywhere from 5000.00 to up depend how you talk, you
> can finance-ask around for help,family, friends, church....it could
> happend-come back and be happy ever after AMENI do believe GOD and people
> too. Reach out and you could be surprise.Yours Believer in better
> health-
>
> --- On Sun, 6/21/09, Elizabeth Last NameSilva <elizabethkaron@
> wrote:
>
> From: Elizabeth Last NameSilva <elizabethkaron@
> Subject: Re: Re: [epilepsy] Some questions
> To: epilepsy@yahoogroup
> Cc: elizabethkaron@
> Date: Sunday, June 21, 2009, 10:00 PM
>
>
>
>
>
>
>
>
>
>
>
>
>
>
>
>
>
>
>
>
>
>
>
>
> Im sorry but I wanted to state that some natural ways dont stop
> some epileptics seizures. We have tried lots of differant natural
> ways to get my daughters seizures under control and it did not help
> and some made thigns worse. Yes we have been through lots of drugs
> but she is on a combination that is working for her for the moment.
> Meds dont neccesarly kill someone they are there for a reason. But,
> I do believe that seizures of any kind CAN hurt you very badly.
> There is pros and cons with everything even with everyday living.
>
> Why do you post that its slow killing by taking the drugs that are out
> there to help and that for the ones that are taking the medications are
> killing themselves?
>
> This site is for support and help not to put the ones that have the
> epilepsy condition down for doing or taking what they take?
>
> Not everyone can afford to go to Europe or Germany for treatment.
>
>
>
> ____________ _________ _________ __
>
> From: Malgorzata Wolak <malgorzataqueen@ yahoo.com>
>
> To: epilepsy@yahoogroup s.com
>
> Sent: Sunday, June 21, 2009 4:49:35 PM
>
> Subject: Fw: Re: [epilepsy] Some questions
>
>
>
> --- On Sun, 6/21/09, Malgorzata Wolak <malgorzataqueen@ yahoo.com> wrote:
>
>
>
> From: Malgorzata Wolak <malgorzataqueen@ yahoo.com>
>
> Subject: Re: [epilepsy] Some questions
>
> To: epilepsy@yahoogroup s.com
>
> Date: Sunday, June 21, 2009, 9:46 PM
>
>
>
> Hello, how about reaching to more successfull way......natural therapy. No
> side effects, full recovery and ask yourself one question: is your life
> wort it? You have to answer that . I will tell you where to go. EUROPE in
> germany is a clinic which treat seizures with stem cells. All cases are a
> full recovery. Check that out by yourself and stop killing yourself with
> all those drugs they give you here. It is not help......I call that slow
> killing.
>
>
>
> --- On Sun, 6/21/09, Tristin Seagraves <tristinspike26@ yahoo.com> wrote:
>
>
>
> From: Tristin Seagraves <tristinspike26@ yahoo.com>
>
>
>
> Subject: Re: [epilepsy] Some questions
>
>
>
> To: epilepsy@yahoogroup s.com
>
>
>
> Date: Sunday, June 21, 2009, 9:37 PM
>
>
>
> The fatigue could very well be because of the change in meds. Whenever I
> switch AEDs, I'm always irritable and fatigued. I don't really have an
> answer for how you can stop the fatigue or what you should do for it.
> It's just something I've learned to accept, along with epilepsy in
> general... I would speak to a neurologist about it and let him/her know
> exactly how bad the fatigue, irritability, and/or depression is. But for
> me, it's just another characteristic of epilepsy.
>
>
>
>
>
>
>
> Tristin Seagraves :)
>
>
>
> --- On Sat, 6/20/09, Uggie <ugmcginnis@ embarqma il.com> wrote:
>
>
>
> From: Uggie <ugmcginnis@ embarqma il.com>
>
>
>
> Subject: Re: [epilepsy] Some questions
>
>
>
> To: epilepsy@yahoogroup s.com
>
>
>
> Date: Saturday, June 20, 2009, 9:00 PM
>
>
>
> What to do in someone that this goes on daily with?
>
>
>
> Is on Keppra (tapering off), Topomax (will increase once off Keppra),
>
>
>
> Prozac and Abilify. Maxalt as needed for migraines.
>
>
>
> -------Original Message----- --
>
>
>
> From: Tristin Seagraves
>
>
>
> Date: 6/20/2009 11:01:31 AM
>
>
>
> To: epilepsy@yahoogroup s.com
>
>
>
> Subject: Re: [epilepsy] Some questions
>
>
>
> It's common for people with epilepsy to have periods of fatigue and/or
> mild
>
>
>
> depression. Take caution though. This fatigue may be your body telling you
>
>
>
> that a seizure could happen soon. Try taking a nap.
>
>
>
> Tristin :)
>
>
>
> --- On Sat, 6/20/09, Adrien <adriencollins22160 @ googlemail. com> wrote:
>
>
>
> From: Adrien <adriencollins22160 @ googlemail. com>
>
>
>
> Subject: [epilepsy] Some questions
>
>
>
> To: epilepsy@yahoogroup s.com
>
>
>
> Date: Saturday, June 20, 2009, 7:45 AM
>
>
>
> Hi
>
>
>
> I am curious about my epilepsy. At the moment I am feeling
>
>
>
> quite flat, no energy, tired, not irritable but I just feel
>
>
>
> not quite myself. Is this common with epilepsy? I don't
>
>
>
> think I've had a fit but I just can't concentrate and when I
>
>
>
> am typing I am making lots of mistakes. I'm not quite sure
>
>
>
> what's going on. It could be because I've been out in the
>
>
>
> sun quite a bit, don't know.
>
>
>
> Regards
>
>
>
> Adrien
>
>
>
> You can get me off list at:
>
>
>
> adriencollins22160@ googlemail. com
>
>
>
> or
>
>
>
> adriencollins22160@ hotmail.fr
>
>
>
> or
>
>
>
> adrien.collins@ orange.fr
>
>
>
> Speakon is a free fully self-voicing accessible multimedia
>
>
>
> program for
>
>
>
> the visually impaired, find out more by downloading the
>
>
>
> software from:
>
>
>
> http://www.a- technic.net/ speakon.htm
>
>
>
> You can join the speakon user group by sending a blank
>
>
>
> e-mail to:
>
>
>
> speakon-subscribe@ yahoogroups. com
>
>
>
> -----Original Message-----
>
>
>
> From: epilepsy@yahoogroup s.com
>
>
>
> [mailto:epilepsy@ yahoogroup s.com] On Behalf Of Amanda Wiser
>
>
>
> Sent: 18 June 2009 20:58
>
>
>
> To: epilepsy@yahoogroup s.com
>
>
>
> Subject: [epilepsy] Worried
>
>
>
> For about 3 days my daughter (2), whenever she wakes up, she
>
>
>
> starts shaking. She has acted like that before after a
>
>
>
> seizure. Is there any type of epilepsy machine, that she can
>
>
>
> wear while asleep? I'm just so worried about her, and I
>
>
>
> don't think the Tegretol is working anymore.
>
>
>
> Amanda
>
>
>
> [Non-text portions of this message have been removed]
>
>
>
> ------------ --------- --------- ------
>
>
>
> Just a friendly reminder: Please remember to sign your post and remember
> to
>
>
>
> clean up messages when you reply to them. This is especially important if
>
>
>
> you are on digest. This not only helps out the list owner but, it makes
>
>
>
> messages much easier to read when they arrive in our inboxes.
>
>
>
> Yahoo! Groups Links
>
>
>
> ____________ _________ _________ _________ _________ _________ _
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>
>
> No virus found in this incoming message.
>
>
>
> Checked by AVG - www.avg.com
>
>
>
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>
>
>
> 06:15:00
>
>
>
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