Hi, there! My Aeidan sees Dr. Wilfong at TCH for LGS. Where are you guys located? We are in San Antonio. What is her diagnosis? Laura
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From: tim holt <tim_stacie77316@
To: epilepsy@yahoogroup
Sent: Thursday, June 11, 2009 5:18:27 PM
Subject: Re: [epilepsy] Re: Keppra
We go to the Blue Bird Clinic at TCH. I demand lab work. My mom has a seizure disorder also and I can remeber as a little girl when the doctors did not check yer levels and she got very ill. But about my daughter and her levels how do they know when the dosage is correct if it is not being monitored. They do have to increase it as they grow and get bigger. Her Nur pulls out her little cheat chart and goes by weight and size to make sure everything is up to par. The last Nero did not check levels and when we started he did not check labs but when we changed clinics she was not getting enough for her weight and she was having seizures still. We have now gotten Diastat for break through seizures last longer then 5 min and cluster seizures. I am sure the school district will love that.
--- On Thu, 6/11/09, Dawn <dgroeschen@
From: Dawn <dgroeschen@
Subject: [epilepsy] Re: Keppra
To: epilepsy@yahoogroup s.com
Date: Thursday, June 11, 2009, 3:10 PM
Her levels were checked for Keppra? My son's neurologist said there is no need to check the blood for the Keppra because it is mostly out of his system in 24 hours. I'm just wondering if we should have his blood checked. It wouldn't be any big deal, as he already has his blood drawn every three months for his diabetes.
Dawn, mom to:
Joshua (9/15/1997, microphthalmia/ phpv/prosthetic left eye) and
Jonathon (10/28/1998, type 1 <insulin-dependent> diabetes, epilepsy and migraines)
--- In epilepsy@yahoogroup s.com, tim holt <tim_stacie77316@ ...> wrote:
>
> Yes her levels were just checked and they are with intheraputic ranges.
>
> --- On Thu, 6/11/09, Cindy Sodemann <shandril18969@ ...> wrote:
>
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> From: Cindy Sodemann <shandril18969@ ...>
> Subject: RE: [epilepsy] Re: Keppra
> To: epilepsy@yahoogroup s.com
> Date: Thursday, June 11, 2009, 1:51 PM
>
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> Is the medication working for her?
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> --- On Thu, 6/11/09, Sandy <sande989@yahoo. com> wrote:
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> From: Sandy <sande989@yahoo. com>
> Subject: RE: [epilepsy] Re: Keppra
> To: epilepsy@yahoogroup s.com
> Date: Thursday, June 11, 2009, 2:44 PM
>
> My daughter is 4 and I would break the pills in half and get her to drink as much as she could with a straw. She has been swallowing pills since she was 2. You just have to work with them.
>
> -----Original Message-----
> From: Cindy Sodemann <shandril18969@ yahoo.com>
> Sent: Thursday, June 11, 2009 11:23 AM
> To: epilepsy@yahoogroup s.com
> Subject: Re: [epilepsy] Re: Keppra
>
> Why not just get the liquid form & mix it in chocolate milk?
> That's what I do for my 4 year old. He gets a little treat every AM and PM that way :)
>
> Does the Keppra control her seizures? Is it brand name or generic?
> My son is on generic & is not controlled.
>
>
> --- On Thu, 6/11/09, dandprider <dandprider@ yahoo.. com> wrote:
>
> From: dandprider <dandprider@ yahoo. com>
> Subject: [epilepsy] Re: Keppra
> To: epilepsy@yahoogroup s.com
> Date: Thursday, June 11, 2009, 11:04 AM
>
> --- In epilepsy@yahoogroup s.com, "tim_stacie77316" <tim_stacie77316@ ...> wrote:
> >
> > Does anybody that takes Keppra or the generic crush it? My pharmasist had a major cow about having to put ok to crush on my daughter's bottles to take to camp. There is no way she can swollow that exta large pill and the liquid just make her sick.
> >
> My daughter is Six and we crush her keppra. some pharmacists say not to crush it but others say it is fine. I tried liquid mixed with food and crushing and mixing with food, it works the same. I never noticed a difference. You could just send a pill crusher to camp. Patricia
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