i will have to ask his speech therapist about that when school starts. we have gotten to where we can kind of read his body language when he doesn't talk. it's so sad.
____________
From: Elizabeth Last NameSilva <elizabethkaron@
To: epilepsy@yahoogroup
Cc: elizabethkaron@
Sent: Sunday, June 7, 2009 6:32:14 PM
Subject: Re: [epilepsy] Re: New Here
between the childhood aphasia (like adult altizmers Im sorry I can't spell very good this evening) and her anxiety thats what the speech therapist diagnosed it as. She does get it back its just frustrating as can be till it happens.
____________ _________ _________ __
From: Laura Gresham <greshamlaura@ yahoo.com>
To: epilepsy@yahoogroup s.com
Sent: Sunday, June 7, 2009 5:55:56 PM
Subject: Re: [epilepsy] Re: New Here
I was never told that is what it was. My little Aeidan goes days without talking also, generally after heavy seizure activity or too much excitement (i.e. being in the sun). Laura
____________ _________ _________ __
From: Elizabeth Last NameSilva <elizabethkaron@ yahoo.com>
To: epilepsy@yahoogroup s.com
Cc: elizabethkaron@ yahoo.com
Sent: Sunday, June 7, 2009 4:15:54 PM
Subject: Re: [epilepsy] Re: New Here
My 6 and half year old daughter is unable to talk at times after her seizures.. They said she has childs apasia bout the same thing your talking about. It takes up to 48 hours to regain her full functioning conversations back. But she does get it back.
____________ _________ _________ __
From: "mylmy@bnin.net" <mylmy@bnin.net>
To: epilepsy@yahoogroup s.com
Sent: Sunday, June 7, 2009 3:36:58 PM
Subject: Re: [epilepsy] Re: New Here
Nancy,
Yes, my doctor knows this because my daughters call him or his stand in
after they have been called. He has never seen me when I can't talk. (It
usually happened on a weekend and he is not available) to see me anyway.
6 years ago I was admitted to the hospital and had an MRI, Ultra Sound,
CScan and an EEG. Then he thought I had a TIA (small stroke) but
everything happened like before. The last time 2 years ago I asked him if
it was a TIA or a sz. He thought it was a sz. He didn't see me either
time until Monday morning.
I usually go in Monday morning and he checks me out. By then I am talking
again but he can tell that I am not quite my usual self and I am not to
drive. Between my daughter and I -- we tell him what happened. (At least
what little I remember and whatever anyone else has seen of me). He sends
me to get a blood test to see if my meds are low.
You will have to remember I don't have many szs. My last one was 2 years
ago and before that it was 4 years.
Millie
> does your dr. understand this.. maybe I should see another dr but he is
> suppose to be the best. Nancy
>
>
>
>
> ____________ _________ _________ __
> From: "mylmy@bnin.net" <mylmy@bnin.net>
> To: epilepsy@yahoogroup s.com
> Sent: Sunday, June 7, 2009 1:31:34 AM
> Subject: Re: [epilepsy] Re: New Here
>
>
>
>
>
> Nancy ,
>
> When I was diagnosed (DX) 47 years ago I had grand mal szs.
>
> About 15 years ago they changed to more like complex partials--
> according to what I read. I start out by acting like I don't hear
> you. Since I live alone I sleep a lot. Other wise I am probably
> sleep deprived. I walk to places I don't remember later. If
> I do talk my friends know I am not my usual self. Then I have trouble
> talking (my brain isn't working right.)-- then I can't talk at all.
> This is usually over the course of 2 days. My girls say my brain
> is scrambled. -- Then like a light switch-- my brain turns on again.
>
> I have sent out instructions to people in my building that when I am
> not my acting my normal self -- to call my 2 daughters who live in town.
> It takes about a week to be my usual self. My last one was 2 years ago.
>
> Millie
>
>> thanks for the input that I have complex partial seizues or tempole
>> lobe.
>> as my dr really does not know. but I do not pass out. after I have one
>> I
>> am feeling reallyweird, like everything is really far away. even things
>> up close are far away. and most of the time it last all day. It affects
>> my eyes as I can not see. sometimes it is in just my right eye and
>> sometimes in both. He did say the right side of my head is worse, by
>> all
>> thetes he has giving me. Most of the time I know I amhaving having one
>> but alot of times it just comes on me and it is crazy. is there anyone
>> else that has these simtoms.
>>
>>
>
>
>
>
>
>
> [Non-text portions of this message have been removed]
>
>
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