Adrien,
An aura is something that you feel, taste, or smell
or see before you hve a sz.
Millie
> Hi
>
> I'm not sure if I get auras, I feel faint and dizzy, I'm not
> sure.
>
>
>
>
> Regards
>
> Adrien
>
> You can get me off list at:
> adriencollins22160@
> or
> adriencollins22160@
> or
> adrien.collins@
>
> Speakon is a free fully self-voicing accessible multimedia
> program for
> the visually impaired, find out more by downloading the
> software from:
> http://www.a-
> You can join the speakon user group by sending a blank
> e-mail to:
> speakon-subscribe@
>
> -----Original Message-----
> From: epilepsy@yahoogroup
> [mailto:epilepsy@yahoogroup
> Seagraves
> Sent: Tuesday, June 09, 2009 6:22 PM
> To: epilepsy@yahoogroup
> Subject: RE: [epilepsy] Re: New Here
>
>
>
> Hi Adrien,
> The description of your mild seizures (storms) sounds
> like it could be complex partial seizures with myoclonic
> jerks. Do you get strange feelings (auras) before your
> storms?
>
> Oh, just a coincidence.
> Scottish festival. It's just entertaining watching men play
> sports in kilts. :)
>
> Later,
> Tristin
>
> --- On Tue, 6/9/09, Adrien
> <adriencollins22160@
> <mailto:adriencolli
>
> From: Adrien <adriencollins22160@
> <mailto:adriencolli
> Subject: RE: [epilepsy] Re: New Here
> To: epilepsy@yahoogroup
> <mailto:epilepsy%
> Date: Tuesday, June 9, 2009, 10:31 AM
>
> Hi Mylmy
>
> I'll try my best to describe what I call a storm. My
> epilepsy is well controlled with tegretol or carbomazapine
> (please excuse the spelling). When I have full fits which
> isn't very often thankfully I stop breathing, go blue, my
> arms jerk, so with the drugs, all of this is stopped but a
> few times a year I get a storm, this is a masked fit, very
> mild, none of the major symptoms, I feel very tired,
> irritable, depressed, my concentration goes out the window,
> but if I wasn't on the drugs, I'd be having more full fits.
> To me a storm is just a very mild fit. My arms jerk, my
> speech goes very bad, I just have to shut down and wait for
> it to pass over, it could be two or 3 weeks building up, and
> just as long calming down again. I get very fed-up, I am
> trying to think how else I can describe it. I also get very
> head achy. It's nothing like the full blown seizure I have
> and my last full one in in 1997. Although these are mild szs
> they in themselves can be bad enough, I just have to cope
> with them and rest, no computers, just be quiet, I'd be
> interested to know if other people have szs like this
>
> My family come from the south of England but have moved
> around quite a bit, we last lived in the northeast of
> Scotland, the climate here is far better than up there.
>
> Regards
>
> Adrien
>
> You can get me off list at:
> adriencollins06@ aol.com
> or
> adrien_collins@ yahoo.co. uk
> Or
> adrien.collins@ orange.fr
>
> Speakon is a free fully self-voicing accessible multimedia
> program for the visually impaired, find out more by
> downloading the software from:
> http://www.a- technic.net/ speakon.htm
> You can join the speakon user group by sending a blank
> e-mail to:
> speakon-subscribe@ yahoogroups. com
>
> -----Original Message-----
> From: epilepsy@yahoogroup s.com
> [mailto:epilepsy@
> mylmy@bnin.net <mailto:mylmy%
> Sent: 09 June 2009 15:59
> To: epilepsy@yahoogroup s.com
> Subject: RE: [epilepsy] Re: New Here
>
> Adrien,
>
> What do you mean by having storms? What happens?
>
> Where were you before you came to France?
>
> Millie
>
>> Hi Mylmy
>>
>> Ok I am mail.
>>
>> Yes I have a talking computer, plus I have a new netbook,
> Computers
>> are my main interest nowadays. I help maintain all the
> pc's in the
>> house and Have taken on the computer of a computer
> illiterate friend
>> round the corner, he asks me how to sort things on his pc,
> and it's
>> good, it helps keep me busy and occupied. Having the
> different
>> disabilities, if you are not careful, you can soon get in
> to a rut and
>> get very depressed, it's very easy to let yourself go but
> keeping
>> occupied with talking books, magazines, computers, music,
> the radio
>> and of course learning french helps to keep my mind busy.
> Besides,
>> life's just far too short!!
>>
>> When I came to France, I got on ok because my name is
> french so it's
>> easy for them to say.
>>
>> Epilepsy is strange, you can have nothing for months and
> in my case
>> years, my last major sz was in 1997, but I still have the
> storms. In
>> fact the neurologist thought it was migraine but it
> definitely isn't!
>>
>>
>> Regards
>>
>> Adrien
>>
>> You can get me off list at:
>> adriencollins06@ aol.com <mailto:adriencolli ns06%40aol.
> com> or
>> adrien_collins@ yahoo.co. uk
> <mailto:adrien_ collins%40yahoo. co.uk>
>> Or
>> adrien.collins@ orange.fr
> <mailto:adrien. collins%40orange .fr>
>>
>> Speakon is a free fully self-voicing accessible multimedia
> program for
>> the visually impaired, find out more by downloading the
> software from:
>> http://www.a- technic.net/ speakon.htm
>> <http://www.a- technic.net/ speakon.htm> You can join the
> speakon user
>> group by sending a blank
> e-mail to:
>> speakon-subscribe@ yahoogroups. com
>> <mailto:speakon- subscribe% 40yahoogroups. com>
>>
>> -----Original Message-----
>> From: epilepsy@yahoogroup s.com
> <mailto:epilepsy% 40yahoogroups. com>
>> [mailto:epilepsy@
> <mailto:epilepsy% 40yahoogroups. com> ]
>> On Behalf Of mylmy@bnin.net <mailto:mylmy%
> <mailto:mylmy%
>> 40bnin.net>
>> Sent: 09 June 2009 01:02
>> To: epilepsy@yahoogroup s.com
> <mailto:epilepsy% 40yahoogroups. com>
>> Subject: RE: [epilepsy] Re: New Here
>>
>>
>>
>> Hi Adrien,
>>
>> You have got a lot on your plate -- but you don't
> complain.
>> You are fortunate that you can live with your parents --
> although I'm
>> sure there are lots of times you would like
> to
>> be on your own.
>>
>> Do you have a computer that talks to you? I knew a guy who
> was a
>> accountant. He was blind and his computer talked to him.
>>
>> When I was diagnosed (DX) 47 years ago my doctor told me
> that I could
>> be without szs for 20 years and they may come back. For
> that reason I
>> decided to would always stay on my meds.
>>
>> When I was DX 47 years ago I had 3 daughters 2, 4, and 6
> plus a
>> husband (now ex). I've learned a lot from this
> group.
>>
>> By the way-- are you male or female? In the US it could be
> either.
>>
>> Millie
>>
>>> Hi Mylmy
>>>
>>> Ok thanks for welcome to the group.
>>>
>>> Ok I live in France. I am 40 years old, live with my
>> parents because
>>> of my disabilities, I am totally blind, in a wheelchair
>> and am
>>> epileptic. All this is because I had encephalitis when I
>> was 6 years
>>> old which left me like this but you have to put it behind
>> you as much
>>> as possible and I have done just that. Ok I have bad days
>> and very
>>> good days but in the main good ones.
>>>
>>> I have the three disabilities but to be honest the
>> epilepsy is the
>>> worst because I never know when it's going to play up. I
>> have lots of
>>> things I would like to know about it, and I hope from
>> being a member
>>> of this list I perhaps would get some of my questions
>> answered.
>>>
>>> For example, when I Neal down to do anything for any
>> length of time, I
>>> start to feel fitty , I have only had major seizure when
> I
>> have been
>>> kneeling. On one occasion I was on the floor sorting out
>> my book shelf
>>> when I had a fit, what is causing this, is it lack of
>> circulation?
>>> Nothing may happen but if I meal I can guarantee that the
>> next day I
>>> am going to be fitty.
>>>
>>> I know my epilepsy is a result of the encephalitis, and
> it
>> happened
>>> over 30 years ago and the epilepsy went away for about 10
>> years but
>>> suddenly returned in 19988 and for good in 1992, that's
>> when it
>>> started getting very bad and they had to put me on
>> tegretol. Why did
>>> it go away and then return?
>>>
>>> I'll just tell you how the epilepsy effects me, firstly I
>> have
>>> grandmal seizures, I have to take 1000 mls of tegretol
>> retard daily. I
>>> get headaches, my arms jerk, my concentration goes,
> tired,
>> irritable
>>> and many other symptoms. If I'm not careful I stop
>> breathing.
>>>
>>> Ok that's enough about me for now, I look forward to
>> reading your
>>> responses. I'm find to find this group very interesting,
>> thanks for
>>> letting me join.
>>>
>>>
>>>
>>>
>>> Regards
>>>
>>> Adrien
>>>
>>> You can get me off list at:
>>> adriencollins06@ aol.com
> <mailto:adriencolli ns06%40aol. com>
> <mailto:adriencolli ns06%40aol. com>
>>> or
>>> adrien_collins@ yahoo.co. uk
> <mailto:adrien_ collins%40yahoo. co.uk>
>> <mailto:adrien_ collins%40yahoo. co.uk>
>>> Or
>>> adrien.collins@ orange.fr
> <mailto:adrien. collins%40orange .fr>
>> <mailto:adrien. collins%40orange .fr>
>>>
>>> Speakon is a free fully self-voicing accessible
> multimedia
>> program for
>>> the visually impaired, find out more by downloading the
>> software from:
>>> http://www.a- technic.net/ speakon.htm
> <http://www.a- technic.net/ speakon.htm>
>>> <http://www.a- technic.net/ speakon.htm
> <http://www.a- technic.net/ speakon.htm> >
>>> You can join the speakon user group by sending a blank
>> e-mail to:
>>> speakon-subscribe@ yahoogroups. com
> <mailto:speakon- subscribe% 40yahoogroups. com>
>>> <mailto:speakon- subscribe% 40yahoogroups. com>
>>>
>>> -----Original Message-----
>>> From: epilepsy@yahoogroup s.com
> <mailto:epilepsy% 40yahoogroups. com>
>> <mailto:epilepsy% 40yahoogroups. com>
>>> [mailto:epilepsy@
> <mailto:epilepsy% 40yahoogroups. com>
>> <mailto:epilepsy% 40yahoogroups. com> ]
>>> On Behalf Of mylmy@bnin.net <mailto:mylmy%
> <mailto:mylmy%
>>> 40bnin.net>
> <mailto:mylmy% 40bnin.net>
>>> Sent: 08 June 2009 17:41
>>> To: epilepsy@yahoogroup s.com
> <mailto:epilepsy% 40yahoogroups. com>
>> <mailto:epilepsy% 40yahoogroups. com>
>>> Subject: RE: [epilepsy] Re: New Here
>>>
>>>
>>>
>>> Hi Adrien,
>>>
>>> Welcome to our group. Tell us about your self. I too am
> controlled
>>> but I have learned a lot from this group.
>>>
>>> Millie
>>>
>>>> Hi
>>>>
>>>> I am also new to the list and I just wanted to say high
>> to
>>> you all.
>>>>
>>>> I have epilepsy myself and although it is well
> controlled
>>> I do have
>>>> problems with it so I'd be interested to read your
>>> messages over the
>>>> months ahead.
>>>>
>>>>
>>>> Regards
>>>>
>>>> Adrien
>>>>
>>>> You can get me off list at:
>>>> adriencollins06@ aol.com
> <mailto:adriencolli ns06%40aol. com>
>> <mailto:adriencolli ns06%40aol. com>
>> <mailto:adriencolli ns06%40aol. com>
>>>> or
>>>> adrien_collins@ yahoo.co. uk
> <mailto:adrien_ collins%40yahoo. co.uk>
>> <mailto:adrien_ collins%40yahoo. co.uk>
>>> <mailto:adrien_ collins%40yahoo. co.uk>
>>>> Or
>>>> adrien.collins@ orange.fr
> <mailto:adrien. collins%40orange .fr>
>> <mailto:adrien. collins%40orange .fr>
>>> <mailto:adrien. collins%40orange .fr>
>>>>
>>>> Speakon is a free fully self-voicing accessible
>> multimedia
>>> program for
>>>> the visually impaired, find out more by downloading the
>>> software from:
>>>> http://www.a- technic.net/ speakon.htm
> <http://www.a- technic.net/ speakon.htm>
>> <http://www.a- technic.net/ speakon.htm
> <http://www.a- technic.net/ speakon.htm> >
>>>> <http://www.a- technic.net/ speakon.htm
> <http://www.a- technic.net/ speakon.htm>
>> <http://www.a- technic.net/ speakon.htm
> <http://www.a- technic.net/ speakon.htm> > >
>>>> You can join the speakon user group by sending a blank
>>> e-mail to:
>>>> speakon-subscribe@ yahoogroups. com
> <mailto:speakon- subscribe% 40yahoogroups. com>
>> <mailto:speakon- subscribe% 40yahoogroups. com>
>>>> <mailto:speakon- subscribe% 40yahoogroups. com>
>>>>
>>>> -----Original Message-----
>>>> From: epilepsy@yahoogroup s.com
> <mailto:epilepsy% 40yahoogroups. com>
>> <mailto:epilepsy% 40yahoogroups. com>
>>> <mailto:epilepsy% 40yahoogroups. com>
>>>> [mailto:epilepsy@
> <mailto:epilepsy% 40yahoogroups. com>
>> <mailto:epilepsy% 40yahoogroups. com>
>>> <mailto:epilepsy% 40yahoogroups. com> ]
>>>> On Behalf Of Laura Gresham
>>>> Sent: 08 June 2009 02:19
>>>> To: epilepsy@yahoogroup s.com
> <mailto:epilepsy% 40yahoogroups. com>
>> <mailto:epilepsy% 40yahoogroups. com>
>>> <mailto:epilepsy% 40yahoogroups. com>
>>>> Subject: Re: [epilepsy] Re: New Here
>>>>
>>>>
>>>>
>>>> i will have to ask his speech therapist about that when
>>> school starts.
>>>> we have gotten to where we can kind of read his body
>>> language when he
>>>> doesn't talk. it's so sad.
>>>>
>>>> ____________ _________ _________ __
>>>> From: Elizabeth Last NameSilva <elizabethkaron@
> yahoo.com
> <mailto:elizabethka ron%40yahoo. com>
>> <mailto:elizabethka ron%40yahoo. com>
>>>> <mailto:elizabethka ron%40yahoo. com>
> <mailto:elizabethka
>>>> ron%40yahoo. com> >
>>>> To: epilepsy@yahoogroup s.com
> <mailto:epilepsy% 40yahoogroups. com>
>> <mailto:epilepsy% 40yahoogroups. com>
>>> <mailto:epilepsy% 40yahoogroups. com>
>>>> <mailto:epilepsy% 40yahoogroups. com>
>>>> Cc: elizabethkaron@ yahoo.com
> <mailto:elizabethka ron%40yahoo. com>
>> <mailto:elizabethka ron%40yahoo. com>
>>> <mailto:elizabethka ron%40yahoo. com>
>>>> <mailto:elizabethka ron%40yahoo. com>
>>>> Sent: Sunday, June 7, 2009 6:32:14 PM
>>>> Subject: Re: [epilepsy] Re: New Here
>>>>
>>>> between the childhood aphasia (like adult altizmers Im
>>> sorry I can't
>>>> spell very good this evening) and her anxiety thats what
>>> the speech
>>>> therapist diagnosed it as. She does get it back its just
>>> frustrating
>>>> as can be till it happens.
>>>>
>>>> ____________ _________ _________ __
>>>> From: Laura Gresham <greshamlaura@ yahoo.com>
>>>> To: epilepsy@yahoogroup s.com
>>>> Sent: Sunday, June 7, 2009 5:55:56 PM
>>>> Subject: Re: [epilepsy] Re: New Here
>>>>
>>>> I was never told that is what it was. My little Aeidan
>>> goes days
>>>> without talking also, generally after heavy seizure
>>> activity or too
>>>> much excitement (i.e. being in the sun).
>>>> Laura
>>>>
>>>> ____________ _________ _________ __
>>>> From: Elizabeth Last NameSilva <elizabethkaron@
>> yahoo.com>
>>>> To: epilepsy@yahoogroup s.com
>>>> Cc: elizabethkaron@ yahoo.com
>>>> Sent: Sunday, June 7, 2009 4:15:54 PM
>>>> Subject: Re: [epilepsy] Re: New Here
>>>>
>>>> My 6 and half year old daughter is unable to talk at
>> times
>>> after her
>>>> seizures.. They said she has childs apasia bout the same
>>> thing your
>>>> talking about. It takes up to 48 hours to regain her
> full
>>> functioning
>>>> conversations back. But she does get it back.
>>>>
>>>>
>>>>
>>>> ____________ _________ _________ __
>>>> From: "mylmy@bnin.net <mailto:mylmy%
> <mailto:mylmy%
>>>> 40bnin.net>
> <mailto:mylmy% 40bnin.net>
>> <mailto:mylmy% 40bnin.net>
>>> <mailto:mylmy% 40bnin.net> "
>>>> <mylmy@bnin.net <mailto:mylmy%
> <mailto:mylmy%
>>>> 40bnin.net>
> <mailto:mylmy% 40bnin.net>
>> <mailto:mylmy% 40bnin.net>
>>> <mailto:mylmy% 40bnin.net> >
>>>> To: epilepsy@yahoogroup s.com
>>>> Sent: Sunday, June 7, 2009 3:36:58 PM
>>>> Subject: Re: [epilepsy] Re: New Here
>>>>
>>>> Nancy,
>>>>
>>>> Yes, my doctor knows this because my daughters call him
>> or
>>> his stand
>>>> in after they have been called. He has never seen me
> when
>>> I can't
>>>> talk. (It usually happened on a weekend and he is not
>>> available) to
>>>> see me anyway.
>>>>
>>>> 6 years ago I was admitted to the hospital and had an
>> MRI,
>>> Ultra
>>>> Sound, CScan and an EEG. Then he thought I had a TIA
>>> (small stroke)
>>>> but everything happened like before. The last time 2
>> years
>>> ago I asked
>>>> him if it was a TIA or a sz. He thought it was a sz. He
>>> didn't see me
>>>> either time until Monday morning.
>>>>
>>>> I usually go in Monday morning and he checks me out. By
>>> then I am
>>>> talking again but he can tell that I am not quite my
>> usual
>>> self and I
>>>> am not to drive. Between my daughter and I
>>>> -- we tell him what happened. (At least what little I
>>> remember and
>>>> whatever anyone else has seen of me). He sends me to get
>> a
>>> blood test
>>>> to see if my meds are low.
>>>>
>>>> You will have to remember I don't have many szs. My last
>>> one was 2
>>>> years ago and before that it was 4 years.
>>>>
>>>> Millie
>>>>
>>>>> does your dr. understand this.. maybe I should see
>>>> another dr but he
>>>>> is suppose to be the best. Nancy
>>>>>
>>>>>
>>>>>
>>>>>
>>>>> ____________ _________ _________ __
>>>>> From: "mylmy@bnin.net <mailto:mylmy%
> <mailto:mylmy%
>>>>> 40bnin.net>
> <mailto:mylmy% 40bnin.net>
>> <mailto:mylmy% 40bnin.net>
>>> <mailto:mylmy% 40bnin.net> "
>>>> <mylmy@bnin.net <mailto:mylmy%
> <mailto:mylmy%
>>>> 40bnin.net>
> <mailto:mylmy% 40bnin.net>
>> <mailto:mylmy% 40bnin.net>
>>>>> <mailto:mylmy% 40bnin.net> >
>>>>> To: epilepsy@yahoogroup s.com
>>>>> Sent: Sunday, June 7, 2009 1:31:34 AM
>>>>> Subject: Re: [epilepsy] Re: New Here
>>>>>
>>>>>
>>>>>
>>>>>
>>>>>
>>>>> Nancy ,
>>>>>
>>>>> When I was diagnosed (DX) 47 years ago I had grand mal
>>>> szs.
>>>>>
>>>>> About 15 years ago they changed to more like complex
>>>> partials--
>>>>> according to what I read. I start out by acting like I
>>>> don't hear you.
>>>>> Since I live alone I sleep a lot. Other wise I am
>>> probably
>>>> sleep
>>>>> deprived. I walk to places I don't remember later. If I
>>> do
>>>> talk my
>>>>> friends know I am not my usual self. Then I have
> trouble
>>>> talking (my
>>>>> brain isn't working right.)-- then I can't talk at all.
>>>>> This is usually over the course of 2 days. My girls say
>>> my
>>>> brain is
>>>>> scrambled. -- Then like a light switch-- my brain turns
>>> on
>>>> again.
>>>>>
>>>>> I have sent out instructions to people in my building
>>> that
>>>> when I am
>>>>> not my acting my normal self -- to call my 2 daughters
>>> who
>>>> live in town.
>>>>> It takes about a week to be my usual self. My last one
>>> was
>>>> 2 years ago.
>>>>>
>>>>> Millie
>>>>>
>>>>>> thanks for the input that I have complex partial
>> seizues
>>>> or tempole
>>>>>> lobe.
>>>>>> as my dr really does not know. but I do not pass out.
>>>> after I have
>>>>>> one I am feeling reallyweird, like everything is
> really
>>>> far away.
>>>>>> even things up close are far away. and most of the
> time
>>>> it last all
>>>>>> day. It affects my eyes as I can not see. sometimes it
>>>> is in just
>>>>>> my right eye and sometimes in both. He did say the
>> right
>>>> side of my
>>>>>> head is worse, by all thetes he has giving me. Most of
>>>> the time I
>>>>>> know I amhaving having one but alot of times it just
>>>> comes on me and
>>>>>> it is crazy. is there anyone else that has these
>>> simtoms.
>>>>>>
>>>>>>
>>>>>
>>>>>
>>>>>
>>>>>
>>>>>
>>>>>
>>>>> [Non-text portions of this message have been removed]
>>>>>
>>>>>
>>>>
>>>> [Non-text portions of this message have been removed]
>>>>
>>>> [Non-text portions of this message have been removed]
>>>>
>>>> [Non-text portions of this message have been removed]
>>>>
>>>> __.._,_.___
>>>> Messages in this topic (72) Reply (via web post) | Start
>> a
>>> new topic
>>>> Messages | Files | Photos | Links | Database | Polls |
>>> Members |
>>>> Calendar Just a friendly reminder: Please remember to
>> sign
>>> your post
>>>> and remember to clean up messages when you reply to
> them.
>>> This is
>>>> especially important if you are on digest. This not only
>>> helps out the
>>>> list owner but, it makes messages much easier to read
>> when
>>> they arrive
>>>> in our inboxes.
>>>>
>>>> Change settings via the Web (Yahoo! ID required) Change
>>> settings via
>>>> email: Switch delivery to Daily Digest | Switch format
> to
>>> Traditional
>>>> Visit Your Group | Yahoo! Groups Terms of Use |
>>> Unsubscribe Recent
>>>> Activity
>>>> * 22
>>>> New Members
>>>> * 1
>>>> New LinksVisit Your Group
>>>> Give Back
>>>> Yahoo! for Good
>>>> Get inspired
>>>> by a good cause.
>>>> Y! Toolbar
>>>> Get it Free!
>>>> easy 1-click access
>>>> to your groups.
>>>> Yahoo! Groups
>>>> Start a group
>>>> in 3 easy steps.
>>>> Connect with others.
>>>> .
>>>>
>>>> __,_.._,___
>>>>
>>>> [Non-text portions of this message have been removed]
>>>>
>>>>
>>>>
>>>>
>>>>
>>>>
>>>
>>>
>>>
>>>
>>>
>>>
>>
>>
>>
>>
>>
>>
>
> [Non-text portions of this message have been removed]
>
>
>
>
>
>
Change settings via the Web (Yahoo! ID required)
Change settings via email: Switch delivery to Daily Digest | Switch format to Traditional
Visit Your Group | Yahoo! Groups Terms of Use | Unsubscribe
No comments:
Post a Comment