Hi Carole
It's very difficult knowing what to say to you that will
make you feel better, in fact I can't do that. All I can say
is there's a lot of people out here with epilepsy and we'll
all support you here when we can. Just talking about it may
help you become more confident possibly.
I myself have 3 disabilities and for me the epilepsy is the
worse as it is so unpredictable. You can't stop it, you just
have to try and control it if you can and that's the job of
the drugs and not even that's 100 percent. It's sad that you
can't talk to your family about it as I'm sure they'd all be
behind you and give you the support you obviously need. All
I can say for now is you take care, look after yourself and
I'm sure the others on the group will wish you all the best
too.
Regards
Adrien
You can get me off list at:
adriencollins22160@
or
adriencollins22160@
or
adrien.collins@
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-----Original Message-----
From: epilepsy@yahoogroup
[mailto:epilepsy@yahoogroup
Sent: 18 June 2009 04:26
To: epilepsy@yahoogroup
Subject: [epilepsy] Hi All
My name is Carol. I just turned 35.I I had a head injury due
to domestic abuse and have had GM seizures since 2004. It
started with just a few here and there, but has gotten more
frequent over the last 2 years. I have them every few days
and when they come there are sometimes more than 5 a day. I
have tried Keppra, Lamictal, topamax, and dilantin to name a
few. I am now on the dilantin again but I am scared f the
side effects that came the last time. The dizziness, nausea,
low blood pressure and inability to concentrate. I am easily
agitated when on the meds. I have been seizure free for 11
days. I just got out of the hospital AGAIN!! I am severly
depressed. I haven't drove for 3 years. I have NO social
life. I can't work. I miss being normal. I want my life back
and am scared that there is no way back...Help!
kids that don't understand what's happening and I don't know
how to explain it to them. Where can I go to find out info
on different meds and treatments? I don't want to wait for
the next one to hit. How do I stop them from happening? I
haven't talked to anyone about it. My family doesn't know
how bad it is... I can't face them with how bad it is or how
it happened.
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