Hi
I'm adjusting or coming off some of my other drugs but the
ones for ep are not worth tinkering with, it really isn't
worth it, within a week I'd be having a major fit and I'm
not taking the chance. I take supplements and other
prescribed drugs, these I'm sorting out as I'm taking too
much.
Regards
Adrien
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-----Original Message-----
From: epilepsy@yahoogroup
[mailto:epilepsy@yahoogroup
Seagraves
Sent: 22 June 2009 00:08
To: epilepsy@yahoogroup
Subject: Re: Re: [epilepsy] Some questions
I hear you, Elizabeth! :) I totally agree with you. For
many of us with epilepsy, if we just stopped taking our
meds, we would definitely be having more frequent seizures
and there would be an increased risk of SUDEP (Sudden
Unexplained Death in Epilepsy) or Status Epilepticus. I
think I'll take my chances with my prescribed drugs.
Tristin Seagraves
--- On Sun, 6/21/09, Elizabeth Last NameSilva
<elizabethkaron@
<mailto:elizabethka
From: Elizabeth Last NameSilva <elizabethkaron@
<mailto:elizabethka
Subject: Re: Re: [epilepsy] Some questions
To: epilepsy@yahoogroup
<mailto:epilepsy%
Cc: elizabethkaron@
<mailto:elizabethka
Date: Sunday, June 21, 2009, 6:00 PM
Im sorry but I wanted to state that some natural ways dont
stop some epileptics seizures. We have tried lots of
differant natural ways to get my daughters seizures under
control and it did not help and some made thigns worse. Yes
we have been through lots of drugs but she is on a
combination that is working for her for the moment. Meds
dont neccesarly kill someone they are there for a reason.
But, I do believe that seizures of any kind CAN hurt you
very badly. There is pros and cons with everything even with
everyday living.
Why do you post that its slow killing by taking the drugs
that are out there to help and that for the ones that are
taking the medications are killing themselves?
This site is for support and help not to put the ones that
have the epilepsy condition down for doing or taking what
they take?
Not everyone can afford to go to Europe or Germany for
treatment.
____________ _________ _________ __
From: Malgorzata Wolak <malgorzataqueen@ yahoo.com>
To: epilepsy@yahoogroup s.com
Sent: Sunday, June 21, 2009 4:49:35 PM
Subject: Fw: Re: [epilepsy] Some questions
--- On Sun, 6/21/09, Malgorzata Wolak <malgorzataqueen@
yahoo.com> wrote:
From: Malgorzata Wolak <malgorzataqueen@ yahoo.com>
Subject: Re: [epilepsy] Some questions
To: epilepsy@yahoogroup s.com
Date: Sunday, June 21, 2009, 9:46 PM
Hello, how about reaching to more successfull
way......natural therapy. No side effects, full recovery and
ask yourself one question: is your life wort it? You have to
answer that . I will tell you where to go. EUROPE in germany
is a clinic which treat seizures with stem cells. All cases
are a full recovery. Check that out by yourself and stop
killing yourself with all those drugs they give you here. It
is not help......I call that slow killing.
--- On Sun, 6/21/09, Tristin Seagraves <tristinspike26@
yahoo.com> wrote:
From: Tristin Seagraves <tristinspike26@ yahoo.com>
Subject: Re: [epilepsy] Some questions
To: epilepsy@yahoogroup s.com
Date: Sunday, June 21, 2009, 9:37 PM
The fatigue could very well be because of the change in
meds. Whenever I switch AEDs, I'm always irritable and
fatigued. I don't really have an answer for how you can
stop the fatigue or what you should do for it. It's just
something I've learned to accept, along with epilepsy in
general.. I would speak to a neurologist about it and let
him/her know exactly how bad the fatigue, irritability,
and/or depression is. But for me, it's just another
characteristic of epilepsy.
Tristin Seagraves :)
--- On Sat, 6/20/09, Uggie <ugmcginnis@ embarqma il.com>
wrote:
From: Uggie <ugmcginnis@ embarqma il.com>
Subject: Re: [epilepsy] Some questions
To: epilepsy@yahoogroup s.com
Date: Saturday, June 20, 2009, 9:00 PM
What to do in someone that this goes on daily with?
Is on Keppra (tapering off), Topomax (will increase once off
Keppra),
Prozac and Abilify. Maxalt as needed for migraines.
-------Original Message----- --
From: Tristin Seagraves
Date: 6/20/2009 11:01:31 AM
To: epilepsy@yahoogroup s.com
Subject: Re: [epilepsy] Some questions
It's common for people with epilepsy to have periods of
fatigue and/or mild
depression. Take caution though. This fatigue may be your
body telling you
that a seizure could happen soon. Try taking a nap.
Tristin :)
--- On Sat, 6/20/09, Adrien <adriencollins22160 @
googlemail. com> wrote:
From: Adrien <adriencollins22160 @ googlemail. com>
Subject: [epilepsy] Some questions
To: epilepsy@yahoogroup s.com
Date: Saturday, June 20, 2009, 7:45 AM
Hi
I am curious about my epilepsy. At the moment I am feeling
quite flat, no energy, tired, not irritable but I just feel
not quite myself. Is this common with epilepsy? I don't
think I've had a fit but I just can't concentrate and when I
am typing I am making lots of mistakes. I'm not quite sure
what's going on. It could be because I've been out in the
sun quite a bit, don't know.
Regards
Adrien
You can get me off list at:
adriencollins22160@ googlemail. com
or
adriencollins22160@ hotmail.fr
or
adrien.collins@ orange.fr
Speakon is a free fully self-voicing accessible multimedia
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the visually impaired, find out more by downloading the
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You can join the speakon user group by sending a blank
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-----Original Message-----
From: epilepsy@yahoogroup s.com
[mailto:epilepsy@ yahoogroup s.com] On Behalf Of Amanda
Wiser
Sent: 18 June 2009 20:58
To: epilepsy@yahoogroup s.com
Subject: [epilepsy] Worried
For about 3 days my daughter (2), whenever she wakes up, she
starts shaking. She has acted like that before after a
seizure. Is there any type of epilepsy machine, that she can
wear while asleep? I'm just so worried about her, and I
don't think the Tegretol is working anymore.
Amanda
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