Hi Carol,
welcome to our group.
I like to go to Epilepsy Ontario on a Yahoo tool bar but
I think www.epilepsyontario
They have 25 different szs and also meds. You can click them on
the sz and it will tell you about it.
How old are your children? When I was first diagnosed (DX) 47 years
ago my husband (now ex) decided that we would talk about EP. That is
a decision I have never regretted. I was 30 when I was DX and had 3
daughters-- 2, 4, and 6.
Read the letters here and you will find that everybody has to find
the med that works for them. Everyone is different.
I suggest you keep a diary of when you take your meds and what you take,
when you have a sz; what you were doing just before; how it affects you
and how you feel afterward. You may find a pattern and it will help
your Dr.
Millie
> My name is Carol. I just turned 35.I I had a head injury due to domestic
> abuse and have had GM seizures since 2004. It started with just a few
> here and there, but has gotten more frequent over the last 2 years. I have
> them every few days and when they come there are sometimes more than 5 a
> day. I have tried Keppra, Lamictal, topamax, and dilantin to name a few.
> I am now on the dilantin again but I am scared f the side effects that
> came the last time. The dizziness, nausea, low blood pressure and
> inability to concentrate. I am easily agitated when on the meds. I have
> been seizure free for 11 days. I just got out of the hospital AGAIN!! I
> am severly depressed. I haven't drove for 3 years. I have NO social
> life. I can't work. I miss being normal. I want my life back and am
> scared that there is no way back...Help!
> understand what's happening and I don't know how to explain it to them.
> Where can I go to find out info on different meds and treatments? I don't
> want to wait for the next one to hit. How do I stop them from happening?
> I haven't talked to anyone about it. My family doesn't know how bad it
> is... I can't face them with how bad it is or how it happened.
>
>
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