--- In epilepsy@yahoogroup
>
> Hi
>
> My fits do the same to me, I stop breathing too, it's not
> worth the risk. And yes, you've got ep, let it live with
> you, not you it.
>
>
> Regards
>
> Adrien
>
> You can get me off list at:
> adriencollins22160@
> or
> adriencollins22160@
> or
> adrien.collins@
>
> Speakon is a free fully self-voicing accessible multimedia
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>
> -----Original Message-----
> From: epilepsy@yahoogroup
> [mailto:epilepsy@yahoogroup
> Last NameSilva
> Sent: 22 June 2009 00:15
> To: epilepsy@yahoogroup
> Cc: elizabethkaron@
> Subject: Re: Re: [epilepsy] Some questions
>
>
>
> I agree. My daughter has quit breathing during/ after a
> seizure and if it wasn't for the meds she'd be gone. We have
> been through so much with her I understand drugs have side
> effects but thats when your doctor and yourself sort through
> what is best. My daughter is on a good combination and
> natural and other ones have messed her up more then anything
> and we sure aren't going to Europe or Germany to get
> treatment there when we can't afford that. And even if stem
> cells help the patient from them need to be seen afterwards
> regualerly incase. And there is alwasy a chance that a
> seizure can occur.
> If you have epilepsy its the fact that you haev it and you
> don't let it ruin your life.
>
> ____________
> From: Tristin Seagraves <tristinspike26@
> <mailto:tristinspik
> To: epilepsy@yahoogroup
> <mailto:epilepsy%
> Sent: Sunday, June 21, 2009 5:07:35 PM
> Subject: Re: Re: [epilepsy] Some questions
>
> I hear you, Elizabeth! :) I totally agree with you. For
> many of us with epilepsy, if we just stopped taking our
> meds, we would definitely be having more frequent seizures
> and there would be an increased risk of SUDEP (Sudden
> Unexplained Death in Epilepsy) or Status Epilepticus. I
> think I'll take my chances with my prescribed drugs.
>
> Tristin Seagraves
>
> --- On Sun, 6/21/09, Elizabeth Last NameSilva
> <elizabethkaron@ yahoo.com> wrote:
>
> From: Elizabeth Last NameSilva <elizabethkaron@ yahoo.com>
> Subject: Re: Re: [epilepsy] Some questions
> To: epilepsy@yahoogroup s.com
> Cc: elizabethkaron@ yahoo.com
> Date: Sunday, June 21, 2009, 6:00 PM
>
> Im sorry but I wanted to state that some natural ways dont
> stop some epileptics seizures. We have tried lots of
> differant natural ways to get my daughters seizures under
> control and it did not help and some made thigns worse. Yes
> we have been through lots of drugs but she is on a
> combination that is working for her for the moment. Meds
> dont neccesarly kill someone they are there for a reason.
> But, I do believe that seizures of any kind CAN hurt you
> very badly. There is pros and cons with everything even with
> everyday living.
> Why do you post that its slow killing by taking the drugs
> that are out there to help and that for the ones that are
> taking the medications are killing themselves?
> This site is for support and help not to put the ones that
> have the epilepsy condition down for doing or taking what
> they take?
> Not everyone can afford to go to Europe or Germany for
> treatment.
>
> ____________ _________ _________ __
> From: Malgorzata Wolak <malgorzataqueen@ yahoo.com>
> To: epilepsy@yahoogroup s.com
> Sent: Sunday, June 21, 2009 4:49:35 PM
> Subject: Fw: Re: [epilepsy] Some questions
>
> --- On Sun, 6/21/09, Malgorzata Wolak <malgorzataqueen@
> yahoo.com> wrote:
>
> From: Malgorzata Wolak <malgorzataqueen@ yahoo.com>
> Subject: Re: [epilepsy] Some questions
> To: epilepsy@yahoogroup s.com
> Date: Sunday, June 21, 2009, 9:46 PM
>
> Hello, how about reaching to more successfull
> way......natural therapy. No side effects, full recovery and
> ask yourself one question: is your life wort it? You have to
> answer that . I will tell you where to go. EUROPE in germany
> is a clinic which treat seizures with stem cells. All cases
> are a full recovery. Check that out by yourself and stop
> killing yourself with all those drugs they give you here. It
> is not help......I call that slow killing.
>
> --- On Sun, 6/21/09, Tristin Seagraves <tristinspike26@
> yahoo.com> wrote:
>
> From: Tristin Seagraves <tristinspike26@ yahoo.com>
>
> Subject: Re: [epilepsy] Some questions
>
> To: epilepsy@yahoogroup s.com
>
> Date: Sunday, June 21, 2009, 9:37 PM
>
> The fatigue could very well be because of the change in
> meds. Whenever I switch AEDs, I'm always irritable and
> fatigued. I don't really have an answer for how you can
> stop the fatigue or what you should do for it. It's just
> something I've learned to accept, along with epilepsy in
> general.. I would speak to a neurologist about it and let
> him/her know exactly how bad the fatigue, irritability,
> and/or depression is. But for me, it's just another
> characteristic of epilepsy.
>
>
>
> Tristin Seagraves :)
>
> --- On Sat, 6/20/09, Uggie <ugmcginnis@ embarqma il.com>
> wrote:
>
> From: Uggie <ugmcginnis@ embarqma il.com>
>
> Subject: Re: [epilepsy] Some questions
>
> To: epilepsy@yahoogroup s.com
>
> Date: Saturday, June 20, 2009, 9:00 PM
>
> What to do in someone that this goes on daily with?
>
> Is on Keppra (tapering off), Topomax (will increase once off
> Keppra),
>
> Prozac and Abilify. Maxalt as needed for migraines.
>
> -------Original Message----- --
>
> From: Tristin Seagraves
>
> Date: 6/20/2009 11:01:31 AM
>
> To: epilepsy@yahoogroup s.com
>
> Subject: Re: [epilepsy] Some questions
>
> It's common for people with epilepsy to have periods of
> fatigue and/or mild
>
> depression. Take caution though. This fatigue may be your
> body telling you
>
> that a seizure could happen soon. Try taking a nap.
>
> Tristin :)
>
> --- On Sat, 6/20/09, Adrien <adriencollins22160 @
> googlemail. com> wrote:
>
> From: Adrien <adriencollins22160 @ googlemail. com>
>
> Subject: [epilepsy] Some questions
>
> To: epilepsy@yahoogroup s.com
>
> Date: Saturday, June 20, 2009, 7:45 AM
>
> Hi
>
> I am curious about my epilepsy. At the moment I am feeling
>
> quite flat, no energy, tired, not irritable but I just feel
>
> not quite myself. Is this common with epilepsy? I don't
>
> think I've had a fit but I just can't concentrate and when I
>
> am typing I am making lots of mistakes. I'm not quite sure
>
> what's going on. It could be because I've been out in the
>
> sun quite a bit, don't know.
>
> Regards
>
> Adrien
>
> You can get me off list at:
>
> adriencollins22160@ googlemail. com
>
> or
>
> adriencollins22160@ hotmail.fr
>
> or
>
> adrien.collins@ orange.fr
>
> Speakon is a free fully self-voicing accessible multimedia
>
> program for
>
> the visually impaired, find out more by downloading the
>
> software from:
>
> http://www.a- technic.net/ speakon.htm
>
> You can join the speakon user group by sending a blank
>
> e-mail to:
>
> speakon-subscribe@ yahoogroups. com
>
> -----Original Message-----
>
> From: epilepsy@yahoogroup s.com
>
> [mailto:epilepsy@ yahoogroup s.com] On Behalf Of Amanda
> Wiser
>
> Sent: 18 June 2009 20:58
>
> To: epilepsy@yahoogroup s.com
>
> Subject: [epilepsy] Worried
>
> For about 3 days my daughter (2), whenever she wakes up, she
>
> starts shaking. She has acted like that before after a
>
> seizure. Is there any type of epilepsy machine, that she can
>
> wear while asleep? I'm just so worried about her, and I
>
> don't think the Tegretol is working anymore.
>
> Amanda
>
> [Non-text portions of this message have been removed]
>
> ------------ --------- --------- ------
>
> Just a friendly reminder: Please remember to sign your post
> and remember to
>
> clean up messages when you reply to them. This is especially
> important if
>
> you are on digest. This not only helps out the list owner
> but, it makes
> Hi Amanda,you must be feeling frantic not knowing whats best for your little girl,if you feel her medication needs checking then see your doctor and tell him/her of your concerns we all get them its nothink unuseual,but if your daughter sences your worries/concerns it could impact on her in some way so stay possative for her and your self,there are seizure monitors on the market but they will never replace good old common sence but could give you some peace of mind.
SGBraid (UK)
> messages much easier to read when they arrive in our
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>
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