I agree. My daughter has quit breathing during/ after a seizure and if it wasn't for the meds she'd be gone. We have been through so much with her I understand drugs have side effects but thats when your doctor and yourself sort through what is best. My daughter is on a good combination and natural and other ones have messed her up more then anything and we sure aren't going to Europe or Germany to get treatment there when we can't afford that. And even if stem cells help the patient from them need to be seen afterwards regualerly incase. And there is alwasy a chance that a seizure can occur.
If you have epilepsy its the fact that you haev it and you don't let it ruin your life.
____________
From: Tristin Seagraves <tristinspike26@
To: epilepsy@yahoogroup
Sent: Sunday, June 21, 2009 5:07:35 PM
Subject: Re: Re: [epilepsy] Some questions
I hear you, Elizabeth! :) I totally agree with you. For many of us with epilepsy, if we just stopped taking our meds, we would definitely be having more frequent seizures and there would be an increased risk of SUDEP (Sudden Unexplained Death in Epilepsy) or Status Epilepticus. I think I'll take my chances with my prescribed drugs.
Tristin Seagraves
--- On Sun, 6/21/09, Elizabeth Last NameSilva <elizabethkaron@ yahoo.com> wrote:
From: Elizabeth Last NameSilva <elizabethkaron@ yahoo.com>
Subject: Re: Re: [epilepsy] Some questions
To: epilepsy@yahoogroup s.com
Cc: elizabethkaron@ yahoo.com
Date: Sunday, June 21, 2009, 6:00 PM
Im sorry but I wanted to state that some natural ways dont stop some epileptics seizures. We have tried lots of differant natural ways to get my daughters seizures under control and it did not help and some made thigns worse. Yes we have been through lots of drugs but she is on a combination that is working for her for the moment. Meds dont neccesarly kill someone they are there for a reason. But, I do believe that seizures of any kind CAN hurt you very badly. There is pros and cons with everything even with everyday living.
Why do you post that its slow killing by taking the drugs that are out there to help and that for the ones that are taking the medications are killing themselves?
This site is for support and help not to put the ones that have the epilepsy condition down for doing or taking what they take?
Not everyone can afford to go to Europe or Germany for treatment.
____________ _________ _________ __
From: Malgorzata Wolak <malgorzataqueen@ yahoo.com>
To: epilepsy@yahoogroup s.com
Sent: Sunday, June 21, 2009 4:49:35 PM
Subject: Fw: Re: [epilepsy] Some questions
--- On Sun, 6/21/09, Malgorzata Wolak <malgorzataqueen@ yahoo.com> wrote:
From: Malgorzata Wolak <malgorzataqueen@ yahoo.com>
Subject: Re: [epilepsy] Some questions
To: epilepsy@yahoogroup s.com
Date: Sunday, June 21, 2009, 9:46 PM
Hello, how about reaching to more successfull way......natural therapy. No side effects, full recovery and ask yourself one question: is your life wort it? You have to answer that . I will tell you where to go. EUROPE in germany is a clinic which treat seizures with stem cells. All cases are a full recovery. Check that out by yourself and stop killing yourself with all those drugs they give you here. It is not help......I call that slow killing.
--- On Sun, 6/21/09, Tristin Seagraves <tristinspike26@ yahoo.com> wrote:
From: Tristin Seagraves <tristinspike26@ yahoo.com>
Subject: Re: [epilepsy] Some questions
To: epilepsy@yahoogroup s.com
Date: Sunday, June 21, 2009, 9:37 PM
The fatigue could very well be because of the change in meds. Whenever I switch AEDs, I'm always irritable and fatigued. I don't really have an answer for how you can stop the fatigue or what you should do for it. It's just something I've learned to accept, along with epilepsy in general.. I would speak to a neurologist about it and let him/her know exactly how bad the fatigue, irritability, and/or depression is. But for me, it's just another characteristic of epilepsy.
Tristin Seagraves :)
--- On Sat, 6/20/09, Uggie <ugmcginnis@ embarqma il.com> wrote:
From: Uggie <ugmcginnis@ embarqma il.com>
Subject: Re: [epilepsy] Some questions
To: epilepsy@yahoogroup s.com
Date: Saturday, June 20, 2009, 9:00 PM
What to do in someone that this goes on daily with?
Is on Keppra (tapering off), Topomax (will increase once off Keppra),
Prozac and Abilify. Maxalt as needed for migraines.
-------Original Message----- --
From: Tristin Seagraves
Date: 6/20/2009 11:01:31 AM
To: epilepsy@yahoogroup s.com
Subject: Re: [epilepsy] Some questions
It's common for people with epilepsy to have periods of fatigue and/or mild
depression. Take caution though. This fatigue may be your body telling you
that a seizure could happen soon. Try taking a nap.
Tristin :)
--- On Sat, 6/20/09, Adrien <adriencollins22160 @ googlemail. com> wrote:
From: Adrien <adriencollins22160 @ googlemail. com>
Subject: [epilepsy] Some questions
To: epilepsy@yahoogroup s.com
Date: Saturday, June 20, 2009, 7:45 AM
Hi
I am curious about my epilepsy. At the moment I am feeling
quite flat, no energy, tired, not irritable but I just feel
not quite myself. Is this common with epilepsy? I don't
think I've had a fit but I just can't concentrate and when I
am typing I am making lots of mistakes. I'm not quite sure
what's going on. It could be because I've been out in the
sun quite a bit, don't know.
Regards
Adrien
You can get me off list at:
adriencollins22160@ googlemail. com
or
adriencollins22160@ hotmail.fr
or
adrien.collins@ orange.fr
Speakon is a free fully self-voicing accessible multimedia
program for
the visually impaired, find out more by downloading the
software from:
http://www.a- technic.net/ speakon.htm
You can join the speakon user group by sending a blank
e-mail to:
speakon-subscribe@ yahoogroups. com
-----Original Message-----
From: epilepsy@yahoogroup s.com
[mailto:epilepsy@ yahoogroup s.com] On Behalf Of Amanda Wiser
Sent: 18 June 2009 20:58
To: epilepsy@yahoogroup s.com
Subject: [epilepsy] Worried
For about 3 days my daughter (2), whenever she wakes up, she
starts shaking. She has acted like that before after a
seizure. Is there any type of epilepsy machine, that she can
wear while asleep? I'm just so worried about her, and I
don't think the Tegretol is working anymore.
Amanda
[Non-text portions of this message have been removed]
------------ --------- --------- ------
Just a friendly reminder: Please remember to sign your post and remember to
clean up messages when you reply to them. This is especially important if
you are on digest. This not only helps out the list owner but, it makes
messages much easier to read when they arrive in our inboxes.
Yahoo! Groups Links
____________ _________ _________ _________ _________ _________ _
No virus found in this incoming message.
Checked by AVG - www.avg.com
Version: 8.5.339 / Virus Database: 270.12.81/2189 - Release Date: 06/20/09
06:15:00
[Non-text portions of this message have been removed]
[Non-text portions of this message have been removed]
[Non-text portions of this message have been removed]
[Non-text portions of this message have been removed]
[Non-text portions of this message have been removed]
[Non-text portions of this message have been removed]
[Non-text portions of this message have been removed]
Change settings via the Web (Yahoo! ID required)
Change settings via email: Switch delivery to Daily Digest | Switch format to Traditional
Visit Your Group | Yahoo! Groups Terms of Use | Unsubscribe
No comments:
Post a Comment