Adrien,
I live in Indiana and I don't know anything about Canada. There are
a number of people in the group who do. Maybe they can answer your
question.
Millie
> Hi Mylmy
>
> Are there any groups in Canada who support new sufferers of
> ep? A friend of my sister's just got ep and any info may be
> helpful. I don't know all the info. She's asked me to give
> her some info but what I have is very different to her
> friend, the szs are caused by stroke and head injury.
>
>
> Regards
>
> Adrien
>
> You can get me off list at:
> adriencollins22160@
> or
> adriencollins22160@
> or
> adrien.collins@
>
> Speakon is a free fully self-voicing accessible multimedia
> program for
> the visually impaired, find out more by downloading the
> software from:
> http://www.a-
> You can join the speakon user group by sending a blank
> e-mail to:
> speakon-subscribe@
>
> -----Original Message-----
> From: epilepsy@yahoogroup
> [mailto:epilepsy@yahoogroup
> mylmy@bnin.net
> Sent: 20 June 2009 20:58
> To: epilepsy@yahoogroup
> Subject: RE: [epilepsy] new with questions
>
>
>
> Veronica,
>
> There are at least 25 different kinds of szs. I type
> Epilepsy Ontario onto my Yahoo bar. There is a lot of info
> there. I think www.epilepsyontario
> also.
>
> Millie
>
>>
>> Millie,
>>
>>
>>
>> that sounds like with MS.. just because the LP comes out
> negative
>> doesn't mean you don't have MS. Just means it didn't show
> in the LP
>> fluid at the time the test was done. I've had MS lesions
> show up for
>> over 12 years now but never had anything in the LP.
>>
>>
>>
>> I was amazed when something showed on my EEG. That was the
> last thing
>> i was expecting. I had no idea i had anything in the way
> of a seizure.
>> Hell i never blacked out or had convulsions. I thought my
> episodes
>> where I couldn't communicate well were just due to MS.
> Momentary Brain
>> farts I would call them.
>>
>> Veronica Davidson
>> http://www.veronica
>> <http://www.veronica
>>
>>
>>
>>
>>
>>
>>
>>
>>
>>
>> To: epilepsy@yahoogroup
> <mailto:epilepsy%
>> From: mylmy@bnin.net <mailto:mylmy%
>> Date: Sat, 20 Jun 2009 14:16:42 -0400
>> Subject: Re: [epilepsy] new with questions
>>
>>
>>
>>
>>
>>
>>
>> Hi Veronica,
>>
>> Welcome to our group. Yes, a lot of things sound familiar
> but
>> not for me-- so I will let whoever experience them tell
> you.
>> I've had EP for 47 years but have learned so much in this
> group.
>>
>> I also want to say in case the EEG comes out negative --
> that
>> doesn't mean he doesn't have EP. That has happened to
> quite a few.
>>
>> Millie
>>
>>>
>>> Hi everyone!! Thanks for letting me join your group.
>>>
>>>
>>>
>>> I have a few questions and I hope you can all help me out
> here.
>>>
>>>
>>>
>>> First i want to say that this is to do with our 18 year
> old son... soon
>>> to
>>> be 19. Wed. night we got a call from his friends that he
> had a seizure
>>> and we had to come get him. My husband and i jumped out
> of bed and
>>> rushed over to get him. HIs friends mother is a retired
> RN and his
>>> friend
>>> is currently and RN. They told me that our son had felt a
> bit dizzy so
>>> they told him to sit down. He sat down, body went stiff
> and his eyes
>>> rolled back in his head. THey said he made some weird
> gergling noises
>>> with his mouth and they tried to wake him up. They told
> me he was out
>>> for
>>> about 1 to 2 minutes tops. When he came around he was
> slurring his
>>> speach and didn't know what happened. . HE was also very
> tired and
>>> staggering around.
>>>
>>>
>>>
>>> We took him right to the ER where he told the ER dr. that
> he was seeing
>>> sparkling lights in his vision for awhile and he kept
> asking for
>>> something
>>> to drink and wanted to go to sleep. He was also very
> hungry. THe ER dr.
>>> checked blood and urine for anything that shouldn't be
> there, meaning
>>> drugs and alcohol, as well as checking for infection,
> high blood sugar,
>>> and electrolytes. They did a CT scan to see if he had a
> tumor or brain
>>> bleed but everything checked out fine. THe ER dr. was
> convinced that he
>>> did indeed have a seizure and thought it could have been
> brought on by
>>> his
>>> medication Abilify since that was just increased to
> 30mg's.
>>>
>>>
>>>
>>> The ER thought that our son was not in any danger so sent
> him home wiht
>>> us
>>> telling us to keep an eye on him, get him to a
> neurologist and get an
>>> EEG
>>> done.
>>>
>>>
>>>
>>> This was all wed. night so thrusday morning I had our son
> call his
>>> psychiatrist and tell her that he had a seizure and she
> told him to stop
>>> his meds ASAP. I then got him an appointment with a
> neurologist who
>>> squeezed him in for Friday.
>>>
>>> THe neurologist is convinced that our son simply fainted.
> BUt wants to
>>> get an EEG done to make sure. I'm not all that convinced
> that he simply
>>> fainted. Dr. said that since our son stood up and then
> felt faint it was
>>> most likely that his BP was low and the sudden standing
> up made him
>>> faint,
>>> blood rush etc. Our son feels now that he did simply
> faint.
>>>
>>>
>>>
>>> The day after this insident is what gets me. YOu don't
> have a full day
>>> or
>>> more after a faiting spelll where your so tired you can
> barely function
>>> and you sleep all day. He also was extremely hungry and
> thirsty the next
>>> day. Reminded me of our german shepard which had seizure
> disorders and
>>> would drink execessively the day after a seizure. Found
> him face down in
>>> the toilet drinking all the time... not that our son has
> done this
>>> lol...
>>> But he drank quite a bit on thursday and did nothing but
> eat, drink and
>>> sleep.
>>>
>>>
>>>
>>> I myself have had mild electrical brain surges which
> showed up on an EEG
>>> many years ago. This was before i was diagnosed with MS.
> In my case i
>>> would be allert but unable to distinguish what was being
> said to me. I
>>> felt disconnected from my body and when people spoke to
> me it was as if
>>> there was a plate glass window between us. I could see
> the person talk
>>> to
>>> me but didn't know what was being said. Almost like being
> under water in
>>> a pool filled with screaming kids.
>>>
>>>
>>>
>>>
>>>
>>> Anyway, i was wondering if anyone had a similar
> experience as my son
>>> did.
>>> I'm certainly going to take him for an EEG. I just want
> to know if
>>> anything he experienced would sound familiar and if so
> how do you know
>>> what to look for in the future?
>>>
>>> Veronica Davidson
>>> http://www.veronica
> <http://www.veronica
>>>
>>>
>>>
>>>
>>>
>>>
>>>
>>>
>>>
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>>>
>>>
>>
>>
>>
>>
>>
>>
>>
>>
>>
>> ____________
>> Microsoft brings you a new way to search the web. Try
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>> Yahoo! Groups Links
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