Zonegran was just the start of a neverending nightmare for us. However, we had not realized Aeidan was suffering from LGS. Laura
____________
From: Elizabeth Last NameSilva <elizabethkaron@
To: epilepsy@yahoogroup
Cc: elizabethkaron@
Sent: Saturday, June 6, 2009 9:00:51 AM
Subject: Re: [epilepsy] New Here
I wanted to ask how soon after adding the zonogram did you see a differance in your daughter. We just added it at night 100mg to my daughters 8ml of keppra three days ago.
____________ _________ _________ __
From: Sandy <sande989@yahoo. com>
To: epilepsy@yahoogroup s.com
Sent: Friday, June 5, 2009 11:08:11 PM
Subject: RE: [epilepsy] New Here
Hello,
My daughter was diagnosed with focal epilepsy leading into generalized tonic clonic seizures. It took them 18 months to diagnose her.
She started with trileptal. Then we tried lamictal. Neither worked. So we added topamax. That controlled them for a while but she became allergic to the lamictal so we removed her from both drugs.
She is now on a combination of keppra and zonagram. The doctor has her on name brand medicine only. She is doing very well now. No grandmals for 2 years.. Now she does still have complex partials and focal seizures every once in a while.
Sometimes it takes a while to find the right medicine for your child. My daughter's now 4 1/2. It was a long hard road but we made it.
I speak with her doctor once a month to let her know how she is doing..
Just takes time and patience.
Sandy
-----Original Message-----
From: uniquepnk tds.net <Uniquepnk@tds. net>
Sent: Friday, June 05, 2009 8:58 PM
To: epilepsy@yahoogroup s.com
Subject: Re: [epilepsy] New Here
Welcome to the group. I have complex partial seizures. I have had them since
I was a baby, which was about 40 years ago. I have taken the Keppra for
about 8 years now. I also take Neurontin with it. Your son might need
another kind of medicine added to it.My seizures are not controlled, but
they are a lot worse without the medicine.I hope the doctor finds something
that will work well to stop them, but it does take some time with the
medicine.If they don't get any better, talk to your doctor about them. Take
care.
Tammy
On Thu, Jun 4, 2009 at 4:06 PM, shandril18969 <shandril18969@ yahoo.com>wrote:
>
>
> Hi!
> My son has been recently diagnosed with a Generalized Seizure disorder. I'm
> so scared because he's had three since January. Keppra hasn't yet controlled
> it. He has different types, though I really don't know the types other than
> his obvious tonic ones at night.
> I don't know what I'm going to do if we can't fix him. He's everything to
> me. He's 3 years old.
>
> If it was LGS or something horrible like that the dr.s would be saying so,
> right?!
>
>
>
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