Adrien,
Welcome to the group. I have complex partial seizures that I have had for
about 40 years now.They were from a head injury when I was a baby.My
seizures are not controlled. I had surgery back in 2004, but even though it
made them a lot better than they used to be, I still have them. Stress and
hormones seem to play a big part in the ones I have now. There is plenty of
information and friends here. If I can help in any way, write anytime.Take
care.
Tammy
On Mon, Jun 8, 2009 at 10:56 AM, Adrien
<adriencollins22160@
>
>
> Hi
>
> I am also new to the list and I just wanted to say high to
> you all.
>
> I have epilepsy myself and although it is well controlled I
> do have problems with it so I'd be interested to read your
> messages over the months ahead.
>
> Regards
>
> Adrien
>
> You can get me off list at:
> adriencollins06@
> or
> adrien_collins@
> Or
> adrien.collins@
>
> Speakon is a free fully self-voicing accessible multimedia
> program for
> the visually impaired, find out more by downloading the
> software from:
> http://www.a-
> You can join the speakon user group by sending a blank
> e-mail to:
> speakon-subscribe@
>
> -----Original Message-----
> From: epilepsy@yahoogroup
> [mailto:epilepsy@yahoogroup
> Of Laura Gresham
> Sent: 08 June 2009 02:19
> To: epilepsy@yahoogroup
> Subject: Re: [epilepsy] Re: New Here
>
> i will have to ask his speech therapist about that when
> school starts. we have gotten to where we can kind of read
> his body language when he doesn't talk. it's so sad.
>
> ____________
> From: Elizabeth Last NameSilva <elizabethkaron@
> <mailto:elizabethka
> To: epilepsy@yahoogroup
> <mailto:epilepsy%
> Cc: elizabethkaron@
> <mailto:elizabethka
> Sent: Sunday, June 7, 2009 6:32:14 PM
> Subject: Re: [epilepsy] Re: New Here
>
> between the childhood aphasia (like adult altizmers Im sorry
> I can't spell very good this evening) and her anxiety thats
> what the speech therapist diagnosed it as. She does get it
> back its just frustrating as can be till it happens.
>
> ____________ _________ _________ __
> From: Laura Gresham <greshamlaura@ yahoo.com>
> To: epilepsy@yahoogroup s.com
> Sent: Sunday, June 7, 2009 5:55:56 PM
> Subject: Re: [epilepsy] Re: New Here
>
> I was never told that is what it was. My little Aeidan goes
> days without talking also, generally after heavy seizure
> activity or too much excitement (i.e. being in the sun).
> Laura
>
> ____________ _________ _________ __
> From: Elizabeth Last NameSilva <elizabethkaron@ yahoo.com>
> To: epilepsy@yahoogroup s.com
> Cc: elizabethkaron@ yahoo.com
> Sent: Sunday, June 7, 2009 4:15:54 PM
> Subject: Re: [epilepsy] Re: New Here
>
> My 6 and half year old daughter is unable to talk at times
> after her seizures.. They said she has childs apasia bout
> the same thing your talking about. It takes up to 48 hours
> to regain her full functioning conversations back. But she
> does get it back.
>
> ____________ _________ _________ __
> From: "mylmy@bnin.net <mylmy%40bnin.
> "
> <mylmy@bnin.net <mylmy%40bnin.
> >
> To: epilepsy@yahoogroup s.com
> Sent: Sunday, June 7, 2009 3:36:58 PM
> Subject: Re: [epilepsy] Re: New Here
>
> Nancy,
>
> Yes, my doctor knows this because my daughters call him or
> his stand in after they have been called. He has never seen
> me when I can't talk. (It usually happened on a weekend and
> he is not available) to see me anyway.
>
> 6 years ago I was admitted to the hospital and had an MRI,
> Ultra Sound, CScan and an EEG. Then he thought I had a TIA
> (small stroke) but everything happened like before. The last
> time 2 years ago I asked him if it was a TIA or a sz. He
> thought it was a sz. He didn't see me either time until
> Monday morning.
>
> I usually go in Monday morning and he checks me out. By then
> I am talking again but he can tell that I am not quite my
> usual self and I am not to drive. Between my daughter and I
> -- we tell him what happened. (At least what little I
> remember and whatever anyone else has seen of me). He sends
> me to get a blood test to see if my meds are low.
>
> You will have to remember I don't have many szs. My last one
> was 2 years ago and before that it was 4 years.
>
> Millie
>
> > does your dr. understand this.. maybe I should see
> another dr but he
> > is suppose to be the best. Nancy
> >
> >
> >
> >
> > ____________ _________ _________ __
> > From: "mylmy@bnin.net <mylmy%40bnin.
> "
> <mylmy@bnin.net <mylmy%40bnin.
> > <mailto:mylmy%
> > To: epilepsy@yahoogroup s.com
> > Sent: Sunday, June 7, 2009 1:31:34 AM
> > Subject: Re: [epilepsy] Re: New Here
> >
> >
> >
> >
> >
> > Nancy ,
> >
> > When I was diagnosed (DX) 47 years ago I had grand mal
> szs.
> >
> > About 15 years ago they changed to more like complex
> partials--
> > according to what I read. I start out by acting like I
> don't hear you.
> > Since I live alone I sleep a lot. Other wise I am probably
> sleep
> > deprived. I walk to places I don't remember later. If I do
> talk my
> > friends know I am not my usual self. Then I have trouble
> talking (my
> > brain isn't working right.)-- then I can't talk at all.
> > This is usually over the course of 2 days. My girls say my
> brain is
> > scrambled. -- Then like a light switch-- my brain turns on
> again.
> >
> > I have sent out instructions to people in my building that
> when I am
> > not my acting my normal self -- to call my 2 daughters who
> live in town.
> > It takes about a week to be my usual self. My last one was
> 2 years ago.
> >
> > Millie
> >
> >> thanks for the input that I have complex partial seizues
> or tempole
> >> lobe.
> >> as my dr really does not know. but I do not pass out.
> after I have
> >> one I am feeling reallyweird, like everything is really
> far away.
> >> even things up close are far away. and most of the time
> it last all
> >> day. It affects my eyes as I can not see. sometimes it
> is in just
> >> my right eye and sometimes in both. He did say the right
> side of my
> >> head is worse, by all thetes he has giving me. Most of
> the time I
> >> know I amhaving having one but alot of times it just
> comes on me and
> >> it is crazy. is there anyone else that has these simtoms.
> >>
> >>
> >
> >
> >
> >
> >
> >
> > [Non-text portions of this message have been removed]
> >
> >
>
> [Non-text portions of this message have been removed]
>
> [Non-text portions of this message have been removed]
>
> [Non-text portions of this message have been removed]
>
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