My daughter has twice and that was enough for me to realize that cpr and eveything had to be current with anyone that watches her or has anything to do with her adult wise. I dont leave mydaughter very many places with out me close by but, the fact that you can go several months to years without a single seizure and it can come back at anytime is scary enough for us to not take things into my own hands and go changing them around without her doctors approval (I've been told to do that too). My daughter has gone 15 weeks before no seizures and then they come back with vingence ugh I dread it. But, neither she or I let it run our lives we run it!
Hang in there everyone you are all in our thoughts and prayers as our epileptic friends (my daughter calls you that).
Elizabeth
____________
From: Adrien <adriencollins22160@
To: epilepsy@yahoogroup
Sent: Wednesday, June 24, 2009 12:43:43 PM
Subject: RE: Re: [epilepsy] Some questions
Hi
My fits do the same to me, I stop breathing too, it's not
worth the risk. And yes, you've got ep, let it live with
you, not you it.
Regards
Adrien
You can get me off list at:
adriencollins22160@ googlemail. com
or
adriencollins22160@ hotmail.fr
or
adrien.collins@ orange.fr
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-----Original Message-----
From: epilepsy@yahoogroup s.com
[mailto:epilepsy@
Last NameSilva
Sent: 22 June 2009 00:15
To: epilepsy@yahoogroup s.com
Cc: elizabethkaron@ yahoo.com
Subject: Re: Re: [epilepsy] Some questions
I agree. My daughter has quit breathing during/ after a
seizure and if it wasn't for the meds she'd be gone. We have
been through so much with her I understand drugs have side
effects but thats when your doctor and yourself sort through
what is best. My daughter is on a good combination and
natural and other ones have messed her up more then anything
and we sure aren't going to Europe or Germany to get
treatment there when we can't afford that. And even if stem
cells help the patient from them need to be seen afterwards
regualerly incase. And there is alwasy a chance that a
seizure can occur.
If you have epilepsy its the fact that you haev it and you
don't let it ruin your life.
____________ _________ _________ __
From: Tristin Seagraves <tristinspike26@ yahoo.com
<mailto:tristinspik e26%40yahoo. com> >
To: epilepsy@yahoogroup s.com
<mailto:epilepsy% 40yahoogroups. com>
Sent: Sunday, June 21, 2009 5:07:35 PM
Subject: Re: Re: [epilepsy] Some questions
I hear you, Elizabeth! :) I totally agree with you. For
many of us with epilepsy, if we just stopped taking our
meds, we would definitely be having more frequent seizures
and there would be an increased risk of SUDEP (Sudden
Unexplained Death in Epilepsy) or Status Epilepticus. I
think I'll take my chances with my prescribed drugs.
Tristin Seagraves
--- On Sun, 6/21/09, Elizabeth Last NameSilva
<elizabethkaron@ yahoo.com> wrote:
From: Elizabeth Last NameSilva <elizabethkaron@ yahoo.com>
Subject: Re: Re: [epilepsy] Some questions
To: epilepsy@yahoogroup s.com
Cc: elizabethkaron@ yahoo.com
Date: Sunday, June 21, 2009, 6:00 PM
Im sorry but I wanted to state that some natural ways dont
stop some epileptics seizures. We have tried lots of
differant natural ways to get my daughters seizures under
control and it did not help and some made thigns worse. Yes
we have been through lots of drugs but she is on a
combination that is working for her for the moment. Meds
dont neccesarly kill someone they are there for a reason.
But, I do believe that seizures of any kind CAN hurt you
very badly. There is pros and cons with everything even with
everyday living.
Why do you post that its slow killing by taking the drugs
that are out there to help and that for the ones that are
taking the medications are killing themselves?
This site is for support and help not to put the ones that
have the epilepsy condition down for doing or taking what
they take?
Not everyone can afford to go to Europe or Germany for
treatment.
____________ _________ _________ __
From: Malgorzata Wolak <malgorzataqueen@ yahoo.com>
To: epilepsy@yahoogroup s.com
Sent: Sunday, June 21, 2009 4:49:35 PM
Subject: Fw: Re: [epilepsy] Some questions
--- On Sun, 6/21/09, Malgorzata Wolak <malgorzataqueen@
yahoo.com> wrote:
From: Malgorzata Wolak <malgorzataqueen@ yahoo.com>
Subject: Re: [epilepsy] Some questions
To: epilepsy@yahoogroup s.com
Date: Sunday, June 21, 2009, 9:46 PM
Hello, how about reaching to more successfull
way......natural therapy. No side effects, full recovery and
ask yourself one question: is your life wort it? You have to
answer that . I will tell you where to go. EUROPE in germany
is a clinic which treat seizures with stem cells. All cases
are a full recovery. Check that out by yourself and stop
killing yourself with all those drugs they give you here. It
is not help......I call that slow killing.
--- On Sun, 6/21/09, Tristin Seagraves <tristinspike26@
yahoo.com> wrote:
From: Tristin Seagraves <tristinspike26@ yahoo.com>
Subject: Re: [epilepsy] Some questions
To: epilepsy@yahoogroup s.com
Date: Sunday, June 21, 2009, 9:37 PM
The fatigue could very well be because of the change in
meds. Whenever I switch AEDs, I'm always irritable and
fatigued. I don't really have an answer for how you can
stop the fatigue or what you should do for it. It's just
something I've learned to accept, along with epilepsy in
general.. I would speak to a neurologist about it and let
him/her know exactly how bad the fatigue, irritability,
and/or depression is. But for me, it's just another
characteristic of epilepsy.
Tristin Seagraves :)
--- On Sat, 6/20/09, Uggie <ugmcginnis@ embarqma il.com>
wrote:
From: Uggie <ugmcginnis@ embarqma il.com>
Subject: Re: [epilepsy] Some questions
To: epilepsy@yahoogroup s.com
Date: Saturday, June 20, 2009, 9:00 PM
What to do in someone that this goes on daily with?
Is on Keppra (tapering off), Topomax (will increase once off
Keppra),
Prozac and Abilify. Maxalt as needed for migraines.
-------Original Message----- --
From: Tristin Seagraves
Date: 6/20/2009 11:01:31 AM
To: epilepsy@yahoogroup s.com
Subject: Re: [epilepsy] Some questions
It's common for people with epilepsy to have periods of
fatigue and/or mild
depression. Take caution though. This fatigue may be your
body telling you
that a seizure could happen soon. Try taking a nap.
Tristin :)
--- On Sat, 6/20/09, Adrien <adriencollins22160 @
googlemail. com> wrote:
From: Adrien <adriencollins22160 @ googlemail. com>
Subject: [epilepsy] Some questions
To: epilepsy@yahoogroup s.com
Date: Saturday, June 20, 2009, 7:45 AM
Hi
I am curious about my epilepsy. At the moment I am feeling
quite flat, no energy, tired, not irritable but I just feel
not quite myself. Is this common with epilepsy? I don't
think I've had a fit but I just can't concentrate and when I
am typing I am making lots of mistakes. I'm not quite sure
what's going on. It could be because I've been out in the
sun quite a bit, don't know.
Regards
Adrien
You can get me off list at:
adriencollins22160@ googlemail. com
or
adriencollins22160@ hotmail.fr
or
adrien.collins@ orange.fr
Speakon is a free fully self-voicing accessible multimedia
program for
the visually impaired, find out more by downloading the
software from:
http://www.a- technic.net/ speakon.htm
You can join the speakon user group by sending a blank
e-mail to:
speakon-subscribe@ yahoogroups. com
-----Original Message-----
From: epilepsy@yahoogroup s.com
[mailto:epilepsy@ yahoogroup s.com] On Behalf Of Amanda
Wiser
Sent: 18 June 2009 20:58
To: epilepsy@yahoogroup s.com
Subject: [epilepsy] Worried
For about 3 days my daughter (2), whenever she wakes up, she
starts shaking. She has acted like that before after a
seizure. Is there any type of epilepsy machine, that she can
wear while asleep? I'm just so worried about her, and I
don't think the Tegretol is working anymore.
Amanda
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