We saw Dr. Rotenburg in San Antonio. He was very nice and patient with my daught who at the time was 4 years old.
____________
From: Laura Gresham <greshamlaura@
To: epilepsy@yahoogroup
Sent: Saturday, June 13, 2009 1:49:57 AM
Subject: Re: [epilepsy] Re: Keppra
Thank you guys so much for the names!!! Have you guys heard of either a great neuro or behavioral psychiatrist in San Antonio? We see Dr. Tomasovic for local neuro probs, and do not have a psych as of yet. Aeidan (5) has Lennox-Gastaut Syndrome, which spawns numerous other issues (i.e. migraines, sleep apnea, autistic tendencies, etc., etc., etc.). His Pediatrician, Dr. Cheryl Trexler, is FABULOUS!!!! !!!!!!!!! !!!!!!!!! ! She goes above and beyone for him. In fact, she'll call and check on him, if we haven't been in for a while. I love how she is very... proactive! And loving...... ......... ..... A good Christian woman. Bless her heart, she called me one day out of the blue. I thought there was something wrong w/ some tests we just took. Instead, she wanted to invite me to an ACTS retreat w/ her church. Anyways... I think it is the hour of the morning causing me to ramble. Question: Has anyone ever felt their doctors do not
know
what else to do and are stuck? That is how I feel w/ his neuro. Laura
____________ _________ _________ __
From: Tristin Seagraves <tristinspike26@ yahoo.com>
To: epilepsy@yahoogroup s.com
Sent: Friday, June 12, 2009 11:37:44 AM
Subject: Re: [epilepsy] Re: Keppra
Dr.. Bobelle in Corpus Christi is really good too. He's a pediatric neurologist. I lived in Rockport, TX for about a year... 2001-2002. That's how I know him. Also, Dr. Mark Lee is a neurosurgeon in Austin, TX... Seton Healthcare. He just transferred there from Augusta, GA. He did my surgery. I think they are both quite a long drive away from you though.
And just in case you're wondering... I'm in Athens, GA.
Later,
Tristin :)
--- On Thu, 6/11/09, tim holt <tim_stacie77316@ yahoo.com> wrote:
From: tim holt <tim_stacie77316@ yahoo.com>
Subject: Re: [epilepsy] Re: Keppra
To: epilepsy@yahoogroup s.com
Date: Thursday, June 11, 2009, 10:45 PM
Kate has a general seizure disorder. We see Terry Lyn Ingles at TCH in Houston. She is the 2 neru we have seen.. She is great she does her SZ disorder, Sleep APnea and Migraines. Some people with all these see different drs.Stacie
--- On Thu, 6/11/09, Laura Gresham <greshamlaura@ yahoo.com> wrote:
From: Laura Gresham <greshamlaura@ yahoo.com>
Subject: Re: [epilepsy] Re: Keppra
To: epilepsy@yahoogroup s.com
Date: Thursday, June 11, 2009, 9:36 PM
Hi, there! My Aeidan sees Dr. Wilfong at TCH for LGS. Where are you guys located? We are in San Antonio. What is her diagnosis? Laura
____________ _________ _________ __
From: tim holt <tim_stacie77316@ yahoo.com>
To: epilepsy@yahoogroup s.com
Sent: Thursday, June 11, 2009 5:18:27 PM
Subject: Re: [epilepsy] Re: Keppra
We go to the Blue Bird Clinic at TCH. I demand lab work. My mom has a seizure disorder also and I can remeber as a little girl when the doctors did not check yer levels and she got very ill. But about my daughter and her levels how do they know when the dosage is correct if it is not being monitored. They do have to increase it as they grow and get bigger. Her Nur pulls out her little cheat chart and goes by weight and size to make sure everything is up to par. The last Nero did not check levels and when we started he did not check labs but when we changed clinics she was not getting enough for her weight and she was having seizures still. We have now gotten Diastat for break through seizures last longer then 5 min and cluster seizures. I am sure the school district will love that.
--- On Thu, 6/11/09, Dawn <dgroeschen@ straitsc orp.com> wrote:
From: Dawn <dgroeschen@ straitsc orp.com>
Subject: [epilepsy] Re: Keppra
To: epilepsy@yahoogroup s.com
Date: Thursday, June 11, 2009, 3:10 PM
Her levels were checked for Keppra? My son's neurologist said there is no need to check the blood for the Keppra because it is mostly out of his system in 24 hours. I'm just wondering if we should have his blood checked. It wouldn't be any big deal, as he already has his blood drawn every three months for his diabetes.
Dawn, mom to:
Joshua (9/15/1997, microphthalmia/ phpv/prosthetic left eye) and
Jonathon (10/28/1998, type 1 <insulin-dependent> diabetes, epilepsy and migraines)
--- In epilepsy@yahoogroup s.com, tim holt <tim_stacie77316@ ...> wrote:
>
> Yes her levels were just checked and they are with intheraputic ranges.
>
> --- On Thu, 6/11/09, Cindy Sodemann <shandril18969@ ...> wrote:
>
>
> From: Cindy Sodemann <shandril18969@ ...>
> Subject: RE: [epilepsy] Re: Keppra
> To: epilepsy@yahoogroup s.com
> Date: Thursday, June 11, 2009, 1:51 PM
>
>
>
>
>
>
>
>
> Is the medication working for her?
>
> --- On Thu, 6/11/09, Sandy <sande989@yahoo. com> wrote:
>
> From: Sandy <sande989@yahoo. com>
> Subject: RE: [epilepsy] Re: Keppra
> To: epilepsy@yahoogroup s.com
> Date: Thursday, June 11, 2009, 2:44 PM
>
> My daughter is 4 and I would break the pills in half and get her to drink as much as she could with a straw. She has been swallowing pills since she was 2. You just have to work with them.
>
> -----Original Message-----
> From: Cindy Sodemann <shandril18969@ yahoo.com>
> Sent: Thursday, June 11, 2009 11:23 AM
> To: epilepsy@yahoogroup s.com
> Subject: Re: [epilepsy] Re: Keppra
>
> Why not just get the liquid form & mix it in chocolate milk?
> That's what I do for my 4 year old. He gets a little treat every AM and PM that way :)
>
> Does the Keppra control her seizures? Is it brand name or generic?
> My son is on generic & is not controlled.
>
>
> --- On Thu, 6/11/09, dandprider <dandprider@ yahoo.. com> wrote:
>
> From: dandprider <dandprider@ yahoo. com>
> Subject: [epilepsy] Re: Keppra
> To: epilepsy@yahoogroup s.com
> Date: Thursday, June 11, 2009, 11:04 AM
>
> --- In epilepsy@yahoogroup s.com, "tim_stacie77316" <tim_stacie77316@ ...> wrote:
> >
> > Does anybody that takes Keppra or the generic crush it? My pharmasist had a major cow about having to put ok to crush on my daughter's bottles to take to camp. There is no way she can swollow that exta large pill and the liquid just make her sick.
> >
> My daughter is Six and we crush her keppra. some pharmacists say not to crush it but others say it is fine. I tried liquid mixed with food and crushing and mixing with food, it works the same. I never noticed a difference. You could just send a pill crusher to camp. Patricia
>
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