---yes--I have a "talk therapist" this is really a psy social worker, she does counselling but cant prescribe--for the meds I need that woman dr. who suspected it was ep all along. I think I described my sz as being "frozen" shaking but aware what is around me only I am unable to move otherwise or respond until sz passes.. Usually this is generated by noise. I had one of these spells today at a bus depot where there buses were wheezing pocketa pocketa pocketa for 5 min before going on their route and I mised my own bus bec I didnt get out of the "spell" in time. Nobody around me noticed or if they did, they wouldnt give a #%&^$!! Corinna
In epilepsy@yahoogroup
>
> Hi Corrina,
>
> Welcome to our group.
>
> What is PTSD? With your childhood I can see where you would
> have nightmares - just like men who come home from battle have
> nite mares.
>
> Are you in any counseling? You need to change the negative
> tapes in your head from your childhood to more pleasant ones.
> My guess is that you can't do that yourself. You need handles
> to help you. A good counselor can help you do that.
>
> Do you have szs now? If so-- what kind? There are 25 different
> kinds of szs -- and about that many different kinds of meds. Every
> body needs to find the med that works for them.
>
> We are here to listen to you. I have had EP for 47 years but I have
> learned a lot in this group -- that I couldn't have learned by
> myself -- because everybody has different experiences with their
> szs and their meds.
>
> I'm glad you are with us.
>
> Millie
>
>
>
> > I came to be diagnosed with epilepsy through the "back door"--for years
> > psychiatrists thought I was bipolar and fed me meds like Lithium<
> > Thorazine, Risperdal--you name it I had it and NOTHING WORKED. One
> > psychiatrist thougt I might just have PTSD because I had a very abusive
> > childhood--my mother BEAT me when I didnt lose weight fast enough to suit
> > her even tho I was in an acceptable weight range medically, she quizzed me
> > every night on my homework and sloshed the textbook around my ears if I
> > answered wromg, and she even abused me sexually. My father was either not
> > present when the abuse took place or he pretended not to motice,
> > It takes very little to trigger memories of the abuse, but whenever the
> > memory surfaces, my surroundings diappear and its as if I had quantum
> > leapt into the past and sometimes I am about to reply to my mother and
> > then I "wake up" and feel silly about this because of course she isnt
> > there, IS THIS A SEIZURE?Or PTSD?
> > In 2008 a Hiltler-like psychiatrist put me on Seroquel which made me so
> > shaky on my geet that I could barely walk. I had to go from arm to arm of
> > passers-by to negotiate smooth tile floors. When I said no more and begged
> > him to chamge the meds he threw me out as a patient, finally I got to a
> > good woman in a private practice who obn the first visit suspected that my
> > problems did not just come from bad experiences, She asked me to do some
> > manual dexterity tests which I failed. When she finally got my records
> > there was a record of a CT scan of my brain from 1995 but I didnt even
> > know it existed because it had been done whike I was unconscious from a
> > suicide attempt (pills) after another torture from Ma., and none of my
> > previous doctors had told me about it, It showed a split of fibers in the
> > right temporal lobe and she said this governs emotion and co-ordination(
> > have some motor co-ordination problems--cant ride bike, drive, roller
> > skate or go downstairs w/out railing for balance)> She then asked me if I
> > ever had had grand mal I said no and that was true but since I was 13
> > there were periodic shaking spells where I was conscious of what was
> > around me but unable to speak or force myself to move or change position,
> > these lasted 2-3 minutes and were often noise generated or from repeated
> > visual images like a stream of cars on a highway,Usually nobody around me
> > noticed or even if they told me they had seen me appearing odd I just
> > tossed it off saying I had had a scary thought. I had never told any of
> > the previous doctors because I thought that would lead to a declaration of
> > incompetency since it showed that there was something medically wrong in
> > me rather than "blaming all my troubles on experience, and my mother would
> > abuse and control me even more after I would be declared incompetent but
> > now she is dead so I had nothing to lose by telling my present doctor. She
> > said everything she sawand what I told her fit the SPs ep profile but I
> > didnt have the $$$ for real tests. She said tshe couldnt really tell if
> > the vivid memory flashes were PTSD or a symptom of TLE but she urged me to
> > wear a medical bracelet identifying me as havingTLE. It is also noteworthy
> > that DEpakote and Gabapentin woand these are meds for Epilepsy rather than
> > psych disorders.
> > WHat DO YOU think about the memory vivid flahes, is there any one here
> > who is a TLE and has the same thing? I also have alot of nightmares is
> > this also a TLE symptom? Also is it true tyhat TLE from the right temp
> > lobe can mimic bipolar while left lobe TLe can be mistaken for
> > schizophrenia?
> > I know this is a very long post, but I am finally emerging from being
> > just a lurker on this list and trying to find real "Brotherhood" and
> > "sisterhood" with others who share my experience medically. Corinna in
> > Florida
> >
> >
>
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