Saturday, June 20, 2009

RE: [epilepsy] new with questions



Veronica,

There are at least 25 different kinds of szs. I type
Epilepsy Ontario onto my Yahoo bar. There is a lot
of info there. I think www.epilepsyontario.com
will get you there also.

Millie

>
> Millie,
>
>
>
> that sounds like with MS.. just because the LP comes out negative doesn't
> mean you don't have MS. Just means it didn't show in the LP fluid at the
> time the test was done. I've had MS lesions show up for over 12 years now
> but never had anything in the LP.
>
>
>
> I was amazed when something showed on my EEG. That was the last thing i
> was expecting. I had no idea i had anything in the way of a seizure.
> Hell i never blacked out or had convulsions. I thought my episodes where
> I couldn't communicate well were just due to MS. Momentary Brain farts I
> would call them.
>
> Veronica Davidson
> http://www.veronicaslavishlathers.com
>
>
>
>
>
>
>
>
>
>
> To: epilepsy@yahoogroups.com
> From: mylmy@bnin.net
> Date: Sat, 20 Jun 2009 14:16:42 -0400
> Subject: Re: [epilepsy] new with questions
>
>
>
>
>
>
>
> Hi Veronica,
>
> Welcome to our group. Yes, a lot of things sound familiar but
> not for me-- so I will let whoever experience them tell you.
> I've had EP for 47 years but have learned so much in this group.
>
> I also want to say in case the EEG comes out negative -- that
> doesn't mean he doesn't have EP. That has happened to quite a few.
>
> Millie
>
>>
>> Hi everyone!! Thanks for letting me join your group.
>>
>>
>>
>> I have a few questions and I hope you can all help me out here.
>>
>>
>>
>> First i want to say that this is to do with our 18 year old son... soon
>> to
>> be 19. Wed. night we got a call from his friends that he had a seizure
>> and we had to come get him. My husband and i jumped out of bed and
>> rushed over to get him. HIs friends mother is a retired RN and his
>> friend
>> is currently and RN. They told me that our son had felt a bit dizzy so
>> they told him to sit down. He sat down, body went stiff and his eyes
>> rolled back in his head. THey said he made some weird gergling noises
>> with his mouth and they tried to wake him up. They told me he was out
>> for
>> about 1 to 2 minutes tops. When he came around he was slurring his
>> speach and didn't know what happened. . HE was also very tired and
>> staggering around.
>>
>>
>>
>> We took him right to the ER where he told the ER dr. that he was seeing
>> sparkling lights in his vision for awhile and he kept asking for
>> something
>> to drink and wanted to go to sleep. He was also very hungry. THe ER dr.
>> checked blood and urine for anything that shouldn't be there, meaning
>> drugs and alcohol, as well as checking for infection, high blood sugar,
>> and electrolytes. They did a CT scan to see if he had a tumor or brain
>> bleed but everything checked out fine. THe ER dr. was convinced that he
>> did indeed have a seizure and thought it could have been brought on by
>> his
>> medication Abilify since that was just increased to 30mg's.
>>
>>
>>
>> The ER thought that our son was not in any danger so sent him home wiht
>> us
>> telling us to keep an eye on him, get him to a neurologist and get an
>> EEG
>> done.
>>
>>
>>
>> This was all wed. night so thrusday morning I had our son call his
>> psychiatrist and tell her that he had a seizure and she told him to stop
>> his meds ASAP. I then got him an appointment with a neurologist who
>> squeezed him in for Friday.
>>
>> THe neurologist is convinced that our son simply fainted. BUt wants to
>> get an EEG done to make sure. I'm not all that convinced that he simply
>> fainted. Dr. said that since our son stood up and then felt faint it was
>> most likely that his BP was low and the sudden standing up made him
>> faint,
>> blood rush etc. Our son feels now that he did simply faint.
>>
>>
>>
>> The day after this insident is what gets me. YOu don't have a full day
>> or
>> more after a faiting spelll where your so tired you can barely function
>> and you sleep all day. He also was extremely hungry and thirsty the next
>> day. Reminded me of our german shepard which had seizure disorders and
>> would drink execessively the day after a seizure. Found him face down in
>> the toilet drinking all the time... not that our son has done this
>> lol...
>> But he drank quite a bit on thursday and did nothing but eat, drink and
>> sleep.
>>
>>
>>
>> I myself have had mild electrical brain surges which showed up on an EEG
>> many years ago. This was before i was diagnosed with MS. In my case i
>> would be allert but unable to distinguish what was being said to me. I
>> felt disconnected from my body and when people spoke to me it was as if
>> there was a plate glass window between us. I could see the person talk
>> to
>> me but didn't know what was being said. Almost like being under water in
>> a pool filled with screaming kids.
>>
>>
>>
>>
>>
>> Anyway, i was wondering if anyone had a similar experience as my son
>> did.
>> I'm certainly going to take him for an EEG. I just want to know if
>> anything he experienced would sound familiar and if so how do you know
>> what to look for in the future?
>>
>> Veronica Davidson
>> http://www.veronicaslavishlathers.com
>>
>>
>>
>>
>>
>>
>>
>>
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>
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> __________________________________________________________
> Microsoft brings you a new way to search the web. Try Bing™ now
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> Just a friendly reminder: Please remember to sign your post and remember
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