Wednesday, June 17, 2009

Re: [epilepsy] Re: Facing epilepsy from 15 years



Aamir,

Is that your first name? Not having a sz for 3 years is
fantastic! I used to be afraid but I got over it when I
told myself " I am taking my meds -- and I am OK." If I
would have a sz -- again -- I would just start over.

Don't let having EP keep you from enjoying life. fear of
having a sz can bring one on. Decide what you would like to
do and enjoy it. Do you have a family?

My last sz was 2 years ago and before it was 4. I just
retired from being being a home health aid for 25 years,
I drive, do volunteer work here at the retirement center
where I live and am on a couple committees here at the center.

I have an apartment of a kitchen, living room . bedroom,
and bath and enjoy doing meny things.

In what way are you dependent on others?
What do you like to do?

Millie

> Millie,
>
> I did not have sz from last three years. Before that wheh i have sz. it
> was happen at day time  sitting or sometime sleeping.
> I know i dont have sz  from three years but you know the fear ofsz is
> always be with me from missing any dose.
>
> --- On Wed, 6/17/09, mylmy@bnin.net <mylmy@bnin.net> wrote:
>
>
> From: mylmy@bnin.net <mylmy@bnin.net>
> Subject: Re: [epilepsy] Re: Facing epilepsy from 15 years
> To: epilepsy@yahoogroups.com
> Date: Wednesday, June 17, 2009, 4:11 PM
>
>
>
>
>
>
>
>
> Aamir,
>
> I'm trying to remember where you live. It is either India
> or Pakistan-- right? Here in the U.S. each state has laws of how long a
> period must pass after a sz that you can drive. Do you have any laws like
> that there? Here it is usually between 3 or 12 months.
>
> How often do you have a sz? What kind of sz do you have?
>
> Millie
>
>> Martha/Millie,
>>  
>> Sorry for my such a bad response with you people. I am getting alot frm
>> this community. But you know very well when you have in this disease you
>> will be dependent on others in many ways. you can not drive you cannot
>> go
>> alone. these things hurts that i am not like a
>> common man and people just give you sympathies.
>>  
>>  
>> Amir
>>
>> --- On Wed, 6/17/09, Martha Wilson-Harris <macarimo@gmail. com> wrote:
>>
>>
>> From: Martha Wilson-Harris <macarimo@gmail. com>
>> Subject: Re: [epilepsy] Re: Facing epilepsy from 15 years
>> To: epilepsy@yahoogroup s.com
>> Date: Wednesday, June 17, 2009, 9:55 AM
>>
>>
>>
>>
>>
>>
>>
>>
>> Hi. This is Martha. I have TLE. When I have my seizures, I feel very
>> much
>> alone and out of place after I have had one or two. They leave me
>> feeling
>> sick, tired, sometimes sore, sometimes paralyzed as I have brain damag
>> too.
>> This group has been very helpful to learn of all of the people who have
>> seizures that I may not be able to converse with, but atleast I can
>> email
>> back and forth with. That does help on the days when I am alone.
>>
>> On Wed, Jun 17, 2009 at 10:28 AM, neraymond2010 <neraymond2010@
>> yahoo.com>wrote:
>>
>>>
>>>
>>> yeah that is why i joined so maybe people will understand what i go
>>> through
>>> when i have issues with my seizures. Does anyone ever feel like they
>>> useless
>>> at time after seizures happen or issues with them and your family
>>> doesnt
>>> quite understand. I try to explain it but sometimes they don't get it I
>>> know
>>> people on here will understand more. Yes so many different kinds of
>>> meds
>>> i
>>> have found but mine is such a high dose. I take 1000mg Dilantin daily.
>>> DOes
>>> any take that high of a dose or similar on other meds?
>>>
>>> --- In epilepsy@yahoogroup s.com <epilepsy%40yahoogr oups.com> ,
>>> mylmy@....
>>> wrote:
>>> >
>>> > Aamir,
>>> >
>>> > We join this group for the support of people who are going
>>> > thru the same things we are. It just helps that we are not
>>> > the only one who has szs.
>>> >
>>> > As you read the messages you will find that there are many kinds
>>> > kinds of szs and many kind of meds. Each person has to find
>>> > the med for them.
>>> >
>>> > Millie
>>> >
>>> >
>>> >
>>> >
>>> >
>>> >
>>> > > Why this is uncurable and if it is not then why you people join ths
>>> group.
>>> > >
>>> > > --- On Fri, 6/5/09, Nancy Livesay <nlivesay1801@ ...> wrote:
>>> > >
>>> > >
>>> > > From: Nancy Livesay <nlivesay1801@ ...>
>>> > > Subject: Re: [epilepsy] Facing epilepsy from 15 years
>>> > > To: epilepsy@yahoogroup s.com <epilepsy%40yahoogr oups.com>
>>> > > Date: Friday, June 5, 2009, 12:34 PM
>>> > >
>>> > >
>>> > >
>>> > >
>>> > >
>>> > >
>>> > >
>>> > >
>>> > > This is not cureable.will probaly have it for therest of your life.
>>> > >
>>> > > ____________ _________ _________ __
>>> > > From: aryan_ami <aryan_ami@yahoo. com>
>>> > > To: epilepsy@yahoogroup s.com
>>> > > Sent: Friday, June 5, 2009 12:07:48 PM
>>> > > Subject: [epilepsy] Facing epilepsy from 15 years
>>> > >
>>> > > Dears,
>>> > >
>>> > > My name is Aamir. I am from Pakistan. I am 27 year old doing job in
>>> a
>>> > > local bank. I have done MBA finance. But with all this i am facing
>>> > > epilepsy from 15 years. I have no fit from last 2 and half years. i
>>> am
>>> > > taking Epival CR which contains divalprox sodium from Last five to
>>> seven
>>> > > years. I have visited many doctors here but in vain. What can i do
>>> to
>>> > > prevent from this disease and what measures should i taken to cure
>>> this
>>> > > desease
>>> > >
>>> > > Please Help me in this regard
>>> > >
>>> > > Thank you
>>> > >
>>> > > [Non-text portions of this message have been removed]
>>> > >
>>> > >
>>> > >
>>> > >
>>> > >
>>> > >
>>> > >
>>> > >
>>> > >
>>> > >
>>> > >
>>> > >
>>> > >
>>> > >
>>> > >
>>> > >
>>> > >
>>> > >
>>> > >
>>> > > [Non-text portions of this message have been removed]
>>> > >
>>> > >
>>> >
>>>
>>>
>>>
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