Hi Mary,
Welcome to our group.
Are you talking about the Drs in Delta or the ones at the Cleveland
Clinic? Cleveland Clinic is well thought of -- so I am hoping you are
getting help there.
Tell us about yourself.
Millie
> hiits very hard finding the right doct., that know what u r going
> through.. we live in delta,ohio, and we have to go to cleveland clinic
> every month, cause the doc. don;t know what they r doing, and think it;s a
> big joke...
>
> --- On Sun, 6/21/09, CBI <cbicook@yahoo.
>
>
> From: CBI <cbicook@yahoo.
> Subject: Re: [epilepsy] Relationships and Epilepsy
> To: epilepsy@yahoogroup
> Date: Sunday, June 21, 2009, 1:12 AM
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> The one thing I can recommend is opportunity. It is no different from
> those without a handicap however the labeling that is received by others
> who see us often prevents us from enjoying the opportunities of life. The
> more you can enjoy experiences with your friend and expand what his family
> has not let him experience, the better.
>
> You have to be safe. Things like swimming or driving have to be done
> safely. I tried swimming for exercise in a local pool and found myself in
> the hospital after having a seizure. I ended up in the bottom of the
> pool. It isn't that you can't enjoy these activities, just make sure
> others know and you have the lifeguards present. Don't try swimming in a
> lake or private pool.
>
> The second thing you can do is be there. When coming out of a seizure,
> there is a lot of confusion like blaming oneself and feeling depressed.
> Sometimes you aren't were you were when you last remembered things and
> memory is difficult to recall both short term and long term. Patients is
> important. Let him get his bearings back and answer questions when he
> asks them. Being there to make sure he doesn't fall and hurt himself on
> something sharp is important.
>
> The third suggestion is to keep a diary with your friend. Help him put
> together a calender that identifies when his seizures occurs and what he
> was doing before it started. It will be something he can use to help
> understand what happened or share with his doctor to help get the best
> treatement.
>
> Another thing is to help monitor the medications taken. I put out my
> next dose in a cup when I take my night time dose. It tells me in the
> morning if I missed my previous night time dose and my wife checks when
> she gets ready for the day to see that I took my dose that morning. If I
> missed any, she calls me at work and I have some there I can take.
> Knowing that you are taking your meds regularly and that you have not
> missed any or of you did, you took them later, gives you a level of
> confidence that this was not a cause of a seizure. It's too easy to blame
> that but not a good idea in my opinion. You need to find other patterns
> to determine the cause of there are any.
>
> Lastly, I would not let your friends seizures get in the way of your
> relationship. I have often wondered sometimes why my wife married me
> knowing my handicap. We met in college and when I had a seizure one day
> in a class, without her, some friends came to her to tell her it
> occurred. I couldn't imagine that and sticking with the person. She has
> been devoted to me all the way and I am a very lucky to have such a good
> friend who sticks with me through thick and thin. This is what your
> friend needs when he looses touch with reality for these moments. It is a
> very scary time. I have never seen a seizure myself and am not sure I
> could return the same devotion so freely. I support everyone who supports
> people and stays with them when we have these seizures. They are special
> and I'm sure you will be seen the same way. It could even give you an
> even stronger relationship than other couples experience who don't have
> this stress in
> their lives. Best of luck.
>
> CBI
>
>
>
>
>
> --- On Thu, 6/18/09, roebuckavery <roebuckavery@ yahoo.com> wrote:
>
> From: roebuckavery <roebuckavery@ yahoo.com>
> Subject: [epilepsy] Relationships and Epilepsy
> To: epilepsy@yahoogroup s.com
> Date: Thursday, June 18, 2009, 6:42 PM
>
> First I would like to share with you guys that I am not an epileptic
> however,I am in full support of the people like you that have this
> condition and have had your ups and downs with it. My questions is how
> many of you are married or in serious committed relationships and also how
> do you keep your relationship or marriage strong along with dealing with
> you or your spouses epilepsy. This is very important to me because I met a
> wonderful guy online who has epilepsy and we tried to bond and see if we
> could get closer and have a relationship. I thought that we would be a
> regular couple like everyone else "we" just have this condition called
> epilepsy that we have to deal with from time to time.Unfortunately he had
> led a very sheltered and dominate life from his parents and family and
> because he has had it since birth (we are both in our 50's) he was raised
> as if he was retarded always told what he could'nt do no encouragement or
> affection. I saw him in
> a totally different light he is handsome, very intelligent, and very handy
> around the house. His seizures are very well under control his problem is
> the emotional effects of his raisings. I love him dearly and we are still
> best friends and I miss what we had. But he saw my encouragement as being
> bossy and pushy because I wanted him to know there's a whole world out
> there that he's letting get by him without trying to shed all the hurts
> and pains from his childhood. Has anyone been through this and how did you
> deal with it? I've tried to let go of him but can't he will always be very
> special to me forever. All comments welcome.
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