Nancy,
Yes, my doctor knows this because my daughters call him or his stand in
after they have been called. He has never seen me when I can't talk. (It
usually happened on a weekend and he is not available) to see me anyway.
6 years ago I was admitted to the hospital and had an MRI, Ultra Sound,
CScan and an EEG. Then he thought I had a TIA (small stroke) but
everything happened like before. The last time 2 years ago I asked him if
it was a TIA or a sz. He thought it was a sz. He didn't see me either
time until Monday morning.
I usually go in Monday morning and he checks me out. By then I am talking
again but he can tell that I am not quite my usual self and I am not to
drive. Between my daughter and I -- we tell him what happened. (At least
what little I remember and whatever anyone else has seen of me). He sends
me to get a blood test to see if my meds are low.
You will have to remember I don't have many szs. My last one was 2 years
ago and before that it was 4 years.
Millie
> does your dr. understand this. maybe I should see another dr but he is
> suppose to be the best. Nancy
>
>
>
>
> ____________
> From: "mylmy@bnin.net" <mylmy@bnin.net>
> To: epilepsy@yahoogroup
> Sent: Sunday, June 7, 2009 1:31:34 AM
> Subject: Re: [epilepsy] Re: New Here
>
>
>
>
>
> Nancy ,
>
> When I was diagnosed (DX) 47 years ago I had grand mal szs.
>
> About 15 years ago they changed to more like complex partials--
> according to what I read. I start out by acting like I don't hear
> you. Since I live alone I sleep a lot. Other wise I am probably
> sleep deprived. I walk to places I don't remember later. If
> I do talk my friends know I am not my usual self. Then I have trouble
> talking (my brain isn't working right.)-- then I can't talk at all.
> This is usually over the course of 2 days. My girls say my brain
> is scrambled. -- Then like a light switch-- my brain turns on again.
>
> I have sent out instructions to people in my building that when I am
> not my acting my normal self -- to call my 2 daughters who live in town.
> It takes about a week to be my usual self. My last one was 2 years ago.
>
> Millie
>
>> thanks for the input that I have complex partial seizues or tempole
>> lobe.
>> as my dr really does not know. but I do not pass out. after I have one
>> I
>> am feeling reallyweird, like everything is really far away. even things
>> up close are far away. and most of the time it last all day. It affects
>> my eyes as I can not see. sometimes it is in just my right eye and
>> sometimes in both. He did say the right side of my head is worse, by
>> all
>> thetes he has giving me. Most of the time I know I amhaving having one
>> but alot of times it just comes on me and it is crazy. is there anyone
>> else that has these simtoms.
>>
>>
>
>
>
>
>
>
> [Non-text portions of this message have been removed]
>
>
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