Adrien,
If an EEG is negative--doesn'
tests also. What do they think you have? Do you have szs? What happens
when you have a sz?
If you are taking meds for EP and quit taking them -- you are right you
will have a sz or szs.
How many meds have you tried? There are about 25 different kinds. Each
person has to find the med that works for them. Just because Dilantin
and Phenabarb work for me -- doesn't mean it will work for anybody else.
I have been on these meds for over 20 years. My last sz was 2 years ago
and the one before that was 4 years.
Millie
> Hi
>
> I have had two eeg's in the past and on both occasions, the
> eeg didn't show anything up, they were not convinced that I
> had ep.
>
>
> Regards
>
> Adrien
>
> You can get me off list at:
> adriencollins22160@
> or
> adriencollins22160@
> or
> adrien.collins@
>
> Speakon is a free fully self-voicing accessible multimedia
> program for
> the visually impaired, find out more by downloading the
> software from:
> http://www.a-
> You can join the speakon user group by sending a blank
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>
> -----Original Message-----
> From: epilepsy@yahoogroup
> [mailto:epilepsy@yahoogroup
> mylmy@bnin.net
> Sent: 20 June 2009 20:17
> To: epilepsy@yahoogroup
> Subject: Re: [epilepsy] new with questions
>
>
>
> Hi Veronica,
>
> Welcome to our group. Yes, a lot of things sound familiar
> but not for me-- so I will let whoever experience them tell
> you.
> I've had EP for 47 years but have learned so much in this
> group.
>
> I also want to say in case the EEG comes out negative --
> that doesn't mean he doesn't have EP. That has happened to
> quite a few.
>
> Millie
>
>>
>> Hi everyone!! Thanks for letting me join your group.
>>
>>
>>
>> I have a few questions and I hope you can all help me out
> here.
>>
>>
>>
>> First i want to say that this is to do with our 18 year
> old son...
>> soon to be 19. Wed. night we got a call from his friends
> that he had a
>> seizure and we had to come get him. My husband and i
> jumped out of bed
>> and rushed over to get him. HIs friends mother is a
> retired RN and his
>> friend is currently and RN. They told me that our son had
> felt a bit
>> dizzy so they told him to sit down. He sat down, body went
> stiff and
>> his eyes rolled back in his head. THey said he made some
> weird
>> gergling noises with his mouth and they tried to wake him
> up. They
>> told me he was out for about 1 to 2 minutes tops. When he
> came around
>> he was slurring his speach and didn't know what happened.
> . HE was
>> also very tired and staggering around.
>>
>>
>>
>> We took him right to the ER where he told the ER dr. that
> he was
>> seeing sparkling lights in his vision for awhile and he
> kept asking
>> for something to drink and wanted to go to sleep. He was
> also very hungry. THe ER dr.
>> checked blood and urine for anything that shouldn't be
> there, meaning
>> drugs and alcohol, as well as checking for infection, high
> blood
>> sugar, and electrolytes. They did a CT scan to see if he
> had a tumor
>> or brain bleed but everything checked out fine. THe ER dr.
> was
>> convinced that he did indeed have a seizure and thought it
> could have
>> been brought on by his medication Abilify since that was
> just increased to 30mg's.
>>
>>
>>
>> The ER thought that our son was not in any danger so sent
> him home
>> wiht us telling us to keep an eye on him, get him to a
> neurologist and
>> get an EEG done.
>>
>>
>>
>> This was all wed. night so thrusday morning I had our son
> call his
>> psychiatrist and tell her that he had a seizure and she
> told him to
>> stop his meds ASAP. I then got him an appointment with a
> neurologist
>> who squeezed him in for Friday.
>>
>> THe neurologist is convinced that our son simply fainted.
> BUt wants to
>> get an EEG done to make sure. I'm not all that convinced
> that he
>> simply fainted. Dr. said that since our son stood up and
> then felt
>> faint it was most likely that his BP was low and the
> sudden standing
>> up made him faint, blood rush etc. Our son feels now that
> he did simply faint.
>>
>>
>>
>> The day after this insident is what gets me. YOu don't
> have a full day
>> or more after a faiting spelll where your so tired you can
> barely
>> function and you sleep all day. He also was extremely
> hungry and
>> thirsty the next day. Reminded me of our german shepard
> which had
>> seizure disorders and would drink execessively the day
> after a
>> seizure. Found him face down in the toilet drinking all
> the time... not that our son has done this lol...
>> But he drank quite a bit on thursday and did nothing but
> eat, drink
>> and sleep.
>>
>>
>>
>> I myself have had mild electrical brain surges which
> showed up on an
>> EEG many years ago. This was before i was diagnosed with
> MS. In my
>> case i would be allert but unable to distinguish what was
> being said
>> to me. I felt disconnected from my body and when people
> spoke to me it
>> was as if there was a plate glass window between us. I
> could see the
>> person talk to me but didn't know what was being said.
> Almost like
>> being under water in a pool filled with screaming kids.
>>
>>
>>
>>
>>
>> Anyway, i was wondering if anyone had a similar experience
> as my son did.
>> I'm certainly going to take him for an EEG. I just want to
> know if
>> anything he experienced would sound familiar and if so how
> do you know
>> what to look for in the future?
>>
>> Veronica Davidson
>> http://www.veronica
>> <http://www.veronica
>>
>>
>>
>>
>>
>>
>>
>>
>> ____________
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>>
>>
>>
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