Thursday, June 18, 2009

Re: [epilepsy] Hi All



Hi Carlo

Have you talked to the epilepsy foundation they could maby help you talk to your kids so they can understand

Keena

________________________________
From: Carol <carberuned1@yahoo.com>
To: epilepsy@yahoogroups.com
Sent: Wednesday, June 17, 2009 7:25:52 PM
Subject: [epilepsy] Hi All

My name is Carol. I just turned 35.I I had a head injury due to domestic abuse and have had GM seizures since 2004. It started with just a few here and there, but has gotten more frequent over the last 2 years. I have them every few days and when they come there are sometimes more than 5 a day. I have tried Keppra, Lamictal, topamax, and dilantin to name a few. I am now on the dilantin again but I am scared f the side effects that came the last time. The dizziness, nausea, low blood pressure and inability to concentrate. I am easily agitated when on the meds. I have been seizure free for 11 days. I just got out of the hospital AGAIN!! I am severly depressed. I haven't drove for 3 years. I have NO social life. I can't work. I miss being normal. I want my life back and am scared that there is no way back...Help! ! I have 3 kids that don't understand what's happening and I don't know how to explain it to them. Where can I go to find out info on
different meds and treatments? I don't want to wait for the next one to hit. How do I stop them from happening? I haven't talked to anyone about it. My family doesn't know how bad it is... I can't face them with how bad it is or how it happened.

[Non-text portions of this message have been removed]

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