Corrina,
Do you wear a Medical Alert bracelet saying you have EP?
You have got to let people know what happens when you have a sz.
Do you talk to people on the bus?
Millie
> ---yes--I have a "talk therapist" this is really a psy social worker, she
> does counselling but cant prescribe--for the meds I need that woman dr.
> who suspected it was ep all along. I think I described my sz as being
> "frozen" shaking but aware what is around me only I am unable to move
> otherwise or respond until sz passes.. Usually this is generated by noise.
> I had one of these spells today at a bus depot where there buses were
> wheezing pocketa pocketa pocketa for 5 min before going on their route and
> I mised my own bus bec I didnt get out of the "spell" in time. Nobody
> around me noticed or if they did, they wouldnt give a #%&^$!! Corinna
>
>
> In epilepsy@yahoogroup
>>
>> Hi Corrina,
>>
>> Welcome to our group.
>>
>> What is PTSD? With your childhood I can see where you would
>> have nightmares - just like men who come home from battle have
>> nite mares.
>>
>> Are you in any counseling? You need to change the negative
>> tapes in your head from your childhood to more pleasant ones.
>> My guess is that you can't do that yourself. You need handles
>> to help you. A good counselor can help you do that.
>>
>> Do you have szs now? If so-- what kind? There are 25 different
>> kinds of szs -- and about that many different kinds of meds. Every
>> body needs to find the med that works for them.
>>
>> We are here to listen to you. I have had EP for 47 years but I have
>> learned a lot in this group -- that I couldn't have learned by
>> myself -- because everybody has different experiences with their
>> szs and their meds.
>>
>> I'm glad you are with us.
>>
>> Millie
>>
>>
>>
>> > I came to be diagnosed with epilepsy through the "back door"--for
>> years
>> > psychiatrists thought I was bipolar and fed me meds like Lithium<
>> > Thorazine, Risperdal--you name it I had it and NOTHING WORKED. One
>> > psychiatrist thougt I might just have PTSD because I had a very
>> abusive
>> > childhood--my mother BEAT me when I didnt lose weight fast enough to
>> suit
>> > her even tho I was in an acceptable weight range medically, she
>> quizzed me
>> > every night on my homework and sloshed the textbook around my ears if
>> I
>> > answered wromg, and she even abused me sexually. My father was either
>> not
>> > present when the abuse took place or he pretended not to motice,
>> > It takes very little to trigger memories of the abuse, but whenever
>> the
>> > memory surfaces, my surroundings diappear and its as if I had quantum
>> > leapt into the past and sometimes I am about to reply to my mother and
>> > then I "wake up" and feel silly about this because of course she isnt
>> > there, IS THIS A SEIZURE?Or PTSD?
>> > In 2008 a Hiltler-like psychiatrist put me on Seroquel which made me
>> so
>> > shaky on my geet that I could barely walk. I had to go from arm to arm
>> of
>> > passers-by to negotiate smooth tile floors. When I said no more and
>> begged
>> > him to chamge the meds he threw me out as a patient, finally I got to
>> a
>> > good woman in a private practice who obn the first visit suspected
>> that my
>> > problems did not just come from bad experiences, She asked me to do
>> some
>> > manual dexterity tests which I failed. When she finally got my records
>> > there was a record of a CT scan of my brain from 1995 but I didnt even
>> > know it existed because it had been done whike I was unconscious from
>> a
>> > suicide attempt (pills) after another torture from Ma., and none of
>> my
>> > previous doctors had told me about it, It showed a split of fibers in
>> the
>> > right temporal lobe and she said this governs emotion and
>> co-ordination(
>> > have some motor co-ordination problems--cant ride bike, drive, roller
>> > skate or go downstairs w/out railing for balance)> She then asked me
>> if I
>> > ever had had grand mal I said no and that was true but since I was 13
>> > there were periodic shaking spells where I was conscious of what was
>> > around me but unable to speak or force myself to move or change
>> position,
>> > these lasted 2-3 minutes and were often noise generated or from
>> repeated
>> > visual images like a stream of cars on a highway,Usually nobody around
>> me
>> > noticed or even if they told me they had seen me appearing odd I just
>> > tossed it off saying I had had a scary thought. I had never told any
>> of
>> > the previous doctors because I thought that would lead to a
>> declaration of
>> > incompetency since it showed that there was something medically wrong
>> in
>> > me rather than "blaming all my troubles on experience, and my mother
>> would
>> > abuse and control me even more after I would be declared incompetent
>> but
>> > now she is dead so I had nothing to lose by telling my present doctor.
>> She
>> > said everything she sawand what I told her fit the SPs ep profile but
>> I
>> > didnt have the $$$ for real tests. She said tshe couldnt really tell
>> if
>> > the vivid memory flashes were PTSD or a symptom of TLE but she urged
>> me to
>> > wear a medical bracelet identifying me as havingTLE. It is also
>> noteworthy
>> > that DEpakote and Gabapentin woand these are meds for Epilepsy rather
>> than
>> > psych disorders.
>> > WHat DO YOU think about the memory vivid flahes, is there any one
>> here
>> > who is a TLE and has the same thing? I also have alot of nightmares is
>> > this also a TLE symptom? Also is it true tyhat TLE from the right temp
>> > lobe can mimic bipolar while left lobe TLe can be mistaken for
>> > schizophrenia?
>> > I know this is a very long post, but I am finally emerging from
>> being
>> > just a lurker on this list and trying to find real "Brotherhood" and
>> > "sisterhood" with others who share my experience medically. Corinna
>> in
>> > Florida
>> >
>> >
>>
>
>
>
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