Hi Tammy
Thanks for the warm welcome, the same applies, I enjoy
chatting to people, either by e-mail or face to face, I just
like meeting people. I suppose it's good because life is
just too short as it is.
I have only been a member of this group for 24 hours and I'm
finding it very interesting.
Take care all.
Regards
Adrien
You can get me off list at:
adriencollins06@
or
adrien_collins@
Or
adrien.collins@
Speakon is a free fully self-voicing accessible multimedia
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-----Original Message-----
From: epilepsy@yahoogroup
[mailto:epilepsy@yahoogroup
tds.net
Sent: 08 June 2009 23:24
To: epilepsy@yahoogroup
Subject: Re: [epilepsy] Re: New Here
Adrien,
Welcome to the group. I have complex partial seizures that I
have had for about 40 years now.They were from a head injury
when I was a baby.My seizures are not controlled. I had
surgery back in 2004, but even though it made them a lot
better than they used to be, I still have them. Stress and
hormones seem to play a big part in the ones I have now.
There is plenty of information and friends here. If I can
help in any way, write anytime.Take care.
Tammy
On Mon, Jun 8, 2009 at 10:56 AM, Adrien
<adriencollins22160@
<mailto:adriencolli
>
>
> Hi
>
> I am also new to the list and I just wanted to say high to
you all.
>
> I have epilepsy myself and although it is well controlled
I do have
> problems with it so I'd be interested to read your
messages over the
> months ahead.
>
> Regards
>
> Adrien
>
> You can get me off list at:
> adriencollins06@
> <adriencollins06%
> <mailto:adrien_
<adrien_collins%
> Or adrien.collins@
<mailto:adrien.
> <adrien.collins%
>
> Speakon is a free fully self-voicing accessible multimedia
program for
> the visually impaired, find out more by downloading the
software from:
> http://www.a-
> <http://www.a-
> You can join the speakon user group by sending a blank
e-mail to:
> speakon-subscribe@
> <mailto:speakon-
> <speakon-subscribe%
>
> -----Original Message-----
> From: epilepsy@yahoogroup
<mailto:epilepsy%
> <epilepsy%40yahoogr
[mailto:epilepsy@yahoogroup
> <mailto:epilepsy%
<epilepsy%40yahoogr
> Behalf Of Laura Gresham
> Sent: 08 June 2009 02:19
> To: epilepsy@yahoogroup
<mailto:epilepsy%
> <epilepsy%40yahoogr
> Subject: Re: [epilepsy] Re: New Here
>
> i will have to ask his speech therapist about that when
school starts.
> we have gotten to where we can kind of read his body
language when he
> doesn't talk. it's so sad.
>
> ____________
> From: Elizabeth Last NameSilva <elizabethkaron@
> <mailto:elizabethka
<elizabethkaron%
> <mailto:elizabethka
<elizabethkaron%
> To: epilepsy@yahoogroup
<mailto:epilepsy%
> <epilepsy%40yahoogr
<mailto:epilepsy%
> <epilepsy%2540yahoo
> Cc: elizabethkaron@
<mailto:elizabethka
> <elizabethkaron%
<mailto:elizabethka
> <elizabethkaron%
> Sent: Sunday, June 7, 2009 6:32:14 PM
> Subject: Re: [epilepsy] Re: New Here
>
> between the childhood aphasia (like adult altizmers Im
sorry I can't
> spell very good this evening) and her anxiety thats what
the speech
> therapist diagnosed it as. She does get it back its just
frustrating
> as can be till it happens.
>
> ____________ _________ _________ __
> From: Laura Gresham <greshamlaura@ yahoo.com>
> To: epilepsy@yahoogroup s.com
> Sent: Sunday, June 7, 2009 5:55:56 PM
> Subject: Re: [epilepsy] Re: New Here
>
> I was never told that is what it was. My little Aeidan
goes days
> without talking also, generally after heavy seizure
activity or too
> much excitement (i.e. being in the sun).
> Laura
>
> ____________ _________ _________ __
> From: Elizabeth Last NameSilva <elizabethkaron@ yahoo.com>
> To: epilepsy@yahoogroup s.com
> Cc: elizabethkaron@ yahoo.com
> Sent: Sunday, June 7, 2009 4:15:54 PM
> Subject: Re: [epilepsy] Re: New Here
>
> My 6 and half year old daughter is unable to talk at times
after her
> seizures.. They said she has childs apasia bout the same
thing your
> talking about. It takes up to 48 hours to regain her full
functioning
> conversations back. But she does get it back.
>
> ____________ _________ _________ __
> From: "mylmy@bnin.net <mailto:mylmy%
<mylmy%40bnin.
> <mailto:mylmy%
> "
> <mylmy@bnin.net <mailto:mylmy%
<mylmy%40bnin.
> <mailto:mylmy%
> >
> To: epilepsy@yahoogroup s.com
> Sent: Sunday, June 7, 2009 3:36:58 PM
> Subject: Re: [epilepsy] Re: New Here
>
> Nancy,
>
> Yes, my doctor knows this because my daughters call him or
his stand
> in after they have been called. He has never seen me when
I can't
> talk. (It usually happened on a weekend and he is not
available) to
> see me anyway.
>
> 6 years ago I was admitted to the hospital and had an MRI,
Ultra
> Sound, CScan and an EEG. Then he thought I had a TIA
(small stroke)
> but everything happened like before. The last time 2 years
ago I asked
> him if it was a TIA or a sz. He thought it was a sz. He
didn't see me
> either time until Monday morning.
>
> I usually go in Monday morning and he checks me out. By
then I am
> talking again but he can tell that I am not quite my usual
self and I
> am not to drive. Between my daughter and I
> -- we tell him what happened. (At least what little I
remember and
> whatever anyone else has seen of me). He sends me to get a
blood test
> to see if my meds are low.
>
> You will have to remember I don't have many szs. My last
one was 2
> years ago and before that it was 4 years.
>
> Millie
>
> > does your dr. understand this.. maybe I should see
> another dr but he
> > is suppose to be the best. Nancy
> >
> >
> >
> >
> > ____________ _________ _________ __
> > From: "mylmy@bnin.net <mailto:mylmy%
<mylmy%40bnin.
> > <mailto:mylmy%
> "
> <mylmy@bnin.net <mailto:mylmy%
<mylmy%40bnin.
> > <mailto:mylmy%
> > To: epilepsy@yahoogroup s.com
> > Sent: Sunday, June 7, 2009 1:31:34 AM
> > Subject: Re: [epilepsy] Re: New Here
> >
> >
> >
> >
> >
> > Nancy ,
> >
> > When I was diagnosed (DX) 47 years ago I had grand mal
> szs.
> >
> > About 15 years ago they changed to more like complex
> partials--
> > according to what I read. I start out by acting like I
> don't hear you.
> > Since I live alone I sleep a lot. Other wise I am
probably
> sleep
> > deprived. I walk to places I don't remember later. If I
do
> talk my
> > friends know I am not my usual self. Then I have trouble
> talking (my
> > brain isn't working right.)-- then I can't talk at all.
> > This is usually over the course of 2 days. My girls say
my
> brain is
> > scrambled. -- Then like a light switch-- my brain turns
on
> again.
> >
> > I have sent out instructions to people in my building
that
> when I am
> > not my acting my normal self -- to call my 2 daughters
who
> live in town.
> > It takes about a week to be my usual self. My last one
was
> 2 years ago.
> >
> > Millie
> >
> >> thanks for the input that I have complex partial
seizues
> or tempole
> >> lobe.
> >> as my dr really does not know. but I do not pass out.
> after I have
> >> one I am feeling reallyweird, like everything is really
> far away.
> >> even things up close are far away. and most of the time
> it last all
> >> day. It affects my eyes as I can not see. sometimes it
> is in just
> >> my right eye and sometimes in both. He did say the
right
> side of my
> >> head is worse, by all thetes he has giving me. Most of
> the time I
> >> know I amhaving having one but alot of times it just
> comes on me and
> >> it is crazy. is there anyone else that has these
simtoms.
> >>
> >>
> >
> >
> >
> >
> >
> >
> > [Non-text portions of this message have been removed]
> >
> >
>
> [Non-text portions of this message have been removed]
>
> [Non-text portions of this message have been removed]
>
> [Non-text portions of this message have been removed]
>
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