Carole,
One thing to remember is that you aren't alone, you have all of us here as friends who can relate to your epilepsy. Not just the seizures, but everything else that comes with epilepsy 24/7!!!
Carole, you can make friends in the group here by leaving your email address in a post, simly tell others you are looking to make friends in the group to email with, talk on IM with, talk on the phone with! I've learned friends can relate to each other. Here, so many of us join the group feeling alone, and in time realize we aren't. So many of the everyday feelings we feel and think about are felt by allot of us here. We all need each others support. We all need having friends who we feel are just like us! That's why making friends here is a great way of getting as well as giving support to others! Read the posts each day, vent out here, respond to others who so much need your words for support. Carole, I truly do mean it that you do have friends in all of us! Keep in touch with us more and more, and please, we all here can use your support because of how much you understand what so many of us go through each and everyday day in our own lives! Now Carole, can I ask you a favor? Give us a big smile, OK?
Steve
--- In epilepsy@yahoogroup
>
> Hi Carole
>
> It's very difficult knowing what to say to you that will
> make you feel better, in fact I can't do that. All I can say
> is there's a lot of people out here with epilepsy and we'll
> all support you here when we can. Just talking about it may
> help you become more confident possibly.
>
> I myself have 3 disabilities and for me the epilepsy is the
> worse as it is so unpredictable. You can't stop it, you just
> have to try and control it if you can and that's the job of
> the drugs and not even that's 100 percent. It's sad that you
> can't talk to your family about it as I'm sure they'd all be
> behind you and give you the support you obviously need. All
> I can say for now is you take care, look after yourself and
> I'm sure the others on the group will wish you all the best
> too.
>
>
> Regards
>
> Adrien
>
> You can get me off list at:
> adriencollins22160@
> or
> adriencollins22160@
> or
> adrien.collins@
>
> Speakon is a free fully self-voicing accessible multimedia
> program for
> the visually impaired, find out more by downloading the
> software from:
> http://www.a-
> You can join the speakon user group by sending a blank
> e-mail to:
> speakon-subscribe@
>
> -----Original Message-----
> From: epilepsy@yahoogroup
> [mailto:epilepsy@yahoogroup
> Sent: 18 June 2009 04:26
> To: epilepsy@yahoogroup
> Subject: [epilepsy] Hi All
>
>
>
> My name is Carol. I just turned 35.I I had a head injury due
> to domestic abuse and have had GM seizures since 2004. It
> started with just a few here and there, but has gotten more
> frequent over the last 2 years. I have them every few days
> and when they come there are sometimes more than 5 a day. I
> have tried Keppra, Lamictal, topamax, and dilantin to name a
> few. I am now on the dilantin again but I am scared f the
> side effects that came the last time. The dizziness, nausea,
> low blood pressure and inability to concentrate. I am easily
> agitated when on the meds. I have been seizure free for 11
> days. I just got out of the hospital AGAIN!! I am severly
> depressed. I haven't drove for 3 years. I have NO social
> life. I can't work. I miss being normal. I want my life back
> and am scared that there is no way back...Help!
> kids that don't understand what's happening and I don't know
> how to explain it to them. Where can I go to find out info
> on different meds and treatments? I don't want to wait for
> the next one to hit. How do I stop them from happening? I
> haven't talked to anyone about it. My family doesn't know
> how bad it is... I can't face them with how bad it is or how
> it happened.
>
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